I have been in a Lupus flare for 2 months now and it is not getting better. I have a horrible butterfly rash that i keep putting ointment on it. I live in Florida and I cant even step out side as my face burns up.
Under my chin it looks like i swollowed a golf ball, and my glands are swollen up the side under my jaw line. I cant chew, my mollars even hurt.
I have been having trouble urinating. Takes complete consintration, run water in sink, until my bladder finally releases.
I had cervical spinal surgery in April and I am still in a neck brace as they had problems taking my old cervical plate out and putting a new bigger one in. It was suppose to be a 2 hour surgery and ended up being 6 hours and over a week stay in the hospital not allowed to move. they also put a cage around my spine.
I have spinal stenosis, degenerated disc syndrome. All my bones and joints are hurting so bad.
Medicine isnt helping this time around.
I am scared that my Lupus is going into another harder stage of Lupus.
I am in the middle of moving from FLorida to Pa. My 12yr old is already there and I miss him so much. I know he is in good hands with my sister in law and all my inlaws up there.
All these problems is causing severe anxiety, and depression, and starting to feel like isolating myself.
Please read this and I am looking for anyone to give me any advice, I just need to know there are people out there that know what I am going thru and care enough to help me thru this.
God Bless,
Cin
