Activate Now
 
ProHealth me-cfs Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

ACTION ALERT: Improve US Chronic Pain Care

Our Mind Wants What Our Body Can't Produce

The Power of Believing You Are Enough

Reversing Alzheimer’s: What Could it Mean for Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia?

Tribunal Orders Release of PACE Data

Why Is Chronic Fatigue Syndrome Still a Mystery?

The Blood Volume Paradox in Chronic Fatigue Syndrome (ME/CFS) and POTS

4 Simple Ways to Shift into Positivity

VIDEO: Coping With Chronic Fatigue Syndrome and Fibromyalgia

Big step towards cure for HIV and other lifelong viral infections

 
Print Page
Email Article

ME/CFS Patients: Your email by Dec 6 can convince FDA we need real treatments

  [ 11 votes ]   [ Discuss This Article ]
www.ProHealth.com • November 30, 2012


Note: Midnight Dec 6 was the deadline for patient comments to be considered in the FDA's Dec 20 public review of Ampligen as a treatment for ME/CFS. Now, patients & advocates are invited to view the live webcast of this public review on Dec 20, 8 am to 5 pm Eastern Time. Oral presentations are scheduled for 1:00 pm to 2:30 pm Eastern Time. The FDA indicates it will post details, including the web address for the webcast and background material for the meeting, on Dec 18 at this FDA site: http://www.fda.gov/AdvisoryCommittees/Calendar/ucm324972.htm. The FDA also plans to archive the webcast for later public viewing.

_____________________

Following is a call to action from a team of ME/CFS patient activists, led by Robert Miller.

URGENT: ME/CFS patient "ACTION" needed by December 6
(A Call To Impact Our (ME/CFS) Nation)

For All ME/CFS Patients, Families and Friends:

On December 20, 2012, ME/CFS patients have the chance to be involved with approving a treatment specifically for CFS/ME. Ampligen patients will testify to an FDA Advisory Committee.

Whether you’ve been on Ampligen or not, or you wish to try it or not - does not matter; the fact is that once one drug gets approved, other drugs will come along and so will research dollars.

Ampligen approval will also legitimize CFS/ME in the minds of the Medical Community. This potential approval is a Game Changer for our Patients, Family & Friends.

Be a part of history with your "A C T I O N". Send in your email by December 6, to let the FDA Advisory Committee know what it’s like to live with ME/CFS daily and that real treatment is needed.

Send To: Email address: AAC@fda.hhs.gov
Subject line: Treatment for Chronic Fatigue Syndrome - Ampligen

To the Advisory Committee Reviewing Ampligen:

(Please Cc: emails to Robert Miller at: 511bobmiller42@gmail.com

SCROLL DOWN for an EMAIL TEMPLATE IF NEEDED

Why is this about Ampligen?
This FDA meeting is part of the process to approve a drug developed by Hemispherx, which has remained committed to the ME/CFS community for more than 2 decades and has invested more than 500 million dollars. Our advocacy community will update you when other significant meetings are coming up, including FDA, CDC and NIH…

Right Now - We Need You to tell the Advisory Committee it’s “your choice” to access Ampligen or not! If denied, it could be years for other treatments to get to this stage. Ampligen is to our community what AZT was for AIDS. It’s just the start of treatments to come. Your Support = Power. (Also note the FDA's Public Ampligen review will be webcast live on Dec 20, 8 am to 5 pm Eastern Time. Details will be posted on Dec 18 at this FDA site: http://www.fda.gov/AdvisoryCommittees/Calendar/ucm324972.htm)

____________________________

EASY EMAIL TEMPLATE TO COPY & PASTE

(Please Cc: emails to Robert Miller at: 511bobmiller42@gmail.com)

Send To: Email address: AAC@fda.hhs.gov
Subject line:  Treatment for Chronic Fatigue Syndrome - Ampligen

To the Advisory Committee Reviewing Ampligen:

My name is _____________, I have had CFS for more than ___ years. Before I became ill I had a life that was__ your story here__. My life since having CFS has been __your story here_.

After 3 decades, we need treatment. We deserve treatment and the ability to access it. Just like AZT for AIDS or Chemo for Cancer or Tysarbri for MS or Benlysta for Lupus. We are not second class patients.

The Reality of CFS: It is Serious and Life Threatening. According to CDC studies, CFS is comparable to MS, AIDS, Lupus, Rheumatoid Arthritis, Heart Disease, Renal Failure, COPD and Chemotherapy. CFS/ME affects every moment of my life. We’ve seen and heard of patients responding to Ampligen. Give patients hope by approving Ampligen. We want our lives back.

Thank you,
Your full name
Your address




Post a Comment

Featured Products From the ProHealth Store
Ultra ATP+, Double Strength Hydroxocobalamin Extreme™ Energy NADH™ 12.5mg

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products


Article Comments



Be the first to comment on this article!

Post a Comment


 
Natural Pain Relief Supplements

Featured Products

Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
B-12 Extreme™ B-12 Extreme™
The Most Potent Vitamin B-12 on Earth
MitoQ® MitoQ®
Powerful Antioxidant Support to Mitochondria
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Hydroxocobalamin Extreme™ Hydroxocobalamin Extreme™
The B-12 Your Brain Needs for Detox & Sharpness

Natural Remedies

Guarding Against the Dangers of Vitamin D Deficiency Guarding Against the Dangers of Vitamin D Deficiency
Energy Breakthrough - One Fibromyalgia Patient’s Fortuitous Discovery Energy Breakthrough - One Fibromyalgia Patient’s Fortuitous Discovery
Block food Cravings At Their Molecular Root Block food Cravings At Their Molecular Root
Astaxanthin - A Little-Known but Power-Packed Nutrient Astaxanthin - A Little-Known but Power-Packed Nutrient
Repair Damaged Mitochondria and Reduce Fatigue Up to 45% Repair Damaged Mitochondria and Reduce Fatigue Up to 45%

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE AND SAVE 15% NOW*
Be the first to know about new products, special discounts and the latest health news. *New subscribers only

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2016 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map