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Today is CFS/FM Awareness Day 2000!

  [ 19 votes ]   [ Discuss This Article ]
By Tamara Schuit • • May 12, 2000

Did you know that today is International Awareness Day for Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) and related illnesses? Although the day is upon us, you can still make a difference. One of the simplest ways is to write – to Congress or your local government or media. Several web sites offer sample letters you can use (see below for useful links). If you do choose to write to Congress, keep in mind that Lobby Day is June 21-22. It is on this day that Association representatives, patients, and others travel to Congress – taking with them the voices (in the forms of letters, etc.) and concerns of CFIDS/FM patients. Many other sites offer information on grassroots efforts, guidelines for today's activities, CFIDS fact sheets, and Lobby Days 2000 information.

Whether you choose to write a letter or sign a petition, every effort adds one more voice to this important cause and raises public and government awareness. /awareness/2000/info.html
This list offers a CFIDS Awareness Day Packet that includes guidelines for today's activities, advocacy instructions, media tips and sample letters, a CFIDS fact sheet, and Lobby Days 2000 information.
Send your concerns to leaders via e-mail! Just enter information into the preset fields and click send.
Although the Letters to the Editor Campaign is complete, it's not too late write your own.
The Message in a Bottle Project (MAB) is a grassroots plan to raise awareness for CFIDS/FM. Empty prescription, vitamin, and other supplement bottles were mailed to the American Medical Women's Association on May 1, 2000. The background of this important campaign can be found on their site.
Names and addresses for Dr. Devin Starlanyl's online petition.
This list offers many advocacy plans and activities for today.

Awareness Day 2000 is the brain child of Tom Hennessy, president of R.E.S.C.I.N.D. (Repeal Existing Stereotypes about Chronic, Immunological and Neurological Diseases), who gave birth to this idea in 1992 to help raise awareness both in communities and the government. Hennessy's simple thought has now become a huge success with CFIDS/FM patients and their families and friends. Red Cross pioneer, Florence Nightingale, spent nearly 50 years of her life suffering from a disease resembling CFIDS. It is her accomplishments and birthday that we honor today.

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