Yes, I too miss the old days when we had many more Lyme patients posting freely over on the main board. There was a lot less censorship. There was no "big push" to have non-topic posts about Chit Chat, Parkinson's or MS moved over to other boards ever. Why was Lyme the one singled out? Hmm, it sure makes me wonder.
As for people that don't want us to post on the main board.... I'm just not understanding their motivation. I still maintain that the root cause of CFS is Lyme and that Fibro is just a descriptive term for Lyme disease but then I'm just preaching to the choir.
It seems like a certain few are in such deep denial because they want to see CFS/FM become a "real" diagnosis. Yes, the symptoms are REAL but the disease name is all wrong. If the wrong thing is being treated the patient never really gets better. Maybe some people want to have a hopeless mysterious illness is all I can figure?
Another thing... The way the exclusion criteria is written for CFS and FM state that -- Once someone is diagnosed with another condition, say for example hypothyroidism, that explains the symptoms then the patient is no longer considered to have CFS according to the strict definition of the disease. To me, that says, CFS and/or FM are just temporary diagnoses or a stepping stone to a correct diagnosis.
