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Suppport Groups for Lyme Disease


Alabama

Alabama Tick Disease Awareness Coalition
Birmingham, Alabama
Contact: Stephanie Ingram
Email: Spingram@bellsouth.net
Tel: (205) 980-8030

Lyme Disease Support Group of Alabama
Prattville, Alabama
Contact: Jim Schmidt
Email: jschm47974@aol.com

Alaska

Alaska Lyme Support
Phone 516-286-7196r> E-Mail jcn4jc@aol.com

Arizona

AZLDA - Arizona Lyme Disease Association
Contacts: Northern Arizona – Tina Caskey: tcaskey@safeaccess.com 928-779-2759
Southern Arizona - Donna Hoch: nanandbo@cox.net 520-393-1452
Phoenix: larry@valuepro.netbox.com
Website: http://www.azlyme.org/

Arkansas

Fairfield Bay Support Group (Fairfield Bay)
Fairfield Bay, Arkansas
Contact: Mary Alice Beer
Tel: (501) 884-3502
Email: abeer@artelco.com

California

East Bay LEAPS
Oakland, CA
website
Meets the third Thursday of every month, unless otherwise noted.

California Online Lyme Support
Ukiah, CA
Contact: Phyllis Mervine
Email: pmerv@hughes.net
Website: websiteo

East Contra Costa County Lyme Disease Support Group
Location: Eskaton Lodge, 450 John Muir Parkway,Brentwood 94513
Phone: 925-516-8006 (Eskaton)
Contact: Karen
Email: btrflynana@yahoo.com
Group meets second Saturday of the month from 12:30pm-2:00pm.

Humboldt Lyme Awareness Group
Arcata
Contact: Sylviane Schwarz
Email: smschwarz@suddenlink.net

Lyme Support Sacramento
Sacramento
Contact: Dorothy
Email: jblral@yahoo.com

Mid-Peninsula LDSG
Mountain View
Contact: Scott
Email: ldsg_scott@hotmail.com
Meetings are the 2nd Tuesday of every month from 6:30-8:30pm at El Camino Hospital (2500 Grant Road, Mountain View) in Conference Room C.
Napa Lyme Support Group
Napa, Sonoma, Lake, and Solano Counties
Contact: Bob Gligorea
Email: lymebob@rocketmail.com
Website
This is an online support group.

San Diego Lyme Support Group
San Diego
Contact: Maritza Padgett, Coordinator
Email: maritza@plant-people.com

San Diego Hope & Recovery Group (Lyme Disease, Fibromyalgia, Chronic Fatigue & Related Disorders)
San Diego
Contact: Janis, R.N
Email: hope4recovery@cox.net

The San Francisco Lyme Support Group
San Francisco
Contact: Diana
Email: SF_Lyme@yahoo.com
Phone: (415) 786-9010

San Francisco/SF_SEAL (Support, Education and Advocacy for Lyme)
San Francisco
Contact: Robin
Email: SF_SEAL@sbcglobal.net
Phone: (415)202-0174

Santa Cruz Lyme Support Group
Santa Cruz/Aptos
Contact: Sarah Olson
Email: CaliforniaLyme@cruzio.com
Phone: 831-662-2895

Sonoma County Lyme Aid: Education, Support and Advocacy
Santa Rosa
Contact: Kathleen McCormick
Email: kathleenmc1953@sbcglobal.net

Southern California Lyme Support Group
Whittier
Contact:Earis Corman, Coordinator
Email: eariscorman@aol.com
Phone: (562) 947-6123

Colorado

Mile High Tick
Boulder, Colorado
Contact: Mary Parker
Email: milehightick@yahoo.com
Tel: 303-652-0399

Connecticut

Newtown Lyme Disease Task Force
Newtown, Connecticut 06470
Email: Lancaster60@aol.com
Ridgefield Lyme Disease Task Force
66 Prospect Streetr> Ridgefield, Connecticut 06877
Phone 203-438-0578
E-Mail RLDTF@comcast.net
Ridgefield Lyme, Chronic Fatigue and Fibromyalgia Support group meets 2nd Thursday every month at 12 noon at the Ridgefield Visiting Nurse Association, 90 East Ridge, Ridgefield, CT 06877

Eastern CT Lyme Disease support group
Putnam, Norwich, CT
Contact: Linda Rosati (Putman), Kimberlee Pappa (Norwich)
Tel: 860-303-9020 (Kim)
Email: easternctlda@yahoo.com

The Greater Danbury Lyme Disease Support Group
Bethel, CT
Contact: Pat Bartlett
Tel: 203-791-0477
Email: PIBINQUIRE@AOL.COM

The Greater Hartford Lyme Disease Support and Action Group
Unionville, CT
Contacts: Chris Montes and Randy Sykes
Email: Chris: jettyhound@juno.com, Randy: Modelt1918@aol.com
Website

Lyme Disease and Chronic Illness Support Group
Meriden, CT
Contact: Crystal
Email: raincarter0801@yahoo.com

Old Lyme Lyme Disease Support Group
Lyme, CT
Contact: Kelly Smith, Cynthia Chase
Email: Kelly: ahsmith@snet.net, Cynthia: cynthia_chase@sbcglobal.net

Time for Lyme's Lyme Disease Support Group
Contact: Dr. Mindy Beth Lipson or Stephanie Paulmeno
Tel: 646-361-5251 or 203-622-7849
Email: doclipson@yahoo.com
Website
Sponsored by Greenwich Dept. of Health, Greenwich Hospital and Time for Lyme.

Tribury Lyme Disease Support Group
Southbury, CT
Tel: (203) 266-6512
Email: support@triburylyme.org
Website: www.TriburyLyme.org

Western CT Lyme Disease Support Group (a.k.a., TRISHA)
Shelton, CT
Contact: Nancy Berntsen
Tel: 203-924-9395
Email: nancy@lymesupport.com
Website: http://lymesupport.net

Wilton Lyme Disease Support Group
Wilton, CT
Contact: Douglas Bunnell, Ph.D.
Tel: (203) 834-1635
Email: bdcz@aol.com

Lyme Talks
Greenwich, CT
Tel: (203)-969-1333
Website

Delaware

Delaware Lyme Support
Wilmington, Smyrna
Contact: Sue Driver
Tel: (302)996-9065
Email: Delawarelymesupport@comcast.net

Southern Delaware Lyme Disease Support Group
Milliville, Delaware
Contact: Debbie
Email: blazinglyme@gmail.com

District of Colombia

National Capital Lyme Disease Association
District of Colombia
Contact: Monte L Skall
Email: NatCapLyme@natcaplyme.org
Tel: 703-821-8833
Website: http://www.natcaplyme.org/

Florida

Florida Lyme Advocacy, Inc .
Fernandina Beach, Florida 32034
E-Mail lorbell1@aol.com ; info@floridalymedisease.com

Central Florida Lyme Support
Oviedo, Florida
Contact: Ron Van Hoose
Tel: 407-657-2233
Email: mvanhoose55@yahoo.com

Gulf Coast Lyme Disease Support Group
Sarasota, Florida
Contact: Jessica Adkins, Carol Fisch
Tel: 941-923-5277
Email: lifelymegulfcoast@yahoo.com
Email Carol: GulfCoastLifLyme@aol.com

The Lanford Foundation - Lifelyme, Inc.
Tallahassee, Florida
Contact: Dolores Claesson
Email: Lifelyme@yahoo.com
Website: http://www.lifelyme.org/

Lyme Support Group Florida
Tampa, Florida
Email: wieloszynski@yahoo.com
Website

Suncoast Lyme/CFS/FMS Support Network
Tampa, Florida
Contact: Marilyn Kerr RN
Tel: (813) 817-9191
Email: marilynk158@gmail.com

Georgia

Georgia Lyme Disease Association
Atlanta, GAr> Email: info@GeorgiaLymeDisease.org
Website

Hawaii

Hawaii Lyme Support Group
Kapolei, Hawaii
Contact: Julie Lucas
Email: Hawaiihaslyme@aol.com

Idaho

Idaho-Lyme Online
Contact: Scotty Button
Email: mvmscotty@tetontel.com
Website

Idaho Lyme Support Group
Boise, Idaho
Contact: Cathy Woodburn
Email: ICEiam@aol.com

Illinois
Tri-State Lyme Disease Support Group for Western Kentucky, Southern Indiana, Southern Illinois, and Other Nearby Areas
Owensboro, KY
Contact: Jennifer Matthews
Tel: (270) 240-4696
Email: jjeennnniiee@hotmail.com

Chicagoland Lyme Support Group
Chicago, Illinois
Contact: Lisa Winkates
Email: chicagolandlyme@aol.com

Chicagolyme Support Group
Elgin, Illinois
Contact: Becky Olsen
Email: paxvobiscum81@yahoo.com
Website: http://www.chicagolyme.com/

East Central Illinois Lyme Disease Support (ECILD)
Champaign, Illinois
Contact: Susanna Rose Warner
Email: info@lymeillinois.org
Tel: (217)-398-0028

Mississippi Valley Lyme Disease Network
Roseville, Illinois
Contact: Lou Ellen Gooding
Tel: 309-426-2339
Email: louellen@maplecity.com

Northern Illinois Lyme Resources
Contact: Jeanette Wheat
Email: nilr@aol.com
Tel: 608-798-4421
Alternate Contact: Virginia at ggrom48@aol.com and, Eve at otEVE01@aol.com

Quad-Cities Lyme Disease Network
Reynolds, Illinois
Contact: Marilyn McBride
Tel: (309)372-4472
Email: marilynmcb@mcics.com

Indiana

Lyme Disease Support Group of Indiana and Pennsylvania
Fort Wayne, IN
Contact: Crissy Cardone or Lori Leary
Tel: 260-459-2421
Email: LymeFriends@IndianaLyme.com

Tri-State Lyme Disease Support Group for Western Kentucky, Southern Indiana, Southern Illinois, and Other Nearby Areas
Owensboro, KY
Contact: Jennifer Matthews
Tel: (270) 240-4696
Email: jjeennnniiee@hotmail.com


Iowa

Iowa Illinois Lyme Network (ILLOWA Lyme Network)
Davenport, Iowa
Contact: Marilyn McBride
Tel: (309)372-4472
Email: ticktalk@mchsi.com

Iowa Lyme Disease Association
Brighton, Iowa
Contact: Kathy Cuddeback - President , Kent Larsen - Public Relations Officer
Tel: Kathy :319-698-7696 , Kent: 319-287-5421
Email: iowalymedisease@yahoo.com
Website: http://www.iowalymedisease.com/

SEWILL (Southeastern Wisconsin & Illinois Lyme Leagues)
Contact: PJ Langhoff
Email: info@sewill.org

Kansas

Lyme Association of Greater Kansas City, Inc .
PO Box 25853
Overland Park, Kansas 66225
Website: http://www.lymefight.info/
Phone 913-438-5963 (GET-LYME)
E-Mail Lymefight@aol.com
Serves Kansas and Missouri
Features: Information packets for patients and physicians; education packets for school nurses; monthly newsletter, "Prime Time Lyme"; publishing a brochure, "Lyme Disease is on the Rise", and other informational literature; monthly meetings for patients; email and phone support; distribution of information at health fairs and conferences; presentations to community groups.
Support Group: 4th Thursday of month (except no meetings in Nov. or Dec.) 6:30pm meets at Community Center at St. Joseph Hospital, I-435 and State Line Road, Kansas City, MO 64114

Kansas Lyme Fighters, Inc. (Affiliate of the Lyme Disease United Coalition )
Lawrence, Kansas
Contact: Peninah Blumhagen
Email: kansaslymefighters@yahoo.com

Kentucky

Kentucky Lyme Disease Association
Contact: Vicki
Email: Vicki: vpetsy@hotmail.com

Kentuckiana Lyme Support Group
Louisville, KY
Contact: Pam Hemsley, Tondia Burrows
Email: Pam: map1131@aol.com, Tondia: burrowsjeff@yahoo.com

N-KY Chapter - Tri state Lyme - Vine S.G.
Independence, KY
Contact: Candace Young
Tel: 606-283-1038

Tri-State Lyme Disease Support Group for Western Kentucky, Southern Indiana, Southern Illinois, and Other Nearby Areas
Owensboro, KY
Contact: Jennifer Matthews
Tel: (270) 240-4696
Email: jjeennnniiee@hotmail.com

KY Lyme Disease Awareness
Lexington, Kentucky 40505
Email: KentuckyLyme@yahoo.com

Kentucky Lyme Disease Association

Louisiana

Borrelia Burgdorferi, Lyme Disease Support Group of Cenla
Alexandria, LA
Contact: Shirley Richardson
Tel: work: 318-484-6861r> home: 318-466-3049

Louisiana Borreliosis Association
Sieper, LAr> Contact: Gladys Miller
Email: glglmiller@aol.com

Maine

Eastern Maine Lyme Disease Support Group
Bangor, ME
Contact: Happy Dickey RN
Tel: 207-862-2444
Email: cdickeyrn@midmaine.com

Inland Hospital Lyme Disease Support Group
Waterville, ME
Contact: Happy Dickey RN
Tel: 207-862-2444
Email: cdickeyrn@midmaine.com

Portland Lyme Disease Support Group
Portland, ME
Contact: Vicky
Email: portnorth101@gmail.com

Southern Maine Lyme Disease Support Group
Lyman, ME
Contacts: Brian and Elaina Lagassie
Email: lagassie@roadrunner.com

Maryland

Maryland Lyme
“Dedicated to educating the public concerning the prevention, diagnosis and treatment of Lyme and tick-borne diseases.”
Contact: Lucy Barnes
Email: AfterTheBite@gmail.com
Website features: Support groups, information in Spanish, information in French, doctor referrals, handouts, lab tests, conferences, legal cases, pregnancy, misdiagnoses, political action, grants, news and treatment.

Harford County Lyme Disease Support Group, Inc. (MD)
Harford, Maryland
Website
Phone 410-838-LYME (5963)
E-Mail JGLyme@aol.com
Serves Harford County, State of Maryland and surrounding states.
Features: The HCLDSG has been providing programs on tick borne diseases, educational literature, a film and book library loan program, a Lyme Disease Support Hotline (phone), email announcements and support, media articles, patient support and educational outreach programs for the community, phone and email support for patients and health care professionals. The public is welcome to join our mailing list (email only) announcing updates in Lyme disease medical news, political actions and state and national events. We provide a phone Hotline for patient support. Tick borne disease information packets are available upon request for patients, physicians, schools, organizations and businesses. Educational outreach programs and booths can be scheduled for community events upon request. Annual Lyme Disease Awareness Month and other programs are also presented throughout the year.

Mid-Shore LDA, Inc .
Triple Ave
St,. Michaels, Maryland 21601
Website: http://www.mslda.org/
E-Mail lcreilly1@gmail.com
Serves Maryland Eastern Shore
Features: Support group meetings and sponsors special programs and events.
Specific Programs The public is welcome at our meetings and can join our mailing list (email only). Educational literature is available upon request for patients, physicians, schools, organizations and businesses.

Cecil County Lyme and Associated Diseases Support Group
Elkton, MD
Contact: Judy Hart
Email: jhart03@gmail.com

Central Maryland Lyme Disease Support Group
Westminster, MD
Contacts: Robin Ann Wolfenden, Co-Coordinator
Richard Poole, Co-Coordinator
Jay T. Wolfenden, Co-Coordinator
Tel: Robin: (410) 876-8079
Richard: (410) 751-1360
Jay : (410) 876-8079
Email: LymeCMD@aol.com

Frederick County Lyme Disease Support Group
Frederick, MD
Contact: Frank Boddicker
Tel: 301-834-6080
Email: epicideas@hotmail.com

Howard County Chronic Lyme and Associated Disease Association
Ellicott City, MD
Contact: Mark Asher
Tel: 410-302-9023
Email: asherms1@mac.com

Lyme Disease Association of the Eastern Shore of Maryland
Delmar, MD
Contact: Jackie King
Email: LymeDAESM@aol.com

Lyme Disease Christian Support Group
Mount Airy, MD
Contact: Jenny Peffley, Raul and Carie Ortiz
Email: JenPeffley@go.com, all2jcrco2@juno.com

The National Capital Lyme Disease Association
Silver Spring, MD
Contact: Monte L. Skall
Tel: 703-821-8833
Email: NatCapLyme@natcaplyme.org
Website: http://www.natcaplyme.org/

Washington County Lyme Disease Support Group
Hagerstown, MD
Contact: Frank Boddicker
Tel: 301-834-6080
Email: epicideas@hotmail.com


Massachusetts

LDA Cape Cod Chapter
West Barnstable, Massachusetts 2668
Relationship to LDA Chapter
E-Mail nbwood@comcast.net
Serves all of Cape Cod and beyond
Provides Education and Patient Support
Support Group: Brewster Support Group meets 3rd Sunday every month (3 to 4:30pm) at Satucket Road - Cape Cod Covenant Church
E-mail Nancy with questions nbw@intus.org

The Metro West Lyme Support Group
Concord, MA
Serves: Eastern Massachusetts
Contact: Rose Ruze
Tel: (978) 369-2396
Email: roseruze@verizon.net

Lower Cape Lyme Disease Support Group
Brewster, MA
Serves: Cape Cod area or Southeastern Massachusetts
Contact: Chris DeSimone
Tel: 508-896-2457
Email: cdesimone@nausetschools.org
Meets the first Wednesday of the month, at Harwich Community Center, Harwich, MA

Lyme & Tick-Borne Disease Information & Support Greater Boston Area
Danvers, MA
Contact: Lauren H., Liz M., Susan FP
Tel: (978)750-6726
Email: j.hefferan@comcast.net , elizabethjude@verizon.net, nslyme@gmail.com
Meets at Putnam Farm every 2nd Wednesday of every month, except December, from 6pm to 7:45pm.

Lyme Alliance of the Berkshires (L.A.B.)
Adams, MA
Contact: Kenneth Mercure
Email: thelymelife@yahoo.com
Serves Northern Berkshire County, Western MA, Southern Vermont and Upstate NY.
Website: http://berkshirelyme.blogspot.com/

South Shore Lyme Support
Whitman, MA
Contact: Melissa Kerins
Email: Southshorelyme@hotmail.com
Serves Plymouth County
Meets the 3rd Wednesday of the month at Whitman Public Library.

Sturbridge Lyme Awareness of Massachusetts (S.L.A.M)
Sturbridge, MA
Contact: Trish
Email: S.L.A.M@msn.com
Meetings take place at Joshua Hyde library on Main Street in Sturbridge

Ticked Off
200 Groton Rd
Ayer, Massachusetts 01432
Serves Essex, Middlesex and Worcester counties
E-Mail dcastlemom@yahoo.com, tickedoff@usa.com
Support Group: 1st Tuesday every month at 7pm

  Michigan

Lyme Disease Support Group
Adrian, Michigan
Contact: Christina Emery
Tel: (517) 265-5712
Email: emeryfam@verizon.net

Lyme Disease Association of Ann Arbor
Ann Arbor, Michigan
Contact: Meredith Spencer Foster/Neal Foster
Tel: 313-663-0756
Email: nealfost@umich.edu

Michigan Lyme Disease Association
Contact: Linda
Tel: 1-888-784-LYME
Email: LPurdy1040@aol.com

Minnesota

Minnesota Lyme Association (MN)
PO Box 533
Hugo, Minnesota 55038
E-Mail Lyme@MNLyme.com
Provides support and conduct educational and information activities to increase the public's awareness of Lyme disease and other tick-borne illnesses, supports continuing education courses for nurses and physicians, sponsors community programs on tick-borne diseases, holds forums for elected officials and participates in community events. Support Group meets second Tuesday every month from 6:30 pm to 9 pm (new member support tables are open at 6 pm) at First Lutheran Church 4000 Linden Street White Bear Lake, MN 55110
Website: http://www.mnlyme.org/

Duluth-Superior LDSG
Duluth, Minnesota
Contact: Tom Grier
Tel: 218-728-3914
Email: tomgrier2001@yahoo.com

Thief River Falls Lyme Disease Support Group
Thief River Falls, Minnesota
Contact: Andy or Kathy Mehrkens
Tel: 218-964-5624

Mississippi

Lyme Disease Support Group of Mississippi
Jackson, Mississippi
Contact: Linda K Beasley
Tel: (601) 885-2064
Email: lkbeasley@bellsouth.net

Missouri

Green Hills LDSG
Chillicothe, Missouri
Contact: Suzanne Colter, Pres.
Tel: 660-646-1936
Email: scolter@cmuonline.net

Lyme Association of Greater Kansas City, Inc .
PO Box 25853r> Overland Park, Kansas 66225
Website: http://www.lymefight.info/
Phone 913-438-5963 (GET-LYME )
E-Mail Lymefight@aol.com
Serves Kansas and Missouri

Mid Missouri Tick Illness Coalition
Contact: Laurice Stevens
Tel: 573/690-0589
Email: Laurice_Stevens@hotmail.com
 
Missouri Lyme/Masters Disease Support Group
Springfield, Missouri
Contact: Carol Ellingsen
Tel: 417-535-4102
Email: skywagon180@centurytel.net

St. Louis Lyme Foundation
Contact: John Lewis
Tel: 314-727-1928
Email: stllyme@yahoo.com

Montana

Montana Lyme Support
Missoula, Montana
Contact: Benjamin Mahoney
Tel: 970-443-5007
Email: Mahoneysemail@yahoo.com

Montana Lyme Support
Great Falls, Montanar> Tel: 516-286-7196
Email jcn4jc@aol.com

Nevada

Las Vegas Lyme Disease Association
S General Garfield Dr
Las Vegas, Nevada 89122
Email: lvda@gmail.com, rr1937@gmail.com
Support group meets second Tuesday of every month at Rainbow library, 10am, conference room

New Hampshire

Bedford Lyme Disease Council
Bedford, NH
Contact: David Hunter
Tel: (603)660-3425
Email: dhunter31@gmail.com
The group meets on the second Thursday of every month from 6:30pm to 9pm in the Richmond Room at the Bedford Public Library.

Greater Manchester Lyme Disease Support Group
Contact: David Hunter
Tel: (603)660-3425
Email: dhunter31@gmail.com
The group meets on the third Wednesday of every month at 6:30pm at the Bedford Presbyterian Church, 4 Church Road, Bedford, NH.
New Hampshire Lyme Group for Teens and Young Adults
Contact: David Hunter
Tel: (603)660-3425
Email: dhunter31@gmail.com
Group meets on the fourth Wednesday of every month from 6:30pm to 8pm at the Bedford Presbyterian Church, 4 Church Road, Bedford, NH.

Lyme411
Contact: Nancy Bourassa
Tel: Voice Mails for Nancy @ 1-888-596-5698r> Nancy will generally get back to you within 24 to 48 hours.
Email: info@LYME411.org
Website

Northern New Hampshire Lyme and Associated Diseases Support Group
Berlin, NH
Contact: Laurie Patrick
Email: northernnhlyme@yahoo.com

Brookfield , Wolfeboro NH Lyme Support
Email: dugasp@verizon.net

New Jersey

Long Valley LDSG
Schooley's Mountain, NJ
Contact: Bill Kubik
Tel: 908-930-6252
Email: billk1228@gmail.com
Meetings are held the second Tuesday of every month 7 - 9 pm at the Zion Lutheran Church, 11 Schooleys Mountain Road, Long Valley, NJ

Lyme Disease Association, Inc.
Jackson, NJ
Contact: Pat Smith, President
Email: Lymeliter@AOL.com
Website

Hewitt/West Milford - Lyme Tick Borne Disease Support Group
Hewitt/ West Milford, NJ
Contact: Cynde Levans/Marie Moore
Tel: 973-853-5600/973-208-0825
Email: levans@warwick.net

Lyme Vaccine Victims
Contact: Jenny Marra RN
Tel: 732-988-6057
Email: HomeRN@aol.com
Website: https://sites.google.com/site/lymevaccine/

LymeQuest Support Group and Advocacy Project
New Brunswick, NJ
Email: NewBrunswickLyme@comcast.net

Morristown Lyme Disease Support Group
Morristown, NJ
Contact: Anita Glick
Tel: 973-267-8858
Email: anitasg@optonline.net
We typically meet on the third Tuesday of every month at the Morristown Presbyterian Church Parish Building at 65 South St. Morristown, NJ. We recommend calling to confirm.

Southern Ocean Co. Lyme Support Group
Ship Bottom, NJ
Email: lymesupport7@aol.com
Website: http://soclymesupport.webs.com/

Sussex County Lyme Support
Vernon, NJ
Contact: Timothy J. Rowett
Tel: 973-362-1464
Email: rowett@warwick.net

NJ Tick Talk
Galloway, New Jersey 08205
Email NJTalk@yahoo.com


New York

CNY Lyme Support
Chittenango, NY
Contact: Kim
Email: cnylyme@gmail.com
Meetings: 1st Sunday of every month 2pm-3:30pm at the Sullivan Free Library, Chittenango NY

Finger Lakes Lyme
Ithaca, Tompkins and neighboring counties
Contact: Joanna Button
Email: upstatelyme@gmail.com

Greene County Lyme Help
Earlton, NY
Contact: Mark MacNiven
Email: freaky_minis@yahoo.com

The Ithaca Lyme Disease Meetup Group
Contact: Linda
Email: Lpayne4@twcny.rr.com

Long Island Lyme Association – LILA
Long Island: Nassau County - Suffolk County
Contact: Scott
Email: L_I_L_A-owner@yahoogroups.com

Lyme Borrelia Out-Reach Foundation Inc.
Mattituck, NY 11952
Contact: Stephen J. Nostrom R.N.C.
Email: Borrelias@aol.com
Tel: 516-298-9606

Lyme Disease Coalition of New York and Connecticut
Contact: Barbara Goldklang
Tel: (914) 769-6243
Email: Dambg@aol.com
This is not a support group. They work to promote research on Lyme.

Lyme Disease On Line
Contact: Pat Sprague
Tel: (631) 567-0912
Email: PSpatches@aol.com
This is a daytime chat on AOL only. It is scheduled for Wednesdays at 3:00PM EST in a Private Room on AOL titled Lyme Disease.

Lyme in Orange
Goshen, NY
Contact: Mike Kleinman
Tel: 914-588-0370
Email: mikekleinman@gmail.com

Lyme Matters
Contact: Pat Sprague
Tel: (845)339-8786
Email: PSpatches@aol.com
Website

Mid-Hudson Lyme Disease Support Group
Pleasant Valley, NY
Contact: Rachel Dildilian or Pat Smalley
Tel: Rachel: 945/229-8925, Pat: 845/889-4242
Email: Rachel: Benagum@aol.com, Pat: LYMEY2@aol.com

New York City Lyme Disease Support Group
Contact: Ellen Lubarsky
Tel: 212-799-2554
Email: ellenluba@yahoo.com
Website: http://www.nyclymesupport.org/

Northern Dutchess Lyme Disease Support Group
Rhinebeck, NY
Email: Mary@acadiahr.com

NYPenn Lyme Disease Support Group
Near Elmira, NY
Contact: Linda Wales
Tel: 570-537-6616
Email: jalmwales@npacc.net

Ulster County Lyme Support Group
Kingston, NY
Contact: March Gallagher
Tel: 845-246-2429
Email: catskillmamala@yahoo.com


Hudson Valley Lyme Disease Association
143 Bart Drive, Poughkeepsie, New York 12603
Phone 845-454-9414
Areas Served Hudson Valley, NY (including Dutchess and Ulster Counties, collaborative presence in other counties.)
Provides patient support, community education, advocacy. Collaboration with “Stop Ticks on People” (www.stopticks.org), Participation in Assemblyman Joel Miller’s annual Health Fair, Programs for “May Is Lyme Awareness Month”, significant presence, with literature tables, at various community events, including multiple showings of “Under Our Skin”, at least one special speaker program per year, representation on Dutchess County Legislative Task Force and Rockland County Vector Borne Disease Advisory Committee.
Support Group: Pleasant Valley Lyme Disease Support Group / meet 2nd Wednesday every month at First Presbyterian Church, Rt. 44, Pleasant Valley, NY / E-mail Lyme2@aol.com / Call Rachel 845-229-8925 or Pat 845-889-4242
Support Group Other Rhinebeck Support Group / Meet 2nd Thursday every month / call Mary 845-758-8187

LDA Corning/Finger Lakes Area Chapter
2828 Upper Drive, Corning, New York 14830
Phone 607-937-1881
E-Mail eheininger@stny.rr.com
Areas Served Corning and the Finger Lakes Region of New York State
Provides Education and Patient Support, Educational In-Services, Presentations, Forums, and Informational Sessions

Stop Ticks on People
Website
Website features a list of support groups in New York state.

North Dakota

Minot Lyme Disease Support Group
Minot, North Dakota
Contact: Lloyd Ann Caston
Tel: 701-852-8007

Tri-State Lyme-Vine Support Group
Cincinnati, OH
Contact: Linda Von Hoene
Tel: 513-561-5794
Email: mlvonhoene@aol.com

Oklahoma

LDSG: Lyme Disease Support Group of Oklahoma
Edmond, Oklahoma
Contact: Janet Segraves
Tel: 405-359-9401
Email: Janet@ldsg.org
Website: http://www.ldsg.org/

Oregon
Oregon Lyme
Oregon_Lyme-owner@yahoogroups.com
Website

Oregon Lyme Disease Network Portland Area
Portland, Oregon and Vancouver, Washington
Contact: Trish Sander
Tel: 503-590-2528
Email: tpoipu@yahoo.com
Website: http://oregonlyme.com/

Oregon Lyme Network
Bend, OR
Contact: Theresa Denham
Tel: 541-312-3081 office hours are 8:00-5:00 but messages may be left at any time. Calls are sometimes returned in the evenings.
Email: lyme@junipermeadow.com
Website: http://oregonlyme.com/


Pennsylvania

Central Pennsylvania Lyme Disease Support Group
Watsontown
Contact: Larry Reese, Doug Stetler
Email: Doug: d_stetler@hotmail.com
Phone: Larry: 570-538-5600, Doug: 570-286-6918

Clarion Area Lyme Support Group
Clarion
Contact: Jean Schwab
Email: jeaniecs@penn.com

Doylestown (Central Bucks County) Lyme Disease Support Group
Doylestown
Contact: Adam Sawoski
Email: adam.sawoski@gmail.com

Gettysburg Lyme Support Group
Gettysburg
Contact: Lovette Mott
Email: Fightlyme@yahoo.com
Phone: 717-334-6339

Harrisburg Area Lyme Disease Support Group
Mechanicsburg
Contact: Linda Olley
Email: leolley@verizon.net
Phone: LDASEPA: (610) 388-7333

Lehigh Lyme Connection
Allentown
Contact: Susan MacNamee
Email: LehighLyme@mindspring.com
Phone: 215-249-0202

Lehigh Valley Lyme Support Group
Bethlehem
Contact: Cathy Gumlock
Email: lehighvalleylyme@aol.com

Lower Bucks Lyme Disease Support Group
Langhorne
Contact: Evelyn Throne
Email: evelyn@lowerbuckslymegroup.org
Phone: 215 741 5902

The Lyme Disease Association of Southeastern Pennsylvania
Kennett Square, Chester County
Contact: Harvey L. Kliman, PhD - President
Email: LymePA@comcast.net
Phone: 610-388-7333

Lyme Disease Support Group of Indiana and Pennsylvania
Fort Wayne, IN
Contact: Crissy Cardone or Lori Leary
Email: LymeFriends@IndianaLyme.com
Phone: 260-459-2421

LYMECURE
Wayne
Contact: Joel Shmukler, esq.
Email: lymecure@aol.com
Phone: (610)647-2058
Meets the 4th Tuesday of the month in Treddyfrin Township Municipal Building

Montgomery County Lyme Information And Support Group ( MontCoLyme)
North Wales
Contact: Julia Wagner
Email: MontCoLyme@aol.com

NYPenn Lyme Disease Support Group
Millerton
Contact: Linda Wales
Email: jalmwales@npacc.net
Phone: 570-537-6616

York Lyme Disease Support Group
York
Contact: Bob & Wanda Stibitz, Ruth Loucks
Email: yorkpalyme@yahoo.com
Phone: Bob & Wanda: (717) 741-2473; Ruth: (717) 764-3212

South Carolina

Columbia Christian Lyme Support Group
Columbia
Contact: Lisa King
Email: lking1007@bellsouth.net

Greenville Lyme Advocacy and Support
Greenville
Contact: Kathleen Liporace
Email: greenvillelyme@bellsouth.net
Phone: (864) 704-2522

Lyme Disease Support of South Carolina
Columbia
Contact: Sue Fox
Email: lyme@sc-lyme.com
Phone: 803-798- LYME(5963)
Website: http://www.sc-lyme.com

Tennessee

Mid-South Lyme Disease Support Group
Memphis
Contact: Karen Angotti
Email: FKAngotti@aol.com

Texas

Austin Lyme Support Group
Austin
Contact: Teresa Jones
Email: Tmomintexas2@yahoo.com

DFW Lyme Disease Support Group
Fort Worth
Contact: John Quinn, Dawn Irons
Email: John - jquinn@dart.org ; Dawn - dawn@bradirons.com
Houston Lyme Disease Support Group
Houston
Contact: Teresa Lucher
Email: lucher@sbcglobal.net

North Texas Lyme Support Group
Arlington
Contact: Patti Plummer
Email: granola71@gmail.com
Website: http://www.ntxlyme.org/

Texas Lyme Disease Association, Inc.
Website: www.txlda.org

Txlme Yahoogroup
There is a private online support group for Texas patients: txlyme@yahoogroups.com. You must join to make and receive posts. Go to http://groups.yahoo.com/, enter Txlyme in the Search box, then click on Join this Group and follow directions. Members must live in Texas or a contiguous state and have a valid connection to Lyme disease to be admitted to the group.

Stand Up For Lyme (Advocacy)
Website: www.standupforLyme.org


Vermont

Vermont Lyme Network
Vermont and adjacent regions of neighboring states
Contact: Dayle Ann and Susan, co-founders
Email: vermontlyme@vermontlyme.org
Website: http://www.vermontlyme.org/
Online support

Lyme Disease Support Group Southwestern VT
Contact: asholzmn@together.net

Virginia

The Buena Vista FMS-CFS-MCS-Lyme Network
Buena Vista
Email: blackpercheron@gmail.com

The Eastern Loudoun County Lyme Support Group
Cascades, Sterling
Contact: Sterling Family Practice
Email: sfp@lmgdoctors.com
Phone: 703-421-7000

Hampton Roads Lyme Support
Virginia Beach
Contact: Joy Walker and Debbie Suddeth
Email: joy@natcaplyme.org

National Capital Lyme Disease Association - Central Virginia Chapter
Lynchburg
Contact: Joe LeBlanc
Email: joeleblancva@aol.com ; natcaplyme@natcaplyme.org
Phone: 434-277-8346
Website: http://www.natcaplyme.org

Richmond Chapter of the National Capital Lyme and Tick-borne Disease Association
Richmond
Contact: Dawn
Email: lymehelpva@gmail.com

Warrenton Lyme Support Group
Warrenton
Contact: Mrs. Joyce Nutz
Email: lymeinfauquier@gmail.com

Western Loudoun Lyme Support Group
Purcellville
Contact: Char Healy
Email: charphealy@yahoo.com
Meets at St. Peter's Episcopal Church in Purcellville at 11am the 2nd Friday of each month. The church is at the corner of 690 South and Glendale in Purcellville.

Wisconsin

Lyme Coalition of Northern Wisconsin
Arbor Vitae
Contact: Pat Jackson
Email: pattyknack@charter.net

SEWILL (Southeastern Wisconsin & Illinois Lyme Leagues)
Hustisford
Contact: PJ Langhoff
Email: info@sewill.org

Western Wisconsin Lyme Education & Support Group
Amery
Contact: Paula Warner, Bonnie Fox
Email: Paula: mwarner@amerytel.net ; Bonnie: foxy@amerytel.net
Phone: 715-857-5953
Meets the 4th Thursday of each Month - March through October. 7:00pm at Our Savior's Lutheran Church, 217 Deronda Street, Amery, WI 54001

Wisconsin Lyme Disease Groups
Wausau
Contact: Mike Nickel
Email: miken@tds.net
Website

Wyoming

Wyoming LymeNet
Contact: brasmuss@uwyo.ed

Wyoming Lyme Support Group
Wilson
Contact: Suzanne Morlock
Email: lymesupport@suzannemorlock.com
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