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Chronic Fatigue Syndrome/ME News & Research


Chronic Pain and the Opioid Epidemic: Wicked Issues Have No Simple Solutions Chronic Pain and the Opioid Epidemic: Wicked Issues Have No Simple Solutions
Myra Christopher advocates for access to comprehensive pain care for all those who live with chronic pain and addiction.  ... January 27, 2017

Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Summary Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Summary
On January 12 and 13, the Federal Chronic Fatigue Syndrome Advisory Committee (CFSAC) met in Washington DC for one of its biannual meetings.... January 27, 2017

VIDEO: Long-Term Fibromyalgia & ME/CFS Sufferer Recovers After 20+ Years and Tells Her Story VIDEO: Long-Term Fibromyalgia & ME/CFS Sufferer Recovers After 20+ Years and Tells Her Story
Abigail shares how she recovered after 20+ years of suffering with fibromyalgia and ME/CFS.... January 26, 2017

The NIH’s Five Year Funding Increase for Chronic Fatigue Syndrome (ME/CFS): Does it Pass Muster? The NIH’s Five Year Funding Increase for Chronic Fatigue Syndrome (ME/CFS): Does it Pass Muster?
At the January, 2017 CFSAC meeting, the full funding was announced: $29,750,000 – over five years or about $6,000,000 a year... January 26, 2017

Natural course of chronic fatigue syndrome/myalgic encephalomyelitis in adolescents Natural course of chronic fatigue syndrome/myalgic encephalomyelitis in adolescents
Abstract: Persistent chronic disabling fatigue is rare in adolescents, with approximately 75% recovering after 2–3?years.... January 25, 2017

Wearables – A Next Big Thing for ME/CFS and Fibromyalgia? Wearables – A Next Big Thing for ME/CFS and Fibromyalgia?
Cort Johnson reviews a recent Stanford study that suggests wearables – smartwatches and other devices that can measure a multitude of physiological parameters – are going to be one of the next big thi... January 24, 2017

VIDEO: What happens when you have a disease doctors can't diagnose VIDEO: What happens when you have a disease doctors can't diagnose
Brea describes the obstacles she's encountered in seeking treatment for her condition, whose root causes and physical effects we don't fully understand.... January 24, 2017

How Being a Patient Taught Me to Be a Better Caregiver How Being a Patient Taught Me to Be a Better Caregiver
See how one chronically ill patient learned to cope when she found herself in the position of having to be a caregiver for a loved one. ... January 23, 2017

Assessment of Individual PACE Trial Data: in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, Cognitive Behavioral and Graded Exercise Therapy are Ineffective, Do Not Lead to Actual Recovery and Negative Outcomes may be Higher than Reported Assessment of Individual PACE Trial Data: in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, Cognitive Behavioral and Graded Exercise Therapy are Ineffective, Do Not Lead to Actual Recovery and Negative Outcomes may be Higher than Reported
Abstract: Data confirm the conclusions of a number of studies that patient health was negatively affected by CBT and GET.... January 22, 2017

Epic Measures: How One Man Changed the World (and Possibly Chronic Fatigue Syndrome and Fibromyalgia) Epic Measures: How One Man Changed the World (and Possibly Chronic Fatigue Syndrome and Fibromyalgia)
Cort Johnson reviews the work of Chris Murray and declares his struggle to identify and combat the immense and then largely unknown health inequities in the world will surely resonate with fibromyalgi... January 21, 2017

Non-Invasive Diagnostic Test Project Seeks to Detect ME/CFS Non-Invasive Diagnostic Test Project Seeks to Detect ME/CFS
Data suggests that an abnormal response of NADP and its cofactor, NAD(P)H, may be a molecular marker for ME/CFS-related oxidative stress at the cellular level.... January 20, 2017

VIDEO:  Understanding Balanced Pain Management VIDEO: Understanding Balanced Pain Management
Pain is one of the primary symptoms of fibromyalgia. This video offers compelling reasons for the personalized, multi-prong approach of multimodal analgesia. ... January 20, 2017

Children's experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review and meta-ethnography of qualitative studies Children's experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review and meta-ethnography of qualitative studies
Abstract: There is a need for greater recognition and diagnosis of childhood CFS/ME, specialist advice and improved communication between health and education providers.... January 19, 2017

 
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