Mount Sinai ME/CFS Trial Recruiting Now!
Dr. Derek Enlander, director of the new ME and CFS Research Center at Mount Sinai Hospital in New York, has a new Facebook page where patients and advocates may look for information on the Center's activities, which for now remain centered in NYC (http://www.facebook.com/DrEnlander). As the introduction states, "Please direct all inquiries about Dr. Enlander's clinic, treatments, and research to this page."
Dr. Enlander posted on Sep 13: “We are currently recruiting patients for our Post-Exertional Malaise and Exertion Intolerance study at Mt. Sinai. Please email Joy at firstname.lastname@example.org. ...Please allow for a couple of days for a member of Dr. Enlander's staff to get back to you."
Chlorella Promotes Viral, Bacterial Immune Defense
A new placebo controlled trial, reported in Nutrition Journal, reports that 8 weeks of chlorella supplementation in healthy humans produced strong increases in Natural Killer cell activity and reductions in several inflammatory signaling cytokines. See "Beneficial immunostimulatory effect of short-term Chlorella supplementation: Enhancement of Natural Killer cell activity and early inflammatory response." Next study to, immune-challenged subjects.
Chlorella, a minute water plant named after the Greek word for green (chloros), offers the highest chlorophyll concentration of any food source known. It is also a rich source of protein, Beta Carotene, B-12 and other B vitamins, Iron, and omega-3 fatty acids (the ones that we derive from fish oil, and fish can get from eating chlorella).
It's Final: No XMRV or pMLV Link to ME/CFS
At 12:01 AM Eastern time, Sep 18, the embargo lifted on findings of the study to settle the question of XMRV/pMLV involvement in ME/CFS. The verdict - no link was found. And, given the careful, collaborative, high tech lab protocols that were used at Columbia University's Center for Infection and Immunity, the question has indeed been laid to rest. To read the full text study report published by mBio, click here. And to view the "This Week in Virology," netcast featuring study leader Ian Lipkin's comments, click here.
Osteoporosis - Not Always About Calcium
Scurvy - bone degradation caused by vitamin C deficiency - led the British Navy to feed sailors rot-resistant limes on long voyages (hence the nickname, "Limeys"). But a more contemporary form of 'scurvy' exists and it's often mistreated as a calcium deficiency, writes Suzanne Humphries, MD, in a recent article on other deficiencies that can be involved - "Osteoporosis is Scurvy of the Bone, Not Calcium Deficiency."
College & Career for Those With Chronic Illness
One of the seminars posted during Invisible Illness Awareness Week is a video on "Transitioning to College and Career with a Chronic Illness," by young diabetic patient Naomi Kingery. She describes how she successfully managed "the journey of being a tween with an illness to teenager, and then through college and career," and offers tips for those with illnesses on going to college and career aspirations.
Resources for Teens Coping with Chronic Illness
The Chronic Illness Resources for Teens website – sponsored by Dartmouth College’s C Everett Koop Institute - is a place for teens with many illnesses to connect, get involved in creative projects, share stories & ideas, and learn. Thanks to author/columnist Toni Bernhardt (HowtoBeSick.com) for this link.
'Carpal Tunnel' Pain as Prediabetes Flag
“The nerve damage leading to carpal tunnel syndrome in many individuals may quite easily be explained by the known damage of high blood sugar levels on the fine nerve endings, particularly those of your extremities," and so can be an early risk indicator or warning sign for diabetes or prediabetes, writes diabetes specialist Dr. Rivkah Roth, DO, DNM. Read "Carpal Tunnel Syndrome as Early Diabetes Risk Indicator," and take her CTS/diabetes poll here.
Risk of Hearing Loss from OTC Analgesics
Data from the large Nurses' Health Study II tracking study links OTC pain relievers to some degree of hearing loss in many of the 10,000 female nurses who self-reported a loss. Risk for those taking an NSAID 2 or more times a week increased as much as 24% for ibuprofen users and 21% for acetaminophen users - and importantly was more severe in women younger than age 50. Aspirin, by comparison, appeared to involve negligible if any risk. (See "Analgesic use and the risk of hearing loss in women.") Earlier studies involving men also linked increased hearing loss risk to NSAIDS, but for them aspirin played a more significant role.
New Book Blasts Psychological Explanations for Physical Illness
First printing of this new book by Angela Kennedy, released Aug 18, apparently sold out pronto. In
Authors of Our Own Misfortune: The problems with psychogenic explanations for physical illnesses,
Angela documents the serious and very widespread harm the "it's all in your head" diagnosis is doing every day, and demonstrates why "such explanations are almost always fatally flawed, both scientifically and logically" - subject to a mix of confusing concepts and "moralistic and ideological assumptions about people and their illnesses."
Shomon & Holtorf Video on Thyroid as Cause of Weight Gain
Kent Holtorf, MD, founder of the National Academy of Hypothyroidism and thyroid research writer Mary Shomon talk in depth about the various reasons why many cannot lose weight despite diet and exercise. Topics include low thyroid symptoms, diagnosis and tretment, diet, hormone resistance, leptin resistence, weight set point malfunction and more. See video:
"Is Your Thyroid Making You Fat?"
Chase Giving Campaign - Winnings Announced Soon
The Chase Giving vote ends Sep 19 just before midnight, and nonprofit organizations that won grants in different categories will be known soon. It was clear for a week that only two charities representing neuro-immune diseases had any chance to win some of the Chase Giving jackpot of grant money. NIDA (Neuro Immune Disease Alliance) stayed well up in the count throughout with a chance for $20K, while Phoenix Rising an NEID Corporation worked hard to stay in the running for $10K - but often votes at the end make the difference.
Note: This information has not been evaluated by the FDA. It is not intended to diagnose, treat or cure any disease, condition or illness, and is not meant to replace professional medical advice. It is very important that you make no change in your healthcare plan or health support regimen without researching and discussing it with your professional healthcare team.