Reprinted with the kind permission of Jennie Spotila and Occupy CFS.
By Jennie Spotila
There are a number of opportunities for ME/CFS advocacy right now – all of which you can do on your own from home! Here are the details:
CFS Advisory Committee Public Comment: The Federal Register notice for the August 18-19th meeting has been published.
Registration to attend in person is different this time! You must download a form on the CFSAC website (although it’s not available yet) and email it to CFSACmtg@hhs.gov. Registration for... [Read More]
The song "Helter Skelter" (originally by The Beatles) often goes through my mind when I go from feeling fine one day to being badly crashed the next. It resonates with my sense of climbing up only to find myse...
Dr. Lucinda Bateman is a specialist in ME/CFS. Since opening her Fatigue Consultation Clinic in 2000, she has treated over 1000 patients.
Do Antivirals Work for ME/CFS? Q: I hear about treating with antivirals like Valcyte, Valtrex and Famvir. My doctor says there’s no evidence that these help. Others claim great results? I don’t know what to think.
A: The term “no evidence” means specifically that there aren’t high quality published studies showing evidence or proof - and unfortunately, this is true for antivirals and ME/CFS.... [more]
The Functional Capacity Evaluation (FCE) and Your Disability Insurance Benefits
People with Fibromyalgia and Chronic Fatigue Syndrome (CFS) face many challenges when pursuing their claim for long term disability insurance benefits, and the Functional Capacity Evaluation (FCE) is one of them. The Functional Capacity Evaluation is a bad test for anyone who is disabled – but for people suffering from Fibromyalgia or CFS, it’s often a complete disaster.
Disability insurance companies have terminated benefits based on the results of the FCE, so... [more]