ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

SURVEY: Cognitive Impairment II

Natural Bladder Control, Go Less and Live More

Vital Molecule Increases Cellular Energy and Improves Cognitive Function

Top Vitamin and Mineral Deficiencies — Are You at Risk?

How Pomegranate May Protect Against Cancer

Omega Fix for Obesity: How the Right Fats Fight Fat

Trimming the spare tire: Canola oil may cut belly fat

The Onion: Cancer Fighter and Food Preserver

Fighting Heartburn and Gerd Naturally – And Safely!

Probiotics improve cognition in Alzheimer's patients

 
Print Page
Email Article

Chronic Fatigue Syndrome: Name Change Proposal

  [ 152 votes ]   [ Discuss This Article ]
www.ProHealth.com • May 13, 2002


Given the many name change debates and surveys, patients have favored using the term myalgic encephalomyelitis (ME). This seems to have been the overall consensus over time. Last year we put up the petition, along with RESCIND, to call for the recognition of ME. Finally patient's requests have been considered and were reflected in the proposal put forth by the name change workgroup (NCW).

The NCW has finally presented a real, viable opportunity for the name change effort. We see this proposal first and foremost as a means by which to get official recognition for ME and we are working with the NCW to get some clarifications and improve upon some of the content and wording of the draft proposal. And most importantly, it calls for the recognition of ME as originally described by Ramsay, NOT just as another name for CFS.

Simply changing the name at this point will not solve our problems. There has been unfortunately considerable misinformation regarding the NCW proposal, particularly that it was putting forth chronic neuroendocrineimmune dysfunction syndrome (CNDS) as the new name for CFS, but this is not the case.

At ALL conferences and meetings the need for the identification of subgroups has been viewed as critical and this proposal takes the much needed first step. The workgroup took a sound, simple and logical approach - to pull out of CFS that which could be recognized and identified at this point, without getting into renaming or redefining anything.

Most importantly, even beyond the name, there has been considerable harm done by confusing ME with other entities. Unfortunately, at this point, many simply believe and have been told that ME is JUST another name for CFS, which is why it is critical to implement these recommendations. Separating the two clearly indicates that they are not. Up until now, those who fulfill the Fukuda criteria and are given a diagnosis of CFS might not even have cognitive difficulties or post-exertional malaise but still meet the criteria. Certainly, those who defined these criteria were unfamiliar with the basic symptoms of ME.

This recommendation may not solve all our problems but it represents a much needed step in the right direction. Not the least of which, - even if NOTHING else occurs in research - those with "true" ME will not be expected to exercise their way to health.

Regardless of what umbrella term is selected, or even if one is ever selected, the sub-groups as recommended, particularly ME, need to be recognized, be introduced into our dialogue, our conversations with physcians, our interviews with the media, and our advice to researchers.

The US made a big mistake in introducing CFS. The past cannot be changed, but the implementation of these recommendations could be our way of beginning to undo the problems it has caused by officially helping to give ME - in its original form - back to the rest of the world. If these recommendations are accepted, it will in fact gain official recognition and provide a good opportunity to get the attention of the medical community, media and general public, and thereby increase understanding and raise awareness.

This name change recommendation, which includes ME - made by an officially appointed federal committee - could be the ultimate awareness project. Do we want to continue to look for the perfect name or solution, which may not exist, or continue to argue about it for another decade? Or meanwhile waste more time constantly explaining and continuing to correct and protest all the misinformation or misunderstandings of CFS?

Protest may be warranted and effective under certain circumstances. But lets not allow protest to become the only thing we know how to do and the only way we know how to respond. Perhaps we should try more general awareness and look to determine how to prevent things which may not be in our best interests from happening which we will have to protest.

Patients need to continue to support this endeavor, seize this opportunity, and move on. Here's to a better and healthier future.

Jill McLaughlin

Executive Director

[an association for CFS]

Needham, MA 02492

The petition to call for the recognition of ME is located at: http://www.petitiononline.com/MEitis/petition.html



Post a Comment

Featured Products From the ProHealth Store
Mitochondria Ignite™ with NT Factor® Vitamin D3 Extreme™ Energy NADH™ 12.5mg


Article Comments



Be the first to comment on this article!

Post a Comment


 
Natural Pain Relief Supplements

Featured Products

Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Optimized Curcumin Longvida® Optimized Curcumin Longvida®
Supports Cognition, Memory & Overall Health

Natural Remedies

Live Without Anxiety or Stress Live Without Anxiety or Stress
Quercetin: Natural Support for Allergy & Inflammation Relief and More Quercetin: Natural Support for Allergy & Inflammation Relief and More
Three-Step Strategy to Reverse Mitochondrial Aging Three-Step Strategy to Reverse Mitochondrial Aging
Safely Burn Away Body Fat Safely Burn Away Body Fat
Are You Obtaining the Proper Enzymes? Are You Obtaining the Proper Enzymes?

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE TO OUR NEWSLETTERS
Get the latest news about Fibromyalgia, M.E/Chronic Fatigue Syndrome, Lyme Disease and Natural Wellness

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2016 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map