ProHealth me-cfs Vitamin and Natural Supplement Store and Health
Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help

|
|

Trending News

The Muscle-Brain Connection in ME/CFS Revealed

The Neurobiology of ME/CFS

Interview: Jennifer Brea Talks About Obstacles, Adjustments, and Inspiration

DNA Methylation Modifications Associated with Chronic Fatigue Syndrome

Adrenal Burnout? Naturally Boost Your Energy & Manage Stress

Smartphone app and specialised clinic for chronic fatigue patients

Curcumin Made 65X More Bioavailable - Modern Take on a "Golden" Spice Busts Brain Fog, Joint & Body ...

Post-Exertional Debility is an Important Symptom during Myalgic Encephalomyelitis

VIDEO: Dr. Newton Talks About Biomarkers and the Future of ME/CFS Treatment

Stress management skills, cortisol awakening response, and post-exertional malaise in Chronic Fatigu...

 
Print Page
Email Article

From Our Readers: Comments & Suggestions - 12/4/13

  [ 3 votes ]   [ Discuss This Article ]
www.ProHealth.com • November 30, 2013


From Our Readers: Comments & Suggestions - 12/4/13. Image by pixbox77 courtesy of freedigitalphotos.net
Image by pixbox77 courtesy of freedigitalphotos.net

POTS as a Subgroup of ME/CFS

Re: Postural Orthostatic Tachycardia and ME/CFS 

We find that about 12% of healthy women aged 17 to 40 suffer from POTS (more than 30 bpm or an increase to heart rate greater than 120 bpm within 10 minutes). Some have hypotension (I am not sure of the proportion but it’s around one third).

So while POTS is a subgroup of people with ME, they are probably the group with a tendency for POTS anyway.

They need test people with ME very early on in their illness because I suspect that the POTS is already present in the subgroup and worsens over time of the disease.

The cause is unknown but probably due to decreased cerebral flow which may be accentuated in ME/CFS. Some people do actually enter syncope. I believe this was some of the reason why many women fainted in the Victorian era. (Of course some may have had ME/CFS). The reason was vasovagal syncope.

(Addendum:  The OTHER reason besides POTS low cerebral blood flow is vasovagal syncope.)

~ Posted by: IanH. Nov 10, 2013


The OMI Controversy Continues

Re: Making Sense of the IOM Controversy

Erica thanks so much for this well written summary of the events surrounding the IOM Controversy. I did not even realize that there were two petitions available to sign related to this controversy. Yes, I have been a bit overwhelmed and confused by the sheer volume of information this controversy has raised. However, I thank you and other patient advocates who are able to so articulately communicate very legitimate concerns with this contract and the current ME/CFS definition. 

I would strongly encourage patients, family members and friends to consider signing both of these petitions (available on-line) to express your concerns as well. The more voices who are willing to speak up, even if just adding a name to an on-line petition, can have a significant impact on making us visible to the world by allowing the sheer mass of our numbers to be both seen and heard.

As has also been linked in this article, here is where you can sign up to be included in these two petitions:

Tell DHHS: We have suffered long enough

Stop the HHS-IOM contract and accept the CCC definition of M.E.

~Posted by: Beagle5 Nov 6, 2013

____________________

This is a very well written article. It explains clearly and thoroughly what all the noise has been about. I'm appalled at how experts in this disease can be so easily dismissed just so that a government organization can pursue their own agenda.

There has to be some way to put a stop to this! As you pointed out, there are people being put at significant risk because they are erroneously being diagnosed with ME/CFS. Then, there are people who spend years before being diagnosed - years that could have been spent in proper treatment, instead of being told "it's all in your head".

ME/CFS patients are often too sick to fight the good fight. However, having a clear understanding of the facts means I don't have to waste hours, days, weeks or even months trying to figure it all out on my own. Thanks to the work you have done, I know how I can add my voice to the fight. ~ Posted by: cphero Nov 9, 2013


Pharmaceuticals - Proceed with Caution!

Re: Brain Drain – Brain Gain: Dr. Lapp On The Cognitive Problems In Chronic Fatigue Syndrome And What To Do About Them

Due to the devastating effect chemicals have on people with MCS, those that suffer MCS along with ME/CFS FMS would be well advised to carefully monitor drugs they take even those that eminent Drs like Lapp recommend. I recommend you introduce them one at a time to observe their effects. ~Posted by: gbrown2, Nov 18, 2013



Please Discuss This Article:   Post a Comment 



[ Be the first to comment on this article ]




 
Free Chronic Fatigue Syndrome and Fibromyalgia Newsletters
Subscribe to
Our FREE
Newsletter
Subscribe Now!
Receive up-to-date ME/CFS & Fibromyalgia treatment and research news
 Privacy Guaranteed  |  View Archives

Save on Your Next Order

Featured Products

Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
B-12 Extreme™ B-12 Extreme™
The Most Potent Vitamin B-12 on Earth
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
MitoQ® MitoQ®
Powerful Antioxidant Support to Mitochondria

Natural Remedies

Front Line Defense Against Colds & Flu - Support for Healthy Immune System Balance Front Line Defense Against Colds & Flu - Support for Healthy Immune System Balance
The Revolutionary 'Good Fat' That Promotes Heart, Brain, Bone and Joint Health The Revolutionary 'Good Fat' That Promotes Heart, Brain, Bone and Joint Health
Rejuvenating the Brain - How PQQ Helps Power Up Mental Processing Rejuvenating the Brain - How PQQ Helps Power Up Mental Processing
Undenatured Type II Collagen - Chicken Soup for Your Joints Undenatured Type II Collagen - Chicken Soup for Your Joints
Broad Spectrum Protection Against Brain Aging Broad Spectrum Protection Against Brain Aging

FIBROMYALGIA RESOURCES
What is Fibromyalgia?
Fibromyalgia 101
Fibromyalgia Symptoms
Fibromyalgia Treatments
| CFS RESOURCES
What is CFS?
ME/CFS 101
ME/CFS Symptoms
ME/CFS Treatments
| FORUMS
Fibromyalgia
ME/CFS
ADVANCED MEDICAL LABS
WHOLESALE  |  AFFILIATES
GUARANTEE
CONTACT US
PRIVACY
RSS
SITE MAP
ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus
Credit Card Processing