ProHealth me-cfs Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help

|
|

Trending News

How I Recovered From ME/CFS

The Functional Capacity Evaluation (FCE) and Your Disability Insurance Benefits

HIV, Heart Disease, Diabetes … and Chronic Fatigue Syndrome? The Unutmaz Project to Decode ME/CFS

Stanford Study Finds Brain Abnormalities in ME/CFS Patients

New Option For Chronic Fatigue Syndrome

SURVEY RESULTS: Cognitive Impairment

A Chronic Fatigue Syndrome Brain on Exercise – Not a Pretty Sight

Ask the Doctor: Why is the MTHFR gene important?

How to Jump-start and Sustain Energy Production in CFS

What is in a name? Comparing diagnostic criteria for chronic fatigue syndrome with or without fibrom...

 
Print Page
Email Article

New CFIDS Association of America Survey - Your Input is Essential!

  [ Not Yet Rated ]   [ 1 Comment ]
www.ProHealth.com • April 7, 2013


Editor's Comment: The CFIDS Association of America has posted a survey to help gather information about symptoms and treatments for ME/CFS for the upcoming FDA meeting. Input from the CFS/ME community is an essential component of this discussion. This survey is easy to fill out, and will only take a few minutes of your time.

~Source: CFIDS Association of America

The survey is designed for people living with ME/CFS and those closest to them, and poses open-ended questions to allow respondents to describe the symptoms, daily impacts that matter most, as well as share personal perspectives on treatment. Questions are worded in the same way the FDA has asked them; we've supplemented with some some additional questions on the same topics. You can answer with phrases or lists; you do not have to write complete sentences.

All survey responses are anonymous and confidential. We intend to present an analysis of the collective responses at the FDA meeting and at the May 22-23 meeting of the federal CFS Advisory Committee to better inform the federal health agencies about these issues.

You can find the survey HERE.



Please Discuss This Article:   Post a Comment 

Good Survey
Posted by: IanH
Apr 7, 2013
I found it generally easy to complete and able to add many comments. However the focus on "treatments" rather than research is premature in my opinion. So much more fundamental research is needed but the money isn't being put into it.

Medical science can learn more from this disease than any other contemporary illness.
Reply Reply
 
Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Our FREE
Newsletter
Subscribe Now!
Receive up-to-date ME/CFS & Fibromyalgia treatment and research news
 Privacy Guaranteed  |  View Archives

Save on Immune Support Supplements

Featured Products

Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Hydroxocobalamin Extreme™ Hydroxocobalamin Extreme™
The B-12 your brain needs for detox & sharpness
B-12 Extreme™ B-12 Extreme™
The Most Potent Vitamin B-12 on Earth
MitoQ® MitoQ®
Powerful Antioxidant Support to Mitochondria

Natural Remedies

Could a B-12 Deficiency Be Causing Your Symptoms? Could a B-12 Deficiency Be Causing Your Symptoms?
Why Berries Offer a Rainbow of Health Benefits Why Berries Offer a Rainbow of Health Benefits
The Curcumin Revolution: The Curcumin Revolution: "Golden" Ticket to Better Health
Research Links Green Tea to Weight Loss Research Links Green Tea to Weight Loss
Fatigue & Fibro Fog: Could You Have a B-12 Deficiency? Fatigue & Fibro Fog: Could You Have a B-12 Deficiency?

FIBROMYALGIA RESOURCES
What is Fibromyalgia?
Fibromyalgia 101
Fibromyalgia Symptoms
Fibromyalgia Treatments
| CFS RESOURCES
What is CFS?
ME/CFS 101
ME/CFS Symptoms
ME/CFS Treatments
| FORUMS
Fibromyalgia
ME/CFS
ADVANCED MEDICAL LABS
WHOLESALE  |  AFFILIATES
GUARANTEE
CONTACT US
PRIVACY
RSS
SITE MAP
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing