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Lyme Disease news and research
 
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Organizations for Lyme Disease


ONLINE


TickEncounter Resource Center
The TickEncouncter Resource Center will not only help you identify ticks, it now partners with UMass Laboratory of Medical Zoology to offer low-cost testing.

Tick Report
Send them a tick, and they will identify it and determine the correct tests to apply. Low-cost tests take 3-5 days.

USA - NATIONAL


Global Lyme Alliance
In April 2015, the Lyme Research Alliance and Tick-Borne Disease Alliance merged to become the Global Lyme Alliance. Until the new website is launched, you can find information on the two individual websites.

Lyme Research Alliance
"Lyme Research Alliance funds cutting-edge research into Lyme and other tick-borne diseases."

Website features: General information, research, support group referrals, doctor referrals and news.

Tick-Borne Disease Alliance
"The Tick-Borne Disease Alliance (TBDA) is dedicated to raising awareness, promoting advocacy, and supporting initiatives to find a cure for tick-borne diseases, including Lyme. As part of our efforts to raise funds to support much-needed research, TBDA will embark on a quest to develop a diagnostic tool as a first step toward eradicating the diseases. Working with others in the tick-borne disease community nationwide, TBDA seeks to raise public awareness through education and create a unified voice for advocacy regarding the current epidemic in order to make a real difference."

Website features: General information, doctor referrals, diagnostic tests, events, treatments, blog and news.

Lyme Disease Association, Inc. (LDA)
The Lyme Disease Association began as Lyme Disease Association of Central Jersey in 1991 and then became Lyme Disease Association of New Jersey in 1993. Formed by patients and doctors who saw the need to organize, fund research and educate people, by 1997, it had influence far beyond NJ borders. In 2000, the Board changed the name to Lyme Disease Association, Inc. (LDA) with a broader mission expanding research funding (LDA-funded research has appeared in 35 scientific journal publications to date) and including expanded patient support (LA4K). At that time, LDA decided to remain an all-volunteer organization without paid employees so that almost all of its incoming revenue would be dedicated to the mission. It remains volunteer-run with some professional consultants who provide specific expertise when needed. In 2013, 144 individuals volunteered 22,840 hours to assist with LDA programs. The Lyme Disease Association, Inc. (LDA) is designated by the IRS as a 501(c)(3) non-profit, a charity focusing on research, education, prevention and patient support.

Website features: New, resources, general information, physician referrals, grants, legislation, prevention, statistics, and scientific articles.

Lyme Disease Network
"Founded in 1991, the Network has helped thousands of people from all over the country. We are incorporated in the State of New Jersey and received our 501(c)(3) that same year.

Our funding comes from individuals and businesses that have been touched by this disease. We have no affiliation with any health care provider or corporation. We currently do not receive funding from government sources, although we have submitted applications for such funding to support our project."

Website features: General information about the diagnosis, symptoms and treatment of Lyme, research abstracts, newsletter, library, links, support group list, and pointers to other information sources on the Internet.

LymeDisease.org [formerly CALDA]

"LymeDisease.org is a non-profit corporation that is a central voice for Lyme patients across the nation through advocacy, education and research. Since 1989, LymeDisease.org (formerly CALDA) has been revolutionizing the Lyme disease arena in public policy, advocacy, and science. Our grassroots membership and state-based online network reach thousands, providing a powerful voice for patients across the country. We seek the hard truths, ask the tough questions, and are not afraid to rock the boat."

Website features: General information, co-infections, prevalence, prevention, issues of Lyme Times, support groups, activism, resources, research, map, and information in Spanish.

Military Lyme Support
Eagle River, Alaska
Contact: Colleen Nicholson
Email:
Serves: All military in all states and overseas, as well as civilians.

Provides information on Lyme literate doctors, treatment protocols, Tricare Help, alternative treatments, Lyme-related political issues.


USA - STATE AND REGIONAL


Alabama


Alabama Tick Disease Awareness Coalition
Birmingham, Alabama
Contact: Stephanie Ingram
Tel: (205) 980-8030
Email:

Arizona


AZLDA - Arizona Lyme Disease Association

Northern Arizona - Tina Caskey
Phone: (928) 779-2759

Southern Arizona - Donna Hoch
Tel: (520) 393-1452

Phoenix:

California


Bay Area Lyme Foundation
884 Portola Road, Suite A7
Portola Valley, CA 94028
Tel: (650) 530-2439
Fax: (855) 229-5963
Email:

Colorado


Mile High Tick
Boulder, Colorado
Contact: Mary Parker
Tel: (303) 652-0399
Email:

Connecticut


Newtown Lyme Disease Task Force
Newtown, Connecticut 06470
Email:

Ridgefield Lyme Disease Task Force
66 Prospect Street
Ridgefield, Connecticut 06877
Tel: (203) 438-0578
Email:

Ridgefield Lyme, Chronic Fatigue and Fibromyalgia Support group meets 2nd Thursday every month at 12 noon at the Ridgefield Visiting Nurse Association, 90 East Ridge, Ridgefield, CT 06877

The Greater Hartford Lyme Disease Support and Action Group
Unionville, CT
Contacts: Chris Montes and Randy Sykes
Email: Chris
Randy:


District of Colombia


National Capital Lyme Disease Association
District of Colombia
Contact: Monte L Skall
Email:
Tel: (703) 821-8833


Florida


Florida Lyme Advocacy, Inc.
Fernandina Beach, Florida 32034
E-Mail:
OR


The Lanford Foundation - Lifelyme, Inc. Tallahassee, Florida
Contact: Dolores Claesson
Email:

Georgia


Georgia Lyme Disease Association Atlanta, GA
Email:

Illinois


Mississippi Valley Lyme Disease Network
Roseville, Illinois
Contact: Lou Ellen Gooding
Tel: (309) 426-2339
Email:

Northern Illinois Lyme Resources Contact: Jeanette Wheat
Email:
Tel: (608) 798-4421
Alternate Contacts:
Virginia at
OR
Eve at

Quad-Cities Lyme Disease Network
Reynolds, Illinois
Contact: Marilyn McBride
Tel: (309) 372-4472
Email:

Iowa


Iowa Illinois Lyme Network (ILLOWA Lyme Network) Davenport, Iowa
Contact: Marilyn McBride
Tel: (309) 372-4472
Email:

Iowa Lyme Disease Association Brighton, Iowa

Contacts:
Kathy Cuddeback - President
(319) 698-7696

Kent Larsen - Public Relations Officer
(319) 287-5421

Email:

SEWILL (Southeastern Wisconsin & Illinois Lyme Leagues)
Contact: PJ Langhoff
Email:

Kansas


Lyme Association of Greater Kansas City, Inc.
PO Box 25853
Overland Park, Kansas 66225
Tel: (913) 438-5963 (GET-LYME)
E-Mail:
Serves Kansas and Missouri

Features: Information packets for patients and physicians; education packets for school nurses; monthly newsletter, "Prime Time Lyme"; publishing a brochure, "Lyme Disease is on the Rise", and other informational literature; monthly meetings for patients; email and phone support; distribution of information at health fairs and conferences; presentations to community groups.

Support Group: 4th Thursday of month (except no meetings in Nov. or Dec.) 6:30pm meets at Community Center at St. Joseph Hospital, I-435 and State Line Road, Kansas City, MO 64114


Kansas Lyme Fighters, Inc. (Affiliate of the Lyme Disease United Coalition) Lawrence, Kansas
Contact: Peninah Blumhagen
Email:

Kentucky


N-KY Chapter - Tri state Lyme - Vine S.G. Independence, KY
Contact: Candace Young
Tel: (606)283-1038

KY Lyme Disease Awareness Lexington, Kentucky 40505
Email:

Louisiana


Louisiana Borreliosis Association Sieper, LA
Contact: Gladys Miller
Email:

Maryland


Maryland Lyme
Contact: Lucy Barnes
Email:

"Dedicated to educating the public concerning the prevention, diagnosis and treatment of Lyme and tick-borne diseases."

Website features: Support groups, information in Spanish, information in French, doctor referrals, handouts, lab tests, conferences, legal cases, pregnancy, misdiagnoses, political action, grants, news and treatment.

Mid-Shore LDA, Inc.
Triple Ave.
St,. Michaels, Maryland 21601
E-Mail:
Serves Maryland Eastern Shore

Features: Support group meetings and sponsors special programs and events.
Specific Programs: The public is welcome at our meetings and can join our mailing list (email only). Educational literature is available upon request for patients, physicians, schools, organizations and businesses.

Howard County Chronic Lyme and Associated Disease Association
Ellicott City, MD
Contact: Mark Asher
Tel: (410) 302-9023
Email:

Lyme Disease Association of the Eastern Shore of Maryland
Delmar, MD
Contact: Jackie King
Email:

The National Capital Lyme Disease Association
Silver Spring, MD
Contact: Monte L. Skall
Tel: (703) 821-8833
Email:

Massachusetts


LDA Cape Cod Chapter
West Barnstable, Massachusetts 2668
Relationship to LDA Chapter
E-Mail:

Serves all of Cape Cod and beyond. Provides Education and Patient Support. Support Group: Brewster Support Group meets 3rd Sunday every month (3 to 4:30pm) at Satucket Road - Cape Cod Covenant Church

E-mail Nancy with questions:


Lyme Alliance of the Berkshires (L.A.B.)
Adams, MA
Contact: Kenneth Mercure
Email:

Serves Northern Berkshire County, Western MA, Southern Vermont and Upstate NY.

Michigan


Lyme Disease Association of Ann Arbor Ann Arbor, Michigan
Contact: Meredith Spencer Foster or Neal Foster
Tel: (313) 663-0756
Email:

Michigan Lyme Disease Association
Contact: Linda
Tel: (888) 784-LYME
Email:
 

Minnesota


Minnesota Lyme Association (MN)
PO Box 533
Hugo, Minnesota 55038
Email:

Provides support and conduct educational and information activities to increase the public's awareness of Lyme disease and other tick-borne illnesses, supports continuing education courses for nurses and physicians, sponsors community programs on tick-borne diseases, holds forums for elected officials and participates in community events.

Missouri


Lyme Association of Greater Kansas City, Inc.
PO Box 25853
Overland Park, Kansas 66225
Tel: (913) 438-5963 (GET-LYME)
E-Mail:

Serves Kansas and Missouri

Mid Missouri Tick Illness Coalition
Contact: Laurice Stevens
Tel: (573) 690-0589
Email:

St. Louis Lyme Foundation
Contact: John Lewis
Tel: (314) 727-1928
Email:

Nevada


Las Vegas Lyme Disease Association
S General Garfield Dr
Las Vegas, Nevada 89122
Email: OR

Support group meets second Tuesday of every month at Rainbow library, 10am, conference room.

New Hampshire


Bedford Lyme Disease Council
Bedford, NH
Contact: David Hunter
Tel: (603) 660-3425
Email:

The group meets on the second Thursday of every month from 6:30pm to 9pm in the Richmond Room at the Bedford Public Library.

Lyme411
Contact: Nancy Bourassa
Tel: Voice Mails for Nancy @ (888) 596-5698
Nancy will generally get back to you within 24 to 48 hours.
Email:

New York


Finger Lakes Lyme
Ithaca, Tompkins and neighboring counties
Contact: Joanna Button
Email:

Greene County Lyme Help
Earlton, NY
Contact: Mark MacNiven
Email:

Long Island Lyme Association - LILA
Long Island: Nassau County - Suffolk County
Contact: Scott
Email:

Lyme Borrelia Out-Reach Foundation Inc.
Mattituck, NY 11952
Contact: Stephen J. Nostrom R.N.C.
Tel: (516) 298-9606
Email:

Lyme Disease Coalition of New York and Connecticut
Contact: Barbara Goldklang
Tel: (914) 769-6243
Email:

This is not a support group. They work to promote research on Lyme.

Lyme in Orange
Goshen, NY
Contact: Mike Kleinman
Tel: (914) 588-0370
Email:

Lyme Matters
Contact: Pat Sprague
Tel: (845) 339-8786
Email:

Hudson Valley Lyme Disease Association
143 Bart Drive
Poughkeepsie, New York 12603
Tel: (845) 454-9414

Areas Served Hudson Valley, NY (including Dutchess and Ulster Counties, collaborative presence in other counties.)

Provides patient support, community education, advocacy. Collaboration with "Stop Ticks on People" (www.stopticks.org), Participation in Assemblyman Joel Miller's annual Health Fair, Programs for "May Is Lyme Awareness Month," significant presence, with literature tables, at various community events, including multiple showings of "Under Our Skin", at least one special speaker program per year, representation on Dutchess County Legislative Task Force and Rockland County Vector Borne Disease Advisory Committee.


LDA Corning/Finger Lakes Area Chapter
2828 Upper Drive
Corning, New York 14830
Tel: 607-937-1881
Email:

Areas Served Corning and the Finger Lakes Region of New York State

Provides Education and Patient Support, Educational In-Services, Presentations, Forums, and Informational Sessions


Stop Ticks on People
Website features a list of support groups in New York state.

Oregon


Oregon Lyme
Email:

Oregon Lyme Disease Network Portland Area
Portland, Oregon and Vancouver, Washington
Contact: Trish Sander
Tel: 503-590-2528
Email:

Oregon Lyme Network
Bend, OR
Contact: Theresa Denham
Tel: (541) 312-3081
Office hours are 8:00-5:00 but messages may be left at any time. Calls are sometimes returned in the evenings.
Email:

Pennsylvania


LDA of Southeastern Pennsylvania, Inc.
P.O. Box 181
Pocopson, PA 19366-0181
Tel: (610) 388-7333

LymeAction PA
Email:

South Carolina


Greenville Lyme Advocacy Group
Greenville, SC
Email:

Texas


Stand Up For Lyme (TX)

Texas Lyme Disease Association, Inc.
5100 Westheimer, Ste 200
Houston, TX 77056


Vermont


Vermont Lyme Network
Contact: Dayle Ann and Susan, co-founders
Email:

Virginia


National Capital Lyme Disease Association - Central Virginia Chapter
Lynchburg, VA
Contact: Joe LeBlanc
Tel: (434) 277-8346
Email: OR

Richmond Chapter of the National Capital Lyme and Tick-borne Disease Association
Richmond, VA
Contact: Dawn
Email:

Wisconsin


Lyme Coalition of Northern Wisconsin
Arbor Vitae, WI
Contact: Pat Jackson
Email:

Southeastern Wisconsin & Illinois Lyme Leagues (SEWILL)
Hustisford, WI
Contact: P.J. Langhoff
Email:

Wyoming


Wyoming LymeNet
Email:

INTERNATIONAL


International Lyme and Associated Diseases Society
P.O. Box 341461
Bethesda, MD 20827
Tel: (301) 263-1080
Fax: (301) 263-0776
Email:

The International Lyme and Associated Diseases Society (ILADS) is a nonprofit, international, multidisciplinary medical society dedicated to the appropriate diagnosis and treatment of Lyme and associated diseases. ILADS promotes understanding of Lyme and associated diseases through research, education and policy. We strongly support physicians, scientists, researchers and other healthcare professionals dedicated to advancing the standard of care for Lyme and associated diseases.

Lyme Disease United Coalition
P.O. Box 86
Story City IA 50248
Tel: (800) 311-7518
Email:

The Lyme Disease United Coalition is a 501 (c)(3) Non Profit corporation-tax exempt. The mission of the Lyme Disease United Coalition (LDUC) is to advocate for patients who have tick-borne illness resulting in Lyme Disease (LD), Babesia, Bartonella, Rocky Mountain Spotted Fever, Anaplasmosis, Tularemia, Powassan Encephalitis, Q Fever, or Ehrlichia. The care of the Lyme disease patient is our number one priority, throughout the United States, Canada, and the remainder of the world. The LDUC's purpose, secondarily, is to educate the public and physicians regarding the emergence of tick-borne illness throughout the world.

Australia


Karl McManus Foundation
Mualla McManus
PO Box 3129
North Turramurra
NSW 2074
ABN 99 795 296 658

Lyme Disease Association of Australia

The Lyme Disease Association of Australia (LDAA) is an association comprised of volunteers committed to making changes to how Lyme disease patients are treated - both medically and personally. This is achieved through undertaking activities in four key areas of information, support, education and awareness.

Canada


Canadian Lyme Disease Foundation
Regional contact information: CanLyme.com/about/contact

CanLyme is a registered non-profit charitable organization run by volunteers from coast to coast. The Canadian Lyme Disease Foundation is dedicated to promoting research, education, diagnosis and treatment of Lyme and associated diseases.

Lyme Action Group
P.O. Box 1095
Mount Albert, Ontario, L0G 1M0

This non-profit group, which operates on a completely volunteer basis, was convened by concerned persons who want to see much needed change in Canada's medical system. Lyme patients need access to reliable tests in Canada. Our medical practitioners need access to up-to-date information on Lyme disease. Canada's doctors should be free to treat Lyme and Chronic Lyme disease without fear of persecution or prosecution.

United Kingdom


LymeAid UK

"The primary objective of LymeAid UK is to provide grants to people on low income who suspect they have Lyme Borreliosis for private overseas testing for the disease."

Lyme Disease Action
P.O. Box 235
Penryn
Cornwall
TR10 8WZ

Lyme Disease Research UK & Ireland

"Lyme Research UK consists of a group of researchers whose main aim is to explore and engage with research, that is related to policy and practice on Tick-Borne Infections (TBI's) in the UK and Eire."

Europe


Lyme in Austria

Lyme in Finland

Lyme in France 1

Lyme in France 2

Lyme in Germany 1

Lyme in Germany 2

Lyme in Germany 3

Lyme in Holland 1

Lyme in Holland 2

Lyme in Hungary

Lyme in Norway

Lyme in Poland

Lyme in Slovakia 1

Lyme in Slovenia 2

Lyme in Spain

Lyme in Sweden 1

Lyme in Sweden 2

Lyme in Switzerland 1

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