I have yet to receive a positive result for lyme or co-infections, but I KNOW that I have it. My symptoms include:

Ove the years - itching in my shoulders- nothing would relief
night sweats
tingling in lips and tongue
fatigue
joint pain
and recently - the joint pain so bad that I could not walk, raise my arms, open a tylenol bottle, just completely debilitating.
insomnia
anxiety
irregular periods
mood swings

Anyone else had these symptoms? They are driving me crazy - and I had all the mild ones for years - about 5. The inability to walk came on in one day - crazy - really scary. And no positive test yet. Have seen a LLMD - but have to wait two more weeks before I test again because I did two weeks of doxy. On the doxy I felt almost normal for the first time in years. In three days after getting off it, the symptoms have returned - not as severe yet.

Any info would be appreciated - I believe that this is chronic lyme, and have tested negative for all the other diseases - my doctor doesn't seem very concerned at this point......

Hi!

It is very common for lyme patients to never have a positive lyme test....the tests just aren't that good.

My most prominent symptoms in the last 22 years when I had just a FMS diagnosis (been treating for lyme and coinfections since Feb 09) have been:

muscle and soft tissue pain all over my body and all the FM tenderpoints

sleep difficulty....for years I could fall asleep but woke up often....then in recent years I could not fall asleep or stay asleep.

fatigue, especially in the morning

19 months ago I developed horrible neck pain and stiffness and a constant base of the skull headache

joint stiffness

joint soreness

minor muscle twitching

mild sound and light sensitivity

floaters

mildly sore soles

cognitive problems....forgetfulness, word finding problems, etc

tinnitus

tingling/pins and needles/stabbing pains

hot flashes

mild IBS/food sensitivities

cold intolerance

itchy skin


Have you read Dr Burrascano's guidelines?....here they are in case you have not seen them....


http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf


Lots of good info at lymenet.org.....click on flash discussion....sign up for free....click on Medical Questions board....post a question and read other's posts....lots of good people there.

Good luck!

10+ years ago

Began with severe headaches up back of neck and stiff neck
TMJ
Spasm in neck muscle
Then insomnia/pain spread through outbody/stopped sleeping
Continued headachs/eye pressure
Stiff neck off and on
Light and noise sensitivity
Stiff muscles/pain all over
sore knee joint
Insomnia, insomnia , insomnia
Recovered somewhat on low carb/no wheat/whole foods diet and moducare sterinol
Heart palpitations and lower tolerance for stress/anxiety
3 years ago-optic neuritis with nerve atrophy and increasing neuro symptoms (below)/less muscle pain stiffness/but more neuro
Eye pain in both eyes/eye pressure-worse at menstrual cycles
Thumbs twitch-twitching in muscles all over
loss of coordination-missing objects when reaching for them
jumpy
muscle twitching all over especially in legs , after exercise worse
extreme brain fog
foot drag- loss of depth perception when walking on uneven terrain
memory/cognitive issues