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The CFIDS Monthly Update: February 2002

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www.ProHealth.com • February 1, 2002


The CFIDS Monthly Update February 2002

Lend us your voice! Mark your calendar with 2002 Lobby Day dates. Most doctors agree that chronic fatigue and immune dysfunction syndrome (CFIDS) is as disabling as multiple sclerosis, lupus and rheumatoid arthritis, but CFIDS is among the lowest-funded diseases by the federal government. By lending The CFIDS Association of America your voice, you can help fight more effectively for increasing the amount and quality of CFIDS research.

On Lobby Day, Thursday, March 21st, we will work in small, geographically determined groups to carry our message through the halls of Congress and into the offices of key legislative decision-makers – the people who determine how the federal health agencies divvy up their annual budgets.

Please help to make your Congressional representatives more responsive to CFIDS as an important public health concern by participating in Lobby Day 2002 in Washington, DC. Information is available in the “What’s New” section on the Association’s web site www.cfids.org. For further assistance, please contact Vicki Walker at The CFIDS Association of America (telephone: 704/364-0016, e-mail: vwalker@cfids.org, or fax: 704/364-3729).

Association’s Board of Directors approves funding for CFIDS research projects. The Association is pleased to announce that four new research projects will receive a total of over $276,000 in funding in 2002.

Study: Dose-Response Effects of Corticotropin-Releasing Hormone Infusion on Mood, Cognition, Hormonal and Cytokine Rhythms, and Adipose Tissue Cytokine Production in Female Normal Volunteers
Investigator: Dimitris Papanicolaou, MD; Emory University, Atlanta, Ga.
Budget: $66,800

Study: Do Patients with Chronic Fatigue Syndrome Have Widespread Autonomic Dysfunction?
Investigator: Ronald Schondorf, PhD, MD; SMDB Jewish General Hospital, McGill University, Montreal, Canada
Budget: $58,594

Study: Dysregulation of the 2-5A Pathway in CFS Patients
Investigator: Sidney E. Grossberg, MD; Medical College of Wisconsin
Budget: $71,120

Study: Cytokine Dysregulation of Circadian Rhythms: Potential Implications for Chronic Fatigue
Investigator: Jian M. Ding, MD, PhD; Minneapolis Medical Research Foundation
Budget: $79,947

Since 1987 The CFIDS Association of America has provided over $3.4 million in grants to CFIDS researchers. The purpose of the Association's Research Grants Program is to provide financial support to the highest quality pilot researcher studies. Funding for these grants is provided through contributions from Association members and donors.

In late February the Association will launch a special campaign to raise funds for promising CFIDS research. To make a donation in support of this exciting research visit http://www.cfids.org/ecommerce/donations.asp and contribute via our secure server.

For more information on the Association’s Research Grants Program, contact Vicki Walker at vwalker@cfids.org or visit http://www.cfids.org/resources/association-grants.asp.

Health care professional survey helps bring media coverage. Recently the CFIDS Association of America has been pitching its survey of medical professionals to the media in an effort to secure more coverage for the illness. Due in part to this pitching, CNN ran an article on CFIDS in the health section of its web site, CNN.com. "Chronic fatigue syndrome--more than just being tired" was posted on 12/25/01, and contains several key messages. Reporter Eleni Berger points out that the illness is severe, poorly understood, and difficult to diagnose.

If you would like to view the article, go to:
http://www.cnn.com/2001/HEALTH/conditions/12/24/chronic.fatigue/index.html

To thank the author for her positive coverage of CFIDS, send an e-mail to: eleni.berger@turner.com

Nursing Spectrum magazine features article on CFIDS. The January 7, 2002 issue of Nursing Spectrum, featured an article on CFIDS titled “A Diagnostic and Management Challenge.” You can view the article by visiting http://community.nursingspectrum.com/MagazineArticles/article.cfm?AID=5697. The article was written by Terri Lupton, RN, BSS, Coordinator of Educational Opportunities for the Association.

Nursing Spectrum is an RN-led communications company that celebrates nurses and the profession of nursing. They have ten print publications that reach almost one million nurses in 35 states.

Submissions for new Snapshots publication sought. We’re looking for a few good stories to include in the Association’s latest version of the successful Snapshots of CFIDS publication. The new publication will include profiles of people with CFIDS (PWCs) and useful tips for dealing with CFIDS in everyday life. The publication also may feature stories, poems and original artwork from PWCs. The new Snapshots is slated for release in mid-2002.

Do you know of a PWC with an inspirational story to tell? Would you like to share your coping tips? Do you have CFIDS-related writings, photographs or pictures of artwork that you would like to submit? Please send your work to The CFIDS Association of America, Attn: Leah Moseley, PO Box 220398, Charlotte, NC 28222-0398. Submissions also may be sent via e-mail to chronicle@cfids.org. Unfortunately, we are unable to return submissions or photos. Staff members will be responsible for selecting content.
Meetings of Interest

The National Fibromyalgia Partnership, Inc. will host a patient-oriented conference in Orlando, Florida, May 3-5, 2002. For more information please visit www.fmpartnership.org or call 866-725-4404. Speakers to date include post-traumatic FM expert Thomas Romano, MD, PhD; FM aquatics expert Mary Essert; mycoplasma expert Prof. Garth Nicolson, MD; FM researcher Roland Stuad, MD; and expert FM attorney Scott Davis. A session on juvenile FM will also be presented.

The Connecticut CFIDS/FM Association, Inc. will be hosting well-known practitioner and researcher, Dr. Harvey Moldofsky on April 6, 2002 at the University of Connecticut Health Center. Dr. Moldofsky will be speaking on sleep dysfunction in both CFIDS and FM. For additional information, please write to The CT CFIDS/FM Association, PO Box 3010, Milford, CT 06460 or call 800/952-2037.

On behalf of The CFIDS Association of America, we thank you for your support and encouragement in our efforts to conquer CFIDS.






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