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Cultivating Trust to Make your NOW Better

Cultivating Trust to Make your NOW Better

Because of the unpredictability of chronic illnesses like ME/CFS, Fibromyalgia and Lyme disease, it’s easy to find ourselves getting anxious about the kinds of things that can bring on a crash ... [07/31/17]
Living Gratitudes: A New Approach to the Gratitude Journal

Living Gratitudes: A New Approach to the Gratitude Journal

  Reprinted with the kind permission of Kami Lingren. Growing up I always had a journal running. Sometimes it would sit for weeks without a single word hitting the page. O... [07/26/17]
Help Bring Unrest to a Theater Near You!

Help Bring Unrest to a Theater Near You!

By Jennifer Brea We could never have come this far without you! Your faith and passion made the impossible possible. Now the work of getting UNREST out into the world begins. Today, we launch our&n... [08/05/17]
Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory Disorder

Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory Disorder

Reprinted with the kind permission of Simmaron Research. By Cort Johnson There’s been a great deal of controversy and confusion s... [08/14/17]

ME/CFS Breaking News

Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue
Reprinted with the kind permission of Cort Johnson and Health Rising   Researchers and doctors get interested in ME/CFS in different ... [08/23/17]
Defense of the PACE trial is based on argumentation fallacies Defense of the PACE trial is based on argumentation fallacies
By S. Lubet    Abstract   In defense of the PACE trial, Petrie and Weinman employ a series of misleading or fallacious argu ... [08/23/17]
Ron Davis Gets Standing Ovation! Ron Davis Gets Standing Ovation!
Reprinted with the kind permission of Open Medicine Foundation. August 12 was an amazing day at OMF’s Community Symposium on t ... [08/22/17]
Investigator bias and the PACE trial Investigator bias and the PACE trial
By S. Lubet   Abstract   The PACE investigators reject Geraghty's suggestion that the cognitive behavior therapy/graded exe ... [08/22/17]
Help Get Jamison a Wheelchair! Help Get Jamison a Wheelchair!
Editor's Note: Jamison Hill was featured in the documentary, The Forgotten Plague. He writes an interesting, and often humorous, blog&nb ... [08/21/17]


More Treatment, Research & News »
Inflammation Disrupts Memory - What Can You Do to Protect Your Brain? Inflammation Disrupts Memory - What Can You Do to Protect Your Brain?
The CDC recently reported a 55% increase in deaths due to Alzheimer's Disease in the last 15 yearsi.  This led CBS News to declare "Alzheime ... [07/24/17]
10 Things to Try When You're Feeling Lonely 10 Things to Try When You're Feeling Lonely
Reprinted with the kind permission of Toni Bernhard. Here are 10 ways to ease the pain of loneliness. Although my writing often focuse ... [07/20/17]
Cultivating Trust to Make your NOW Better Cultivating Trust to Make your NOW Better
Because of the unpredictability of chronic illnesses like ME/CFS, Fibromyalgia and Lyme disease, it’s easy to find ourselves getting a ... [07/31/17]
Living Gratitudes: A New Approach to the Gratitude Journal Living Gratitudes: A New Approach to the Gratitude Journal
  Reprinted with the kind permission of Kami Lingren. Growing up I always had a journal running. Sometimes it would sit for weeks ... [07/26/17]
Can you do Anil a favor? He needs our help! Can you do Anil a favor? He needs our help!
Note: The following is a special plea from Anil van der Zee, a former ballet dancer with severe ME/CFS. LIke many people with this disease h ... [07/11/17]


More Treatment, Research & News »
FITNET’s Internet-Based Cognitive Behavioural Therapy Is Ineffective and May Impede FITNET’s Internet-Based Cognitive Behavioural Therapy Is Ineffective and May Impede
  By Simin Ghatineh and Mark Vink Abstract The Dutch Fatigue In Teenagers on the interNET (FITNET) study claimed that after ... [Stars: 5.00]
Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory
Reprinted with the kind permission of Simmaron Research. By Cort Johnson There’s been a great deal of controversy and ... [Stars: 5.00]
Chronic fatigue syndrome patients have no reason to accept the PACE trial results: Chronic fatigue syndrome patients have no reason to accept the PACE trial results:
By S. Agardy   Abstract   Petrie and Weinman urge chronic fatigue syndrome patients to move on from their beliefs ... [Stars: 5.00]
NIH Attitudes Affect Policy: A Story In Two Parts NIH Attitudes Affect Policy: A Story In Two Parts
Reprinted with the kind permission of Jennie Spotila and Occupy ME. By Jennie Spotila The current situation for ME research at NIH is ... [Stars: 5.00]
Medial prefrontal cortex deficits correlate with unrefreshing sleep in patients with Medial prefrontal cortex deficits correlate with unrefreshing sleep in patients with
By Z. Y. Shan  et al. Abstract Unrefreshing sleep is a hallmark of chronic fatigue syndrome/myalgic encephalomyelitis (CFS). This ... [Stars: 5.00]


More Treatment, Research & News »
VIDEO: Release of the Pediatric ME/CFS Primer | ME/CFS Alert Episode 91 VIDEO: Release of the Pediatric ME/CFS Primer | ME/CFS Alert Episode 91
The Pediatric ME/CFS Primer is available here. ...
VIDEO:  Mindfulness and Chronic Pain VIDEO: Mindfulness and Chronic Pain
In this video, Jon Kabat-Zinn describes how mindfulness can help with chronic pain. Has mindfulness offered you relief?   ...
VIDEO: Objective Evidence and ME/CFS VIDEO: Objective Evidence and ME/CFS
ME Analysis explains the PACE trial in lay terms. Here is a link to the article referred to in the video. At the moment it is not open-acces ...
VIDEO:  Healing illness with the subconscious mind VIDEO: Healing illness with the subconscious mind
Danna Pycher is a certified Neuro-Linguistic Hypnotherapist specializing in chronic illness and trauma. Danna was diagnosed with chroni ...
VIDEO:  Dear Healthy People: Are You Feeling Better? VIDEO: Dear Healthy People: Are You Feeling Better?
“Are you feeling better?”   Ken McKim proposes there’s a better question to ask someone who is chronically ill. ...


More Treatment, Research & News »
The Big Fishing Expedition: Report From the NIH Intramural Study on ME/CFS The Big Fishing Expedition: Report From the NIH Intramural Study on ME/CFS
Reprinted with the kind permission of Simmaron Research. By Cort Johnson A Big, Deep Fishing Expedition “We’re thr ... [Comments: 2]
When Our Chronically Ill Bodies Say “Rest,” Why Don't We? When Our Chronically Ill Bodies Say “Rest,” Why Don't We?
Reprinted with the kind permission of Toni Bernhard. Scheduling rest periods into your day can help tremendously. Most people who are ... [Comments: 2]
Special issue on the PACE Trial Special issue on the PACE Trial
Editor's note: This is the abstract for the editorial written by David Marks introducing a special edition of the Journal of Health Psych ... [Comments: 2]
On Your Marks GETSET: Don’t Go – Major Graded Exercise ME/CFS Trial Underwhelms (Again) On Your Marks GETSET: Don’t Go – Major Graded Exercise ME/CFS Trial Underwhelms (Again)
Reprinted with the kind permission of Cort Johnson and Health Rising. By Cort Johnson The Lancet — one of the most highly ... [Comments: 1]
Even Even "Minor" Infections Can Cause Chronic Fatigue Syndrome (ME/CFS)
Reprinted with the kind permission of Simmaron Research. By Cort Johnson Giardia hasn’t historically ranked high as a potential ... [Comments: 1]


More Treatment, Research & News »
Ron Davis Gets Standing Ovation! Ron Davis Gets Standing Ovation!
Reprinted with the kind permission of Open Medicine Foundation. August 12 was an amazing day at OMF’s Community Symposium on t... [08/22/17]
Help Get Jamison a Wheelchair! Help Get Jamison a Wheelchair!
Editor's Note: Jamison Hill was featured in the documentary, The Forgotten Plague. He writes an interesting, and often humorous, blog&nb... [08/21/17]
Renewing in Hope Renewing in Hope
For those of us who face chronic illness each day, thinking positive is not an easy task. It's not as if we dwell on the negative, yet t... [08/20/17]
When Our Chronically Ill Bodies Say “Rest,” Why Don't We? When Our Chronically Ill Bodies Say “Rest,” Why Don't We?
Reprinted with the kind permission of Toni Bernhard. Scheduling rest periods into your day can help tremendously. Most people who are ... [08/17/17]
The Time is N.O.W. - National Women's Advocacy Organization Joins the Fight for ME/CFS The Time is N.O.W. - National Women's Advocacy Organization Joins the Fight for ME/CFS
Reprinted with the kind permission of Cort Johnson and Health Rising. By Cort Johnson This one action demonstrates why it's so imp... [08/16/17]


More Treatment, Research & News »
10 Things to Try When You're Feeling Lonely 10 Things to Try When You're Feeling Lonely
Reprinted with the kind permission of Toni Bernhard. Here are 10 ways to ease the pain of loneliness. Although my writing often focuse ... [07/20/17]
Cultivating Trust to Make your NOW Better Cultivating Trust to Make your NOW Better
Because of the unpredictability of chronic illnesses like ME/CFS, Fibromyalgia and Lyme disease, it’s easy to find ourselves getting a ... [07/31/17]
Living Gratitudes: A New Approach to the Gratitude Journal Living Gratitudes: A New Approach to the Gratitude Journal
  Reprinted with the kind permission of Kami Lingren. Growing up I always had a journal running. Sometimes it would sit for weeks ... [07/26/17]
Can you do Anil a favor? He needs our help! Can you do Anil a favor? He needs our help!
Note: The following is a special plea from Anil van der Zee, a former ballet dancer with severe ME/CFS. LIke many people with this disease h ... [07/11/17]
Help Bring Unrest to a Theater Near You! Help Bring Unrest to a Theater Near You!
By Jennifer Brea We could never have come this far without you! Your faith and passion made the impossible possible. Now the work of gett ... [08/05/17]


More Treatment, Research & News »
NIH Attitudes Affect Policy: A Story In Two Parts NIH Attitudes Affect Policy: A Story In Two Parts
Reprinted with the kind permission of Jennie Spotila and Occupy ME. By Jennie Spotila The current situation for ME research at NIH is ... [Stars: 5.00]
The Time is N.O.W. - National Women's Advocacy Organization Joins the Fight for ME/CFS The Time is N.O.W. - National Women's Advocacy Organization Joins the Fight for ME/CFS
Reprinted with the kind permission of Cort Johnson and Health Rising. By Cort Johnson This one action demonstrates why it's so imp ... [Stars: 5.00]
Take action! Restore ME/CFS Funding now! Take action! Restore ME/CFS Funding now!
Reprinted with the kind permission of SMCI. Take action! Restore ME/CFS Funding now!   Last week, the House Appropriation ... [Stars: 5.00]
Renewing in Hope Renewing in Hope
For those of us who face chronic illness each day, thinking positive is not an easy task. It's not as if we dwell on the negative, yet t ... [Stars: 4.95]
When Our Chronically Ill Bodies Say “Rest,” Why Don't We? When Our Chronically Ill Bodies Say “Rest,” Why Don't We?
Reprinted with the kind permission of Toni Bernhard. Scheduling rest periods into your day can help tremendously. Most people who are ... [Stars: 4.90]


More Treatment, Research & News »
Ron Davis Gets Standing Ovation! Ron Davis Gets Standing Ovation!
Reprinted with the kind permission of Open Medicine Foundation. August 12 was an amazing day at OMF’s Community Symposium on t ...
Help Get Jamison a Wheelchair! Help Get Jamison a Wheelchair!
Editor's Note: Jamison Hill was featured in the documentary, The Forgotten Plague. He writes an interesting, and often humorous, blog&nb ...
Renewing in Hope Renewing in Hope
For those of us who face chronic illness each day, thinking positive is not an easy task. It's not as if we dwell on the negative, yet t ...
When Our Chronically Ill Bodies Say “Rest,” Why Don't We? When Our Chronically Ill Bodies Say “Rest,” Why Don't We?
Reprinted with the kind permission of Toni Bernhard. Scheduling rest periods into your day can help tremendously. Most people who are ...
The Time is N.O.W. - National Women's Advocacy Organization Joins the Fight for ME/CFS The Time is N.O.W. - National Women's Advocacy Organization Joins the Fight for ME/CFS
Reprinted with the kind permission of Cort Johnson and Health Rising. By Cort Johnson This one action demonstrates why it's so imp ...


More Treatment, Research & News »
When Our Chronically Ill Bodies Say “Rest,” Why Don't We? When Our Chronically Ill Bodies Say “Rest,” Why Don't We?
Reprinted with the kind permission of Toni Bernhard. Scheduling rest periods into your day can help tremendously. Most people who are ... [Comments: 2]
Renewing in Hope Renewing in Hope
For those of us who face chronic illness each day, thinking positive is not an easy task. It's not as if we dwell on the negative, yet t ... [Comments: 1]
Even Even "Minor" Infections Can Cause Chronic Fatigue Syndrome (ME/CFS)
Reprinted with the kind permission of Simmaron Research. By Cort Johnson Giardia hasn’t historically ranked high as a potential ... [Comments: 1]
Ron Davis Gets Standing Ovation! Ron Davis Gets Standing Ovation!
Reprinted with the kind permission of Open Medicine Foundation. August 12 was an amazing day at OMF’s Community Symposium on t ... [Comments: 0]
Help Get Jamison a Wheelchair! Help Get Jamison a Wheelchair!
Editor's Note: Jamison Hill was featured in the documentary, The Forgotten Plague. He writes an interesting, and often humorous, blog&nb ... [Comments: 0]


More Treatment, Research & News »
Defense of the PACE trial is based on argumentation fallacies Defense of the PACE trial is based on argumentation fallacies
By S. Lubet    Abstract   In defense of the PACE trial, Petrie and Weinman employ a series of misleading or fallacious argu ... [08/23/17]
Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue
Reprinted with the kind permission of Cort Johnson and Health Rising   Researchers and doctors get interested in ME/CFS in different ... [08/23/17]
Investigator bias and the PACE trial Investigator bias and the PACE trial
By S. Lubet   Abstract   The PACE investigators reject Geraghty's suggestion that the cognitive behavior therapy/graded exe ... [08/22/17]
Distress signals: Does cognitive behavioural therapy reduce or increase distress in Distress signals: Does cognitive behavioural therapy reduce or increase distress in
By K. R. Laws   Abstract   Reducing the psychological distress associated with chronic fatigue syndrome/myalgic encephalomy ... [08/21/17]
Chronic fatigue syndrome patients have no reason to accept the PACE trial results: Chronic fatigue syndrome patients have no reason to accept the PACE trial results:
By S. Agardy   Abstract   Petrie and Weinman urge chronic fatigue syndrome patients to move on from their beliefs ... [08/20/17]


More Treatment, Research & News »
Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory
Reprinted with the kind permission of Simmaron Research. By Cort Johnson There’s been a great deal of controversy and ... [08/14/17]
Special issue on the PACE Trial Special issue on the PACE Trial
Editor's note: This is the abstract for the editorial written by David Marks introducing a special edition of the Journal of Health Psych ... [08/04/17]
The Big Fishing Expedition: Report From the NIH Intramural Study on ME/CFS The Big Fishing Expedition: Report From the NIH Intramural Study on ME/CFS
Reprinted with the kind permission of Simmaron Research. By Cort Johnson A Big, Deep Fishing Expedition “We’re thr ... [07/29/17]
Examining those Meeting IOM Criteria Versus IOM Plus Fibromyalgia Examining those Meeting IOM Criteria Versus IOM Plus Fibromyalgia
By L. A. Jason et al. Abstract   The Institute of Medicine (IOM) recently developed clinical criteria for chronic fatigue ... [07/21/17]
Early Results Suggest Two Radically Different Immune Subsets Present in Chronic Fatigue Early Results Suggest Two Radically Different Immune Subsets Present in Chronic Fatigue
Reprinted with the kind permission of Cort Johnson and Health Rising. By Cort Johnson Subsets, Subsets, Subsets Ev ... [07/19/17]


More Treatment, Research & News »
FITNET’s Internet-Based Cognitive Behavioural Therapy Is Ineffective and May Impede FITNET’s Internet-Based Cognitive Behavioural Therapy Is Ineffective and May Impede
  By Simin Ghatineh and Mark Vink Abstract The Dutch Fatigue In Teenagers on the interNET (FITNET) study claimed that after ... [Stars: 5.00]
Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is Inflammatory
Reprinted with the kind permission of Simmaron Research. By Cort Johnson There’s been a great deal of controversy and ... [Stars: 5.00]
Chronic fatigue syndrome patients have no reason to accept the PACE trial results: Chronic fatigue syndrome patients have no reason to accept the PACE trial results:
By S. Agardy   Abstract   Petrie and Weinman urge chronic fatigue syndrome patients to move on from their beliefs ... [Stars: 5.00]
Physiological measures in participants with chronic fatigue syndrome, multiple sclerosis Physiological measures in participants with chronic fatigue syndrome, multiple sclerosis
By L. D. Hodges et al. Abstract   PURPOSE: To compare physiological responses of chronic fatigue syndrome (CFS/ME), multi ... [Stars: 5.00]
Medial prefrontal cortex deficits correlate with unrefreshing sleep in patients with Medial prefrontal cortex deficits correlate with unrefreshing sleep in patients with
By Z. Y. Shan  et al. Abstract Unrefreshing sleep is a hallmark of chronic fatigue syndrome/myalgic encephalomyelitis (CFS). This ... [Stars: 5.00]


More Treatment, Research & News »
Defense of the PACE trial is based on argumentation fallacies Defense of the PACE trial is based on argumentation fallacies
By S. Lubet    Abstract   In defense of the PACE trial, Petrie and Weinman employ a series of misleading or fallacious argu ...
Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue
Reprinted with the kind permission of Cort Johnson and Health Rising   Researchers and doctors get interested in ME/CFS in different ...
Investigator bias and the PACE trial Investigator bias and the PACE trial
By S. Lubet   Abstract   The PACE investigators reject Geraghty's suggestion that the cognitive behavior therapy/graded exe ...
Distress signals: Does cognitive behavioural therapy reduce or increase distress in Distress signals: Does cognitive behavioural therapy reduce or increase distress in
By K. R. Laws   Abstract   Reducing the psychological distress associated with chronic fatigue syndrome/myalgic encephalomy ...
Chronic fatigue syndrome patients have no reason to accept the PACE trial results: Chronic fatigue syndrome patients have no reason to accept the PACE trial results:
By S. Agardy   Abstract   Petrie and Weinman urge chronic fatigue syndrome patients to move on from their beliefs ...


More Treatment, Research & News »
Special issue on the PACE Trial Special issue on the PACE Trial
Editor's note: This is the abstract for the editorial written by David Marks introducing a special edition of the Journal of Health Psych ... [Comments: 2]
The Big Fishing Expedition: Report From the NIH Intramural Study on ME/CFS The Big Fishing Expedition: Report From the NIH Intramural Study on ME/CFS
Reprinted with the kind permission of Simmaron Research. By Cort Johnson A Big, Deep Fishing Expedition “We’re thr ... [Comments: 2]
Defense of the PACE trial is based on argumentation fallacies Defense of the PACE trial is based on argumentation fallacies
By S. Lubet    Abstract   In defense of the PACE trial, Petrie and Weinman employ a series of misleading or fallacious argu ... [Comments: 1]
Investigator bias and the PACE trial Investigator bias and the PACE trial
By S. Lubet   Abstract   The PACE investigators reject Geraghty's suggestion that the cognitive behavior therapy/graded exe ... [Comments: 1]
FITNET’s Internet-Based Cognitive Behavioural Therapy Is Ineffective and May Impede FITNET’s Internet-Based Cognitive Behavioural Therapy Is Ineffective and May Impede
  By Simin Ghatineh and Mark Vink Abstract The Dutch Fatigue In Teenagers on the interNET (FITNET) study claimed that after ... [Comments: 1]


More Treatment, Research & News »
Inflammation Disrupts Memory - What Can You Do to Protect Your Brain? Inflammation Disrupts Memory - What Can You Do to Protect Your Brain?
The CDC recently reported a 55% increase in deaths due to Alzheimer's Disease in the last 15 yearsi.  This led CBS News to declare "Alzheime ... [07/24/17]


More Treatment, Research & News »
Inflammation Disrupts Memory - What Can You Do to Protect Your Brain? Inflammation Disrupts Memory - What Can You Do to Protect Your Brain?
The CDC recently reported a 55% increase in deaths due to Alzheimer's Disease in the last 15 yearsi.  This led CBS News to declare "Alzheime ... [07/24/17]


More Treatment, Research & News »
Inflammation Disrupts Memory - What Can You Do to Protect Your Brain? Inflammation Disrupts Memory - What Can You Do to Protect Your Brain?
The CDC recently reported a 55% increase in deaths due to Alzheimer's Disease in the last 15 yearsi.  This led CBS News to declare "Alzheime ... [Stars: 4.25]


More Treatment, Research & News »
Inflammation Disrupts Memory - What Can You Do to Protect Your Brain? Inflammation Disrupts Memory - What Can You Do to Protect Your Brain?
The CDC recently reported a 55% increase in deaths due to Alzheimer's Disease in the last 15 yearsi.  This led CBS News to declare "Alzheime ...


More Treatment, Research & News »
Inflammation Disrupts Memory - What Can You Do to Protect Your Brain? Inflammation Disrupts Memory - What Can You Do to Protect Your Brain?
The CDC recently reported a 55% increase in deaths due to Alzheimer's Disease in the last 15 yearsi.  This led CBS News to declare "Alzheime ... [Comments: 0]


More Treatment, Research & News »

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Chronic Fatigue Syndrome & Myalgic Encephalomyelitis
Pin It
 Will it help me to eliminate gluten and milk?
Dr. Lapp is an internationally recognized expert in ME/CFS. He has written numerous articles and has spoken widely concerning ME/CFS and Fibromyalgia.
Will it help me to eliminate gluten and milk?
Q: Will it help me to eliminate gluten and milk? 
 
A: Many of our patients report intolerance to both gluten (wheat products, barley, and rye) as well as dairy products.  

These intolerances are rarely caused by true allergies to gluten (celiac disease or sprue) or dairy (milk protein allergy).

Researchers in Belgium have also suggested that many PWCs are intolerant of fructose as well.  

Consider avoiding each of these offenders for several days to see if it makes you feel less symptomatic.
 
... [more]

Inspirational Corner


Renewing in Hope

Renewing in Hope

For those of us who face chronic illness each day, thinking positive is not an easy task. It's not as if we dwell on the negative, yet the n... [08/20/17]
When Our Chronically Ill Bodies Say “Rest,” Why Don't We?

When Our Chronically Ill Bodies Say “Rest,” Why Don't We?

Reprinted with the kind permission of Toni Bernhard. Scheduling rest periods into your day can help ... [08/17/17]
Cultivating Trust to Make your NOW Better

Cultivating Trust to Make your NOW Better

Because of the unpredictability of chronic illnesses like ME/CFS, Fibromyalgia and Lyme disease, it’s easy to fin... [07/31/17]
Living Gratitudes: A New Approach to the Gratitude Journal

Living Gratitudes: A New Approach to the Gratitude Journal

  Reprinted with the kind permission of Kami Lingren. Growing up I always had a journal run... [07/26/17]


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