Activate Now
 
ProHealth me-cfs Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

ACTION ALERT: Telling Your Chronic Pain Story Now is Important

Migraine, Fibromyalgia and ME/CFS

Daily Non-Negotiables for Life with Chronic Illness

Where Is Your Journey Taking You?

Cognition and Chronic Fatigue Syndrome (ME/CFS): Key Findings and Seminal Papers

Living with Purpose

#MillionsMissing: A Day of Global Protest

New FDA Approved Device for Insomnia May Be More Effective Than Drugs

SURVEY RESULTS: Should Opioids Be Restricted for Chronic Illness?

An ME/CFS and FM Recovery Story

 
Print Page
Email Article

VIDEO: National Press Club Conference on MECFS

  [ 7 votes ]   [ Discuss This Article ]
www.ProHealth.com • February 11, 2014


On January 24, 2014 Llewellyn King held a National Press Club conference in Washington, D.C. Speakers included Dr. Andreas Kogelnik, of the Open Medicine Institute, and Ryan Prior, who is making a documentary about the illness, The Blue Ribbon: ME/CFS and the Future of Medicine.

Llewellyn King, whose political commentaries can be found on the White House Chronicle, hosts interviews with prominent figures in the ME/CFS community through his YouTube video series, the ME/CFS Alert. He is a veteran journalist, and he has applied his years of experience to help disseminate information about ME/CFS. 

In his brief introduction, Llewellyn King presented an overview of the disease. He stressed the seriousness of the illness and how little attention had been paid to it by media and by the government. "What is needed," said Mr. King, "is to comfort the patients, educate the doctors, and, because of its lack of funding, shame the government."

Dr. Andreas Kogelnik was the first speaker. He explained that his initial involvement with ME/CFS stemmed from his experience as a clinician, in which he saw several patients with the illness, but had no way to treat them. His clinic discouraged treatment of CFS because it wasn't a "real disease," but this was not enough to discourage him. Over the course of seven years, his knowledge of the illness grew, as did his experience treating it.

Dr. Kogelnik described how the current practice of medicine cannot deal with complex multi-system illnesses, such as ME/CFS. (Throughout the talk, Dr. Kogelnik referred to the illness as "chronic fatigue.") "The breadth of the disease is tremendous," he said. "But the understanding of physicians is appalling." 

For the journalists present, he had three take home messages:
  1. We need a tremendous re-engagement and re-education of physicians
  2. We need more funding for research
  3. We need a lot more support for patients
The second speaker was Ryan Prior, who contracted acute onset ME/CFS as a high school student. Ryan echoed Dr. Kogelnik's sentiment that "ME/CFS is the poster child for the kind of research we finally have the technology to sort through." His plans for his film, The Blue Ribbon, include using it to attract medical students, and train them as interns. "Patients have to wait two or three years," he explained," to see a specialist." If more doctors can be educated about the disease, while they are still medical students, then Ryan hopes this will take some of the burden off ME/CFS specialists, and help invigorate the field.

The remaining time was spent answering questions. Dr. Kogelnik specifically addressed how patients are diagnosed and treated. He also raised a very important point, which is that data about how the illness presents, the course it takes, and which treatments are effective already exists, but physicians are not keeping track.






Post a Comment

Featured Products From the ProHealth Store
MitoQ® Ultra ATP+, Double Strength B-12 Extreme™

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products


Article Comments



Be the first to comment on this article!

Post a Comment


 
All Natural Deodorants

Featured Products

B-12 Extreme™ B-12 Extreme™
The Most Potent Vitamin B-12 on Earth
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function
Hydroxocobalamin Extreme™ Hydroxocobalamin Extreme™
The B-12 Your Brain Needs for Detox & Sharpness
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%

Natural Remedies

Energy Breakthrough - One Fibromyalgia Patient’s Fortuitous Discovery Energy Breakthrough - One Fibromyalgia Patient’s Fortuitous Discovery
Milk Thistle: Trusted Support for Health & Healing in a Toxic World Milk Thistle: Trusted Support for Health & Healing in a Toxic World
Prepare Yourself for Cold & Flu Season Prepare Yourself for Cold & Flu Season
How to Jump-start and Sustain Energy Production in CFS How to Jump-start and Sustain Energy Production in CFS
Probiotic Mint Promotes Healthy Gums & Teeth, Freshens Breath and Whitens Teeth Probiotic Mint Promotes Healthy Gums & Teeth, Freshens Breath and Whitens Teeth

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler
· Vendor Inquiries
· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE AND SAVE 15% NOW*
Be the first to know about new products, special discounts and the latest health news. *New subscribers only

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2016 ProHealth, Inc. All rights reserved. Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map