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Chronic Fatigue Syndrome & Myalgic Encephalomyelitis Advocacy


Chronic Fatigue Syndrome and Myalgic Encephalomyelitis Advocacy Advocacy plays an important role in any illness, but for illnesses that are not well accepted in the medical community, advocates are crucial.

Advocates are responsible for lobbying representatives to help increase research funding. They sponsor conferences, which allow researchers to share their findings and provide an avenue for physicians to stay up to date on the latest developments.

Advocates organize fund-raising campaigns for research, and increase public awareness of the illness and how it affects patients. They initiate petition drives, start support groups, and post commentary on their blogs about events that directly affect the welfare of patients.

On a personal level, advocates are responsible for making sure ill children and their families are protected, and their civil rights upheld.

Many people are too ill to do advocacy work, but anyone can participate by signing a petition, or sending an email, or by a posting a tweet when events that affect our community arise.

The cumulative effect of advocacy efforts, from organizing major fund-raising drives to simply signing a petition, is that all of our lives are made easier.

Advocacy Sites for Chronic Fatigue Syndrome & Myalgic Encephalomyelitis:


ME Advocacy
http://www.meadvocacy.org

Occupy CFS
http://www.occupycfs.com
Thoughts About ME
http://thoughtsaboutme.com

Onward Through the Fog
http://cfstreatment.blogspot.com


Chronic Fatigue Syndrome & Myalgic Encephalomyelitis Advocacy News:


VIDEO: PACE: Revised Recovery Rates
A short, entertaining video explains the basic methodological problems with the PACE trial
#MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome
Patients with ME/CFS Urge NHS to Adopt Scientifically-Sound Approaches to Treatment.
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