I've been treated for hypercoagulation with heparin, Lyme disease and multiple coinfections, CPN, EBV, candida, and replacement of all HPA axis hormones (2 kinds of thyroid, cortisol, growth hormone, DHEA, and fludrocortisone). I also nebulize glutathione 3x per week. My MCS is gone!

All those things you mention: hypercoagulation, Lyme Disease, Coinfections, CPN??, Epstein Barr, Candida.....to what extent were these things tied in with your MCS (I'm just not sure why you mention them)? Are you saying all these things pre-treatment were undermining your immune system and creating the MCS?

Also, not sure I understand was HPA axis hormones are?

I'm wondering, how do you nebulise glutathione...? I don't even know what glutathione is? Can you buy this and do it at home?

What I'm trying to get at is 'to what do your attribute your recovery from MCS?'
MCS is making my life hell....I would love more info..... I'm not too au fait with all the things you mention in your post so wouldn't know where to start..would you mind elaborating a little?

Could I ask to what extent the Candida diet helped you in your MCS recovery and if you found any particular books helpful....I tried this once for a short time but really stuggled with meal ideas that were not too involved or expensive?

Lastly, can I ask you what you were able to use to cleanse and moisturise your face when you were still struggling with MCS? This is something I'm having real problems with since I have a very sensitive, dry complexion which does not do well when I try to use only water and oils....it gets super irritated...
Are there any supplements that you think were key (that I could purchase) in your dramatic improvement? I've been reading a fair bit recently about leaky gut syndrome and how this can cause or at least be implicated in MCS...was this an issue for you?

Hope you get a chance to reply and thanks for telling us of your success in treating your MCS successfully...it gives us hope and that's so important...!

Hugs and thanks! Shelbo

I love the olive oil face cleanser by a company named DHS. dON'T have any more info about them; I have only used their sample, which lasted thru about 4 washes. Leaves you skin clean and feeling like silk.

I hope you can find it online (the Co. at least) and can send for a sample. they are very good about sending out all kinds of samples. Smart marketing.

Hope you find it and can try it..

skeptik2

Thanks so much! I will look this up! Sorry about the delay in replying! :)

Several weeks ago, I attended a talk about mcs. The researcher said that her work found there are no cures for mcs--avoidance is the only thing that works.

This makes me wonder if you possibly had something else that had the same symptoms as mcs.

It is my understanding that MCS is caused by glutathione depletion. Glutathione is a substance in the liver that metabolizes toxins. For every chemical toxin molecule that you eat, drink, breathe, etc. one glutathione molecule is depleted.

If you have a methylation (detox cycle) block you will be unable to make new glutathione. Once your glutathione is depleted, you will started reacting to tiny amounts of chemicals, thus creating MCS.

If she says she had MCS, I believe her. Believe me, there is nothing that mimics MCS, except MCS. I also believe that of all the therapies she is doing, the nebulized glutathione is the one that is relieving the MCS. However, since she has not gotten to the root of the problem of how to help the body manufacture it's own glutathione, then once she discontinues the glutathione, her MCS will eventually come back.

I am doing Rich Vank's Simplified Methylation Protocol and supplementing with Folapro which helps the body produce glutathione downstream. I have been doing this for 4 months and have noticed that although I ran out of my neutralization drops, my MCS has not returned. Previously, if I ran out of drops, my symptoms would return within a week. I have had MCS for 11 or 12 years.

So yes! there is now a *cure for MCS...your researcher is not quite up to date. Although, to be fair, this is cutting edge stuff. Did she mention provocation-neutralization therapy as a diagnostic tool and treatment? This has been a lifesaver for me. You can't avoid everything...

*cure - actually cure is probably too strong of a word. What it really is is a very good root level treatment. If you could get the body to produce it's own glutathione without any kind of supplementation, then that would be a cure!



[This Message was Edited on 06/22/2009]

Of course I believe anyone when they say they have mcs. As you know, there is nothing like it! I was just curious about the "cure." As we all struggle to get well, I collect as much info as I can so I too can be cured.

From your post, I gather that part of the cure is Rich Vank's Simplified Methylation Protocol. Although I have been nebulizing glutathione for years now, I am not cured. I believe that I should try Rich's protocol and note my progress.

FYI, the researcher I noted is an environmental engineer. She currently researches mcs and seems very updated. You can google her name, Dr. Anne Steinemann, and download her studies from her website.

caledonia would you please share with us which simplified protocol you are following? I noticed that there have been several and that they can be individualized.

thanks!