Activate Now
 
ProHealth me-cfs Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Ten Tips to Simplify, Lower the Cost, and Optimize CFS and fibromyalgia Treatment

Ampligen Takes Big Step Forward - Becomes First Drug Approved Anywhere For Chronic Fatigue Syndrome

Patient Insights into the Design of Technology to Support a Strengths-Based Approach to Health Care.

Keep Learning – Even From Bed!

Iron Man: A Young Person's POTS ME/CFS Recovery Story Pt. I

Buying Drugs from Canada - A Good Choice for Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)?

VIDEO: Dear Healthy People: Fatigue

Researchers Identify Characteristic Chemical Signature for Chronic Fatigue Syndrome

SURVEY: Weight Management & Chronic Illness

Researchers find herpes strain in the nervous system

 
Print Page
Email Article

VIDEO: Nigel Speight: ME in Children - Part 2

  [ 3 votes ]   [ Discuss This Article ]
www.ProHealth.com • March 2, 2014




Transcript courtesy of the Dutch ME/CFS Association

Seminar 33: ME & children, Part 2 - Dr. Nigel Speight, consultant paediatrician. Broadcast 11th February 2014

Are there possible treatments for children with ME?

At the moment we have no curative treatment for ME, neither for children nor for adults. Hopefully some day we will have. If we can come clean and admit that we don’t have a curative treatment, we should probably stop using the word treatment and use the word ‘management’. And then we have to talk about different management strategies.

I personally have a feeling that the efficacy of Cognitive Behavioural Therapy and Graded Exercise has been, perhaps exaggerated and it certainly isn’t a curative treatment and its advantages can be actually quite marginal. There is a treatment in the form of immunoglobulin for which there is some evidence from randomized controlled trials. I think it is a great pity that these have not been repeated in recent years. But I have had some therapeutic success with immunoglobulin in my most severe cases and this is an area for future research.

Otherwise the management of a child with ME should be a simple, supportive, sympathetic, validating, empathetic approach in which the doctor, as I have said, gives continuity and support throughout the illness together with good advice.

What should absolutely be avoided with a child with ME?

There are some things that children with ME deserve protection from. They deserve protection from their own drive to do too much, because children naturally want to get better quickly and will exploit any temporary remission by tending to overdo things. So helping to advise them to protect them from those tendencies. After that of course there are many other sources of pressure on children not least from their parents, from their families, from their doctors and from the educational system. And again the main role of a paediatrician can be to protect the child from these pressures and allow them to convalesce at their own stage.

How can a child with ME be protected from being forced to go to school?

There is always a pressure from the educational system to try to get children with ME to go to school even when they are not well enough for this. I think this is where the doctors have to be firm and to override the pressures from the education. They have to say this child is not well enough for school. I sometimes say it is harder to have ME mildly than it is to have it severely because you have so many more options. So the child who is operating at about 70 % of full capacity can just about attend some school and therefore the doctor has to help the school to be very flexible and understanding about the condition. So they don’t keep sucking the child into more pressure.
 
It is sometimes easier for children to be off school completely and to have home tuition which is an ideal way of delivering education to sick ME children. And for them to allow themselves to catch up later when they recover from their ME.

What is the main instrument to protect children from being threatened with removal from their family?

There is a very unfortunate and regrettable tendency for some children with ME and their families to be subject to a sort of persecution by child protection agencies and this is extremely unfortunate and painful. The most important way to prevent this is the child being under a paediatrician who has made a confident clear diagnosis of ME, and for him to make it clear to all the other agencies that he or she believes in ME as a physical illness. This is not a psychological illness, it is not due to the parents being overprotective. And if the paediatrician gets it right, the child is protected; when they don’t get it right it is frightening to see the number of people who will then get it wrong from education to social work to psychiatry and I have personally been involved in 30 very, very distressing cases all due to this sort of failure to protect.

Copyright ME|cvs Vereniging 13




Post a Comment

Featured Products From the ProHealth Store
B-12 Extreme™ Mitochondria Ignite™ with NT Factor® Ultra ATP+, Double Strength

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products


Article Comments



Be the first to comment on this article!

Post a Comment


 
Natural Pain Relief Supplements

Featured Products

Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
MitoQ® MitoQ®
Powerful Antioxidant Support to Mitochondria
B-12 Extreme™ B-12 Extreme™
The Most Potent Vitamin B-12 on Earth
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Hydroxocobalamin Extreme™ Hydroxocobalamin Extreme™
The B-12 Your Brain Needs for Detox & Sharpness

Natural Remedies

Aches and Pains? A Simple Solution You'll Love Aches and Pains? A Simple Solution You'll Love
Reversing Neurodegeneration with a New Magnesium Compound Reversing Neurodegeneration with a New Magnesium Compound
The Brain Boosting and Fatigue Fighting B-12 The Brain Boosting and Fatigue Fighting B-12
Thyroid Health and Fibromyalgia Thyroid Health and Fibromyalgia
Physically and Mentally Exhausted? How to Restore Energy at Its Source Physically and Mentally Exhausted? How to Restore Energy at Its Source

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE AND SAVE 15% NOW*
Be the first to know about new products, special discounts and the latest health news. *New subscribers only

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2016 ProHealth, Inc. All rights reserved. Pain Tracker App  |  Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map