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  spacee
7/12/09 8:51 PM
Road Back Foundation.org

Does anyone visit this site. It is about using antibiotics to treat RA, Lupus, sleroderma?

I have seen ads on TV for the doxyclicline to treat RA. But now all I see are the Enbrel ads for RA. I was wondering if the Enbrel drug companies were "protecting" their investment by buying up the commercial time. I see so many ads for Enbrel. I said to my hubby "there cannot be that many people with RA".

I took a 5 day course of Doxy and felt so much better after the 5th day (lasted two days) that I have an appt to talk to my doc about it. Taking in print outs from the Road Back Foundation.





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  redhairali
7/13/09 8:05 AM
Hi

this a site to connect to other people with lupus. (It is a little slow here.)



  spacee
7/24/09 9:26 PM
The Roadback Foundation.org

is for lupus patients. Some autoimmune disease treatments overlap.

Spacee



  spacee
7/27/09 11:28 AM
Hi Lin!

I was considering the LDN! In fact, I printed off the info and gave it to a good friend who is in a wheelchair with MS.

I am going to give this a whirl and then if nothing seems improved, I will go to the LDN. I am very lucky to have a doc who is willing to go along with what I ask for.

I took a course of the doxy while visiting relatives. Felt like I had a kidney infection. On the 5th and 6th day I felt so, so good. And I put in some time on the Marshall Protocol. I could definitely feel (yes feel, yuk) the pathogens reacting to the MP.

I have also read about the Stratton Protocol (a doc at Vanderbuit). It is so much like the MP but uses OTC meds instead of Benicar to ramp down the inflammation so the Doxy can work. Also, they want you to take NAC to protect your liver. And, of course, the probiotic.

Yep, it is sounding like the LDN would be a lot easier! Oh, well, we try to go through the door that is opening at the time and for me it seems. Doxy. It is because whatever I have, be it CFS, Lupus or what, it seems to me to be contagious...so going the abx route seems right for me at this time.

Calling the compounding pharmacies was brilliant. I never would have thought of that!

Hoping you find a doc!

Spacee





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