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Chronic Fatigue Syndrome & Myalgic Encephalomyelitis Advocacy


Chronic Fatigue Syndrome and Myalgic Encephalomyelitis Advocacy Advocacy plays an important role in any illness, but for illnesses that are not well accepted in the medical community, advocates are crucial.

Advocates are responsible for lobbying representatives to help increase research funding. They sponsor conferences, which allow researchers to share their findings and provide an avenue for physicians to stay up to date on the latest developments.

Advocates organize fund-raising campaigns for research, and increase public awareness of the illness and how it affects patients. They initiate petition drives, start support groups, and post commentary on their blogs about events that directly affect the welfare of patients.

On a personal level, advocates are responsible for making sure ill children and their families are protected, and their civil rights upheld.

Many people are too ill to do advocacy work, but anyone can participate by signing a petition, or sending an email, or by a posting a tweet when events that affect our community arise.

The cumulative effect of advocacy efforts, from organizing major fund-raising drives to simply signing a petition, is that all of our lives are made easier.

Advocacy Sites for Chronic Fatigue Syndrome & Myalgic Encephalomyelitis:


ME Advocacy
http://www.meadvocacy.org

Occupy CFS
http://www.occupycfs.com
Thoughts About ME
http://thoughtsaboutme.com

Onward Through the Fog
http://cfstreatment.blogspot.com


Chronic Fatigue Syndrome & Myalgic Encephalomyelitis Advocacy News:


Tribunal Orders Release of PACE Data
A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient who requested it. The ruling has important implications for ME/CFS patients both in the UK and worldwide.
VIDEO: Tom Kuhn and the Importance of Advocacy Organization
Llewellyn King interviews lobbyist Thomas Kuhn.
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