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From Our Readers: Comments & Suggestions – 1/15/2014

  [ 5 votes ]   [ Discuss This Article ] • January 15, 2014

From Our Readers: Comments & Suggestions – 1/15/2014

I Wish You Were My Doctor

Re: "A Doctor's Letter to Patients with a Chronic Disease"

I wish you were my doctor. The idea of "have a relationship" with your doctor is lovely. When you only are allowed 10 minute appointments by the insurance companies, and he only has time for one symptom, there is no time for understanding what is really going on at all. We have basically stabilized at me telling him "order me these labs" "write me this prescription" he asks why, I tell him quickly the basic reason, he does what I ask, end of appointment. One day he said something (I don't recall what) and I answered "You don't HAVE 2 hours to listen to everything that is going on! You are dealing with incomplete data. I would love to tell you all of it, but we can't." He's the best I have found in the area. They get worse. I wish you were my doctor. – Dtomei


The Solution to FM is Right Under Our Noses!

Re: "The Next Generation of Fibromyalgia Treatments"

For many of us, the causes, and solution to FMS, is hiding in plain sight - right under our noses.

I had FMS for 20 years, plus other bizarre symptoms in addition to pain, trigger points, brain fog, balance issues and sleep disorders. I developed rashes, peripheral neuropathy, tremors, and more. Finally at the end of my rope, my integrative doctor heard a presentation by Omar Amin, PhD that bizarre symptoms can be caused by reactivity to dental materials. I found a biologic dentist who removed exposed fillings, I took supplements to calm immune reactions and candidiasis, treated hidden dental infections and had lymph drainage massage. Great improvement!

Next, Dx and treatment for persistent lyme. Generic doxy I had in the past was useless. New doctor Rx doxycyline monohydrate and zithromax, after a week remaining aches and trigger points gone! Still prone to small infections, Dx and treated for mold toxicity sensitivity. I just passed Red Cross Lifeguarding, 44 years after I passed it the first time. I rolled back the clock, and you can too. Genetic testing for methylation defects a clue.

So many of the symptoms of FMS and other chronic diseases are consistent with mercury toxicity, and treatments in the article can alleviate symptoms. But if you'd rather heal than manage it, remove the source, and support your body, brain and cells to get healthy again. Thousands and thousands have recovered like me, and millions can if we spread the word and also demand action. Demand the FDA BAN instead of enabling dental mercury poisoning and needless, tragic, costly, chronic disease...Thank you! – laurarussell2


Junk Food in the Diet

Re: "The Fibromyalgia Diet: Eating for a Better Quality of Life"

Though I agree that everyone needs to control the amount of junk food they eat in their diet, I do not agree that junk food is the cause of fibromyalgia and haven't even noticed that any junk that I have eaten makes my symptoms worse. I eat fairly healthy & do need to improve my diet but I believe stress & many other factors control how fibro affects us. Exercise is a definite plus, along with diet. From my experience, the only "diet" that helps is just watching what you eat just as anyone should.  – SEIowaGirl


My Opinion of These Supposed Researchers

Re: "Recommendations for Classification and Clinical Diagnosis of Fibromyalgia"

More of the same from those who bend their tools to reach their conclusions rather than letting the science speak for itself, statistics 101. How can they state that our symptoms are not explained by comorbities when research and other experts state otherwise? Rubbish. Beware my friends, this is strictly opinion, and not based on patient outcome, merely a paper supported by a band of thieves with secondary gain. – SiSiRN


Thoughts on FM Drugs Article

Re: "The Fibromyalgia Drugs Your Doctor (Probably) Knows Nothing About"

As always, I am incredibly impressed with the information posted on this site. The information you posted here is information I can take to my pain doctor for further exploration. – cphero


I am the living proof that pramipexol works positively on my fibro. My doctor gave me pramipexol because she thought that I had restless legs, later on I was diagnosed fibro. When I started with pramipexol it worked so good, I never felt that good. Because it worked so good and my doctor doesn't know why, she thought that I maybe had Parkinson's. But I don't have Parkison's. I have also read that dopamine-antagonist also increases growth hormone, and the more growth hormone the less fibro complaints! – johan30

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