Activate Now
ProHealth me-cfs Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help

Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

Abundant Energy Summit: Dr. Myhill speaks about the role of mitochondrial function in ME/CFS

Alcohol intolerance in CFS - gives us a clue as to the mechanisms of fatigue

The "Mind Diet" Reduces the Risk Of Alzheimer’s Dementia. Might It Also Help the Brain Fog Found Wit...

Need Help with Pain Management? There's an App for That

Simplifying Nutritional Support in CFS & Fibromyalgia

How Walking to Bathroom Can Be Harder Than Running a Marathon: A Doctor’s ME/CFS Case Study

Ask the Doctor: Is CFS an onset to fibromyalgia? What is the difference?

How Multiple Chronic Illnesses Shaped One Woman Into a Patient Advocate

Fighting Fatigue with Ground-breaking French Oak Wood Extract

Is Your Body Your Friend and Healing Ally?

Print Page
Email Article

VIDEO: National Press Club Conference on MECFS

  [ 7 votes ]   [ Discuss This Article ] • February 11, 2014

On January 24, 2014 Llewellyn King held a National Press Club conference in Washington, D.C. Speakers included Dr. Andreas Kogelnik, of the Open Medicine Institute, and Ryan Prior, who is making a documentary about the illness, The Blue Ribbon: ME/CFS and the Future of Medicine.

Llewellyn King, whose political commentaries can be found on the White House Chronicle, hosts interviews with prominent figures in the ME/CFS community through his YouTube video series, the ME/CFS Alert. He is a veteran journalist, and he has applied his years of experience to help disseminate information about ME/CFS. 

In his brief introduction, Llewellyn King presented an overview of the disease. He stressed the seriousness of the illness and how little attention had been paid to it by media and by the government. "What is needed," said Mr. King, "is to comfort the patients, educate the doctors, and, because of its lack of funding, shame the government."

Dr. Andreas Kogelnik was the first speaker. He explained that his initial involvement with ME/CFS stemmed from his experience as a clinician, in which he saw several patients with the illness, but had no way to treat them. His clinic discouraged treatment of CFS because it wasn't a "real disease," but this was not enough to discourage him. Over the course of seven years, his knowledge of the illness grew, as did his experience treating it.

Dr. Kogelnik described how the current practice of medicine cannot deal with complex multi-system illnesses, such as ME/CFS. (Throughout the talk, Dr. Kogelnik referred to the illness as "chronic fatigue.") "The breadth of the disease is tremendous," he said. "But the understanding of physicians is appalling." 

For the journalists present, he had three take home messages:
  1. We need a tremendous re-engagement and re-education of physicians
  2. We need more funding for research
  3. We need a lot more support for patients
The second speaker was Ryan Prior, who contracted acute onset ME/CFS as a high school student. Ryan echoed Dr. Kogelnik's sentiment that "ME/CFS is the poster child for the kind of research we finally have the technology to sort through." His plans for his film, The Blue Ribbon, include using it to attract medical students, and train them as interns. "Patients have to wait two or three years," he explained," to see a specialist." If more doctors can be educated about the disease, while they are still medical students, then Ryan hopes this will take some of the burden off ME/CFS specialists, and help invigorate the field.

The remaining time was spent answering questions. Dr. Kogelnik specifically addressed how patients are diagnosed and treated. He also raised a very important point, which is that data about how the illness presents, the course it takes, and which treatments are effective already exists, but physicians are not keeping track.

Please Discuss This Article:   Post a Comment 

[ Be the first to comment on this article ]

Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Subscribe Now!
Receive up-to-date ME/CFS, Fibromyalgia & Lyme Disease treatment and research news
 Privacy Guaranteed  |  View Archives

Vitamins and Supplements for ME/CFS Support

Featured Products

Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
MitoQ® MitoQ®
Powerful Antioxidant Support to Mitochondria
B-12 Extreme™ B-12 Extreme™
The Most Potent Vitamin B-12 on Earth
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%

Natural Remedies

Vitamin E: Super Antioxidant We Only Thought We Knew Vitamin E: Super Antioxidant We Only Thought We Knew
The Most Powerful Natural Antioxidant Discovered to Date - Hydroxytyrosol The Most Powerful Natural Antioxidant Discovered to Date - Hydroxytyrosol
IBS, Crohn’s Disease, Colitis, and Other Digestive Disorders IBS, Crohn’s Disease, Colitis, and Other Digestive Disorders
How to Jump-start and Sustain Energy Production in CFS How to Jump-start and Sustain Energy Production in CFS
Sleep Like a Baby in Nature's Cradle Sleep Like a Baby in Nature's Cradle

What is Fibromyalgia?
Fibromyalgia Diagnosis
Fibromyalgia Symptoms
Fibromyalgia Causes
Fibromyalgia Treatments
Fibromyalgia Diet
Fibromyalgia Medications
M.E. & CFS
What is M.E./CFS?
M.E./CFS Diagnosis
M.E./CFS Symptoms
M.E./CFS Causes
M.E./CFS Treatments
M.E./CFS Diet
M.E./CFS Medications
What is Lyme Disease?
Lyme Disease Diagnosis
Lyme Disease Symptoms
Lyme Disease Causes
Lyme Disease Treatments
Lyme Disease Diet
Lyme Disease Medications
M.E. & CFS
Lyme Disease
General Health
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing