Activate Now
 
ProHealth me-cfs Vitamin and Natural Supplement Store and Health
Home  |  Log In  |  My Account  |  View Cart  View Your ProHealth Vitamin and Supplement Shopping Cart
800-366-6056  |  Contact Us  |  Help
Facebook Google Plus
Fibromyalgia  Chronic Fatigue Syndrome & M.E.  Lyme Disease  Natural Wellness  Supplement News  Forums  Our Story
Store     Brands   |   A-Z Index   |   Best Sellers   |   New Products   |   Deals & Specials   |   Under $10   |   SmartSavings Club

Trending News

ACTION ALERT: Telling Your Chronic Pain Story Now is Important

Migraine, Fibromyalgia and ME/CFS

Daily Non-Negotiables for Life with Chronic Illness

Update: S.483 Ensuring Patient Access and National Pain Strategy

Where Is Your Journey Taking You?

Cognition and Chronic Fatigue Syndrome (ME/CFS): Key Findings and Seminal Papers

Living with Purpose

#MillionsMissing: A Day of Global Protest

New FDA Approved Device for Insomnia May Be More Effective Than Drugs

Closer to a full understanding of Chronic Fatigue Syndrome

 
Print Page
Email Article

A New International Newsletter on ME/CFS Is Launched

  [ 25 votes ]   [ Discuss This Article ]
By Rob Wijbenga • www.ProHealth.com • June 28, 2014


A New International Newsletter on ME/CFS Is Launched
By Rob Wijbenga

The story of the ME Global Chronicle

The ME Global Chronicle, a free, bimonthly digital magazine grew out of the Dutch government-subsidized project, Science to Patients

Science to Patients started on November 2, 2011 with a webinar given by the Belgian clinician and researcher Dr. Kenny De Meirleir. The webinar was based on questions from patients. Dr. De Meirleir continued with the project to give nineteen more short talks.

After Dr. De Meirleir's talks, a Dutch cardiologist, Dr. Visser, took over. As there are very few experts on ME/CFS in the Netherlands and Belgium, the webinars were conducted in English, but subtitled in Dutch. We have featured many noted researchers and clinicians in the field. This year the webinars included the British doctors Nigel Speight and Charles Shepherd, as well as the well-known British researcher Julia Newton from Newcastle University, UK. In September, Leonard Jason from DePaul University, Chicago, will take over. All of the participants have offered an opportunity to ask questions in chatwing-sessions, which allows for even greater access to these experts.

As it was important to reach as many patients and patient advocates as possible, a mailing list was composed of scientists, researchers, patient advocates and organizations from all over the world, in the hope that they would help disseminate the links to the webinars. To date, the webinars have been viewed 140,000 times.

In the autumn of 2013, the coordinator of the project Science to Patients, Rob Wijbenga from the Netherlands, noted that important initiatives, fundraisers and research were going on all over the world, but on an independent basis. He thought it might be a good idea to collect news from all over the world and send out a newsletter to all the addresses on the Science to Patients list. The idea was greeted with enthusiasm, but cooperation was rather scarce. He was on the verge of giving up when three others offered to help. The Belgian ME-patient Eddy Keuninckx took up the challenge and worked hard to design the beautiful layout. Our first issue was released in January 2014.

Currently David Egan from Northern Ireland is on the editorial staff, as well as Janice Roseingrave from New Zealand. (She now lives in Brussels.)

Increasingly,  individuals and organizations are contributing articles, which is exactly what the magazine is meant for. Connecting and sharing are the two slogans in the coat of arms of the ME Global Chronicle. The magazine is intended to be a shared initiative from and for everybody fighting for the recognition and treatment of the horrendous plague, ME.

Let’s hope it will grow to become a true international resource for spreading global news and information about ME.

Written contributions can be sent in Word to contribute@let-me.be

For a free subscription contact subscribe@let-me.be




Post a Comment

Featured Products From the ProHealth Store
Energy NADH™ 12.5mg Ultra ATP+, Double Strength B-12 Extreme™

Looking for Vitamins, Herbs and Supplements?
Search the ProHealth Store for Hundreds of Natural Health Products


Article Comments



Be the first to comment on this article!

Post a Comment


 
All Natural Deodorants

Featured Products

B-12 Extreme™ B-12 Extreme™
The Most Potent Vitamin B-12 on Earth
Mitochondria Ignite™ with NT Factor® Mitochondria Ignite™ with NT Factor®
Reduce Fatigue up to 45%
Ultra ATP+, Double Strength Ultra ATP+, Double Strength
Get energized with malic acid & magnesium
MitoQ® MitoQ®
Powerful Antioxidant Support to Mitochondria
Energy NADH™ 12.5mg Energy NADH™ 12.5mg
Improve Energy & Cognitive Function

Natural Remedies

Running on Empty? Fuel Up with NADH Running on Empty? Fuel Up with NADH
The Revolutionary 'Good Fat' That Promotes Heart, Brain, Bone and Joint Health The Revolutionary 'Good Fat' That Promotes Heart, Brain, Bone and Joint Health
Stop Bacteria With Nature's Antibiotics Stop Bacteria With Nature's Antibiotics
Milk Thistle: Trusted Support for Health & Healing in a Toxic World Milk Thistle: Trusted Support for Health & Healing in a Toxic World
Probiotic Mint Promotes Healthy Gums & Teeth, Freshens Breath and Whitens Teeth Probiotic Mint Promotes Healthy Gums & Teeth, Freshens Breath and Whitens Teeth

CONTACT US
ProHealth, Inc.
555 Maple Ave
Carpinteria, CA 93013
(800) 366-6056  |  Email

· Become a Wholesaler

· Affiliate Program
SHOP WITH CONFIDENCE
Credit Card Processing
SUBSCRIBE AND SAVE 15% NOW*
Be the first to know about new products, special discounts and the latest health news. *New subscribers only

CONNECT WITH US ProHealth on Facebook  ProHealth on Twitter  ProHealth on Pinterest  ProHealth on Google Plus

© 2016 ProHealth, Inc. All rights reserved. Store  |  Customer Service  |  Guarantee  |  Privacy  |  Contact Us  |  Library  |  RSS  |  Site Map