ProHealth health Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

SURVEY: Cognitive Impairment II

Top 3 Nutrients to Detox the Liver and Soothe Digestion

Natural Bladder Control, Go Less and Live More

Top Vitamin and Mineral Deficiencies — Are You at Risk?

Vital Molecule Increases Cellular Energy and Improves Cognitive Function

Omega Fix for Obesity: How the Right Fats Fight Fat

How Pomegranate May Protect Against Cancer

Trimming the spare tire: Canola oil may cut belly fat

The Onion: Cancer Fighter and Food Preserver

Probiotics improve cognition in Alzheimer's patients

Print Page
Email Article

Chronic Fatigue Syndrome/ME in Sussex (UK) 2002 Survey

  [ 61 votes ]   [ Discuss This Article ] • September 5, 2002

Executive Summary

ME is classified by the World Health Organisation as a disease of the nervous system (1). The recent Chief Medical Officers' Working Group Report (2002) recognises that CFS/ME "can cause profound and often prolonged illness and disability and can have a very substantial affect to the individual and family" (2).

Previous research conducted in 1999 in Sussex (3) identified the need for a local specialist ME/CFS clinic for the area, and estimated that there are at least 4,500 ME/CFS sufferers in Sussex, 900 people who are severely ill with ME/CFS and over 3,000 people who may be prevented from working due to the illness.

The Sussex ME/CFS Society has updated the research with this survey in 2002 to verify previous information and look at new areas of interest. Questionnaires were distributed to 551 members of the Society, and there were 277 responses (49%). The authors of this research wish to thank all members who took part in the survey.

In summary, the conclusions from this research are:

Diagnosis. There is still often a delay of between 12 to 18 months before a diagnosis of ME/CFS is made, as recently highlighted by Action for ME research.

Severity and Impact. 65% of the Sussex ME/CFS Society's current members are unable to work due to the severity of their illness.

Treatments. There was no single treatment that could be seen as a "cure-all" for ME/CFS! However, it was felt that the following statements could be made from research results:

Pacing appeared to be the most helpful treatment, as 88% found it helped and no one experienced it as being detrimental.

Alternative/Complementary Therapies. More people in this survey were helped by alternative therapies (59%) than antidepressants (53%) CBT
(50%) or GET (37%). Only 4% felt their illness was worsened by an alternative therapy. Many commented positively on their experiences. However, a significant number had tried a range of different therapies at some financial cost to themselves.

Antidepressants also helped a majority (53%) of those who used them. But a significant number (42%) said antidepressants did not help them or made them worse. Many wrote about side effects and had tried a range of different drugs.

Cognitive Behaviour Therapy. 50% of those who tried CBT said it helped.

Graded Exercise Therapy. While some (37%) were helped by this therapy, more said it had not helped or had made them worse (48%).

12% of participants were not offered any of the four conventional treatments considered, despite some of these people categorising themselves as chronically and severely ill.

Patient Satisfaction. There was a relatively low satisfaction level regarding medical care, with only 6% very satisfied and 60% not satisfied. Satisfaction was qualified by comments on the positive attitude of the GP or Consultant involved and the quality of care provided.

Dissatisfaction was qualified by comments on the time taken to diagnose, the lack of knowledge about the illness, inadequate treatment and poor attitudes amongst the medical profession towards people with ME/CFS.

Below are some of the comments by Sussex ME/CFS Society Members made in their questionnaire responses and which appear within this report.

"My GP acted promptly and sensitively and made a quick referral"

"I am quite satisfied but (I have been) basically left to cope as there seems to be no treatment available"

"I found (the treatment) extremely helpful and although I am not recovered I use the practical strategies everyday to organise my time and activity"

"I feel that too many people like myself do not receive early intervention so by the time they do see someone the illness is chronic and much harder to tackle. By then people have usually compounded difficulties, and financial, social, and emotional losses."

"I do feel that everyone's needs are different with this illness and the NHS tends to think that all people will react in the same way to treatment."

"Up to 1999 my many requests for help were ignored - it was "all in my mind", just stress, or I was told there was no such thing as ME."

"I cannot praise the treatment I have received or the results highly enough. I am now 90% recovered and have absolute faith in ... as a treatment for ME."

The Sussex ME/CFS Society believes that this report further indicates the need for a local specialist service for ME/CFS in Sussex, and that action is needed by all agencies to ensure that this need is met in the near future.


(1) World Health Organisation Report 1992
(2) Chief Medical Officers' Working Group Report on ME/CFS - A Guide 2002
(3) ME/CFS sufferers in Sussex: Their needs and experiences of local care provision. Edwards et al. 1999

Full report will be available from Sussex & Kent ME/CFS Society. (Received via Co-Cure).

Post a Comment

Featured Products From the ProHealth Store
Ultra ATP+, Double Strength Mitochondria Ignite™ with NT Factor® Vitamin D3 Extreme™

Article Comments

Be the first to comment on this article!

Post a Comment

Natural Pain Relief Supplements

Featured Products

Optimized Curcumin Longvida® Optimized Curcumin Longvida®
Supports Cognition, Memory & Overall Health
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Ultra EPA  - Fish Oil Ultra EPA - Fish Oil
Ultra concentrated source of essential fish oils
Vitamin D3 Extreme™ Vitamin D3 Extreme™
50,000 IU Vitamin D3 - Prescription Strength
FibroSleep™ FibroSleep™
The All-in-One Natural Sleep Aid

Natural Remedies

Fight Inflammation and Promote Cognitive Health with High-OPC Grape Seed Fight Inflammation and Promote Cognitive Health with High-OPC Grape Seed
Can Glycine + Amino Acids Be the Secret to Deep, Rejuvenating Sleep? Can Glycine + Amino Acids Be the Secret to Deep, Rejuvenating Sleep?
Secret Nutrient for Radiant Skin Secret Nutrient for Radiant Skin
Irritable Bowel Syndrome: Unlocking the Secrets of Peppermint, Acacia and Fennel Irritable Bowel Syndrome: Unlocking the Secrets of Peppermint, Acacia and Fennel
The Most Powerful Natural Antioxidant Discovered to Date - Hydroxytyrosol The Most Powerful Natural Antioxidant Discovered to Date - Hydroxytyrosol

ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
Credit Card Processing
Get the latest news about Fibromyalgia, M.E/Chronic Fatigue Syndrome, Lyme Disease and Natural Wellness

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2016 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map