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Chronic Fatigue Syndrome/ME resource providing news, me-cfs treatment information, medical abstracts and a support community for those coping with Chronic Fatigue Syndrome/ME.
 
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Organizations for Chronic Fatigue Syndrome and Myalgic Encephalomyelitis


INTERNATIONAL AND TRANSNATIONAL ORGANIZATIONS


The International Association for CFS/ME (IACFS/ME)
27 N. Wacker Drive Suite 416
Chicago, IL 60606
Phone: (847) 258-7248
Fax: (847) 579-0975
Email:

The IACFS/ME is a non-profit international organization geared towards the professional community. The mission of the IACFS/ME is to promote, stimulate and coordinate the exchange of ideas related to CFS, ME and fibromyalgia (FM) research, patient care and treatment. The annual fee for Regular Professional Membership is $100 with a two year membership fee of $150. The fee for a Lifetime Professional Membership is $1,000. Associate Membership is for students, patients and their families, and other interested individuals. The annual fee for Associate Membership is $40 with a two-year membership fee of $60.

The IACFS/ME publishes a peer review online journal, the Bulletin of the IACFS/ME, which accepts original research papers, case reports, short notes, reviews of the literature, and book reviews. Letters to the Editor are also welcome. Abstracts are available without charge online.

The IACFS/ME holds a yearly conference.



EUROPE


European ME Alliance

The European ME Alliance is a collaboration of ME support charities and organizations in Europe which intend to provide a common view and the scientific facts regarding the neurological illness myalgic encephalomyelitis (ME/CFS). Member countries include: Belgium, Denmark, Germany, Holland, Ireland, Italy, Norway, Spain, Sweden, Switzerland and the U.K.


UNITED STATES - NATIONAL


The Solve ME/CFS Initiative (SMCI)
P.O. Box 220398
Charlotte, NC 28222-0398
Telephone: (704) 365-2343
Email:

The Solve ME/CFS Initiative (SMCI) – formerly the CFIDS Association of America – has been the leading organization focused on myalgic encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) since being founded in 1987. SMCI envisions a world free of ME/CFS and works steadfastly to make this disease understood, diagnosable and treatable.

SMCI seeks to actively engage the entire ME/CFS community in research, works to accelerate the discovery of safe and effective treatments, and strives for an aggressive expansion of funding towards a cure.



The National CFIDS Foundation
103 Aletha Road
Needham, MA 02492
Phone: (781) 449-3535
Fax: (781) 449-8606
E-mail:

The National CFIDS Foundation is a national non-profit organization founded in 1997. The Foundation's objective is to fund research to find a cause, expedite treatments and eventually a cure, as well as providing information, education, and support to people who have CFIDS (chronic fatigue and immune dysfunction syndrome also known as chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME) and many other names).

The National CFIDS Foundation's dues are $30/year. (Waivers are available upon request.) The Foundation publishes a quarterly newsletter, The National Forum. Selected articles from back issues and research updates are available on their website.



PANDORA Org (Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy)
PANDORA Org, Inc.
3209 Charlesgate Ave. S.W.
Wyoming, MI 49509
Phone: (231) 360-6830

PANDORA Org is a grassroots advocacy organization that promotes awareness of ME/CFS, Fibromyalgia, Gulf War illnesses (GWI), multiple chemical sensitivities (MCS) and chronic Lyme disease. PANDORA Org cooperates with other patient organizations to advocate for physician education,increased government-funded research and government policies that make advancement in improving patients' quality of life.


UNITED STATES - RESEARCH


Whittemore Peterson Institute
University of Nevada Reno MS 0552
1664 N. Virginia St.
Reno, NV 89557-0552
Phone: (775) 682-8250
Fax: (775) 682-8258
Email:

"The Whittemore Peterson Institute for Neuro-Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability."


Simmaron Research Foundation
948 Incline Way
Incline Village, NV 89451
Phone: (775) 298-0030
Fax: (775) 298-0031
Email:

"Simmaron Research is a nonprofit organization dedicated to advancing scientific research, potentially leading to the discovery of diagnostic markers and effective treatments that will ultimately improve the quality of life for people suffering from CFS/ME and related neuroimmune disorders." Simmaron is an ambitious international research collaboration between Dr. Peterson, Griffith University (Australia),Wisconsin Viral Research Group, Columbia University Mailman School of Public Health & Center for Infection and Immunity, George Washington University, Workwell Foundation, and Ohio State University.


UNITED STATES - REGIONAL


Note: Most regional organizations and support groups provide information packets, referral services, hotlines, and up-to-date state and local information.

NORTHEAST


The Connecticut CFIDS & FM Association, Inc.
P.O. Box 3010
Milford, CT 06460
Phone InfoLine: (800) 952-2037
Email:

Massachusetts CFIDS/ME & FM Association
Mailing address:
P.O. Box 690305
Quincy, MA 02269-0305
Phone: (617) 471-5559

NJCFSA (New Jersey)
P.O. Box 477
Florham Park, NJ 07932
NJCFSA Helpline: (888) 835-3677 (during business hours)

Vermont CFIDS Association
P.O. Box 3162
Burlington, VT 05408
Phone: (802) 881-3821

MIDWEST


Chronic Fatigue Syndrome, Fibromyalgia, & Chemical Sensitivity Coalition of Chicago (CFCCC)
P.O. Box 277
Wilmette, IL 60091
Phone: (773) 650-1332

The CFCCC was organized for the purposes of support, education, and advocacy for people with chronic fatigue syndrome, fibromyalgia, and chemical sensitivity. Their website provides contact information for support groups for patients, families, and caregivers; phone buddies; information/presentations for school nurses, social workers, and other professions; information and referrals to resources; newsletter, The Canary Times; a resource directory; and lending library. While most resources are located in the Chicago area, the website also provides a number of national resources as well.


Wisconsin ME/CFS Association
747 Lois Drive
Sun Prairie, WI 53590
Phone: (608) 834-1001
Email: or


SOUTH


The Northern Virginia Chronic Fatigue Syndrome / ME, Fibromyalgia, and Orthostatic Intolerance Support Group

CFS/FM Organization of Georgia


WEST


The Rocky Mountain CFS/ME & FM Association
7020 E Girard Ave, Suite 207
Denver, CO 80224
Phone: (303) 423-7367
Email:

California Capital CFIDS Association (CCCA)
P.O. Box 660362
Sacramento, CA 95866
Phone: (916) 484-3788
Email:

OFFER (Utah)
1002 E. South Temple, Suite 408
Salt Lake City, UT 84102
Phone: (801) 328-8080
Fax: (866) 555-1112
Email:

CFS and FM Support Group of Dallas/Ft Worth
513 Janann St
Euless, TX 76039

Fibromyalgia-ME/CFS Support Center, Inc
Tamara Staples, Group Leader
Phone: (503) 476-9520
Email:
Tami Stackelhouse, Co-Leader
Phone: (971) 832-9322
Email:


ABROAD


ARGENTINA


Asociacion Civil Fibroamerica

Enfermedades Cronicas Socialmente Invisible


AUSTRALIA - NATIONAL AND REGIONAL


The Alison Hunter Memorial Foundation
P.O. Box 6132
North Sydney NSW 2059
Australia
Telephone/Fax +61 2 9958 6285

Alison Hunter was the founding president of ME Young Adults (MEYA), established in 1992 at Royal North Shore Hospital, Sydney. The Foundation is primarily concerned with advocacy and research. The website contains a very large data base with abstracts of all research conducted on ME/CFS between 1956 and the present.


ME/CFS Australia Ltd.
Postal Address: P.O. Box 7100, DANDENONG
VIC 3175
Office Address: Suite 5, 106 Foster
Street, DANDENONG VIC 3175
Phone: (03) 9793 4500

ME/CFS Society WA
The Centre for Neurological Support
The Niche, 11 Aberdare Road
Nedlands, Perth. Western Australia 6009
Tel: 08 9346 7477
Fax: 08 9346 7534

ME Chronic Fatigue Syndrome Society of NSW Incorporated
Postal Address: P.O. Box 5403
Chatswood NSW 1515
Office Address: Suite 305A, 425 Victoria Ave
Chatswood NSW 2067
Phone: (02) 9904 8433
ABN: 28 688 072 304

Northern Territory ME/CFS Society
Office Address: 2/240 Chapel Street Prahran, VIC, 3181
Postal Address: P.O. Box 120 Prahran VIC 3181
Reception: 9529 1344
(Reception is avalaible Tuesdays - Fridays 9.00am - 4.00pm)
Support Line: 9529 1600
(Support Line is avaliable Tuesdays - Fridays 9.00am-4.00pm)
Email:

South Australia ME/CFS Society
Mailing address: GP.O. Box 383
Adelaide
South Australia 5001
Office: 266 Port Road
Hindmarsh
South Australia 5007
Ph: (08) 8346 3237 ('834 MECFS')
Support Line: (08) 8346 3237
SA country callers: Ph: 1300 128 339 (local call)
  ME/CFS/FM Support Association Qld Inc.St Vincents Hospital
27 Scott Street
Toowoomba Qld 4350,
Australia
Phone: (07) 4632 8173 or (07) 4659 5239
Fax: (07) 4632 8173
Email:

ACT ME/CFS Society
Building 1 (first on the left)
Pearce Community Centre
Collett Place (opposite Pearce shops on Hodgson Crescent)
Pearce
Postal Address
P.O. Box 717
Mawson Act 2607
Phone: 02 6290 1984
Fax: 02 6290 4475

ME/CFS Society Victoria
Office Address:
Suite 5, 106 Foster Street
Dandenong VIC 3175
Postal Address:P.O. Box 7100
Dandenong VIC 3175
Phone: Support Line: (03) 9791 2199
Administration: (03) 9791 3100
Email:

ME/CFS Society Tasmania
(contact Victoria office above)


BELGIUM


ME Society - Belgium

CANADA


FM-CFS Canada
310-1500 Bank Street
Ottawa, Ontario K1H 1B8
Phone: (877) 437- 4673
Email:

National ME/FM Action Network
512, 33 Banner Road
Nepean, ON K2H 8V7
Phone: (613) 829-6667
Fax: (613) 829-8518
Email:

Nightingale Research Foundation
Dr. Byron Hyde, Chairman
121 Iona Street
Ottawa, Ontario K1Y 3M1
Canada
Fax: (613) 523-1958
Email: info@nightingale.ca

Brockville M.E. Association
42 George St., Box 254,
Brockville, Ontario K6V 5V5
Phone: (613) 342-5333
Email:


DENMARK


ME/CFS Foreningen (ME/CFS Association)
RÅDHUSTORVET 1, 1.
SAL 3520 FARUM
Tel: 44 95 97 00
Email:

Foreningen for myalgisk encefalomyelitis (ME Association)
Telefonisk træffetid på tlf. 29 37 05 59:
Email:


FRANCE


Association Française du Syndrome de Fatigue Chronique et de Fibromyalgie
Maison des Associations
72 rue Royale - 59000
LillePhone : 06 45 21 33 88
Email:


GERMANY


Fatigatio e.V.: Bundesverband Chronisches Erschöpfungssyndrom (CFS/CFS/ME/ME)
Albrechtstr.15 D-10117
Berlin
Tel: 030 - 310 18 89 -0
Fax: 030 - 310 18 89-20

ME/CFS Actuell

Bundnis ME/CFS
Email:


GREAT BRITAIN


The ME Association
7 Apollo Office Court
Radclive Road
Gawcott
Bucks MK18 4DF
Tel: 01280 818964
Email:

Action for M.E.
P.O. Box 2778
Bristol BS1 9DJ
Tel: 0845 123 2380 (lo-call)
or 0117 927 9551
Fax: 0117 927 9552
Tel: 0845 123 2314
Email:

Association for Young People With ME (AYME)
10 Vermont Place
Tongwell
Milton Keynes MK15 8JA
Telephone: 08451 23 23 89
Email:

Blue Ribbon for the Awareness of ME (BRAME)
30 Winmer Avenue
Winterton-on-Sea
Great Yarmouth
Norfolk NR29 4BA
U.K.
Tel/Fax: 01493 393717
Email:

Invest in ME
P.O. Box 561
Eastleigh
Hampshire SO50 0GQ
U.K.
FAX: 02380 000040
Email:

ME Research U.K.
The Gateway, North Methven Street
Perth PH1 5PP
U.K.
Telephone: 01738 451234
Email:

Huge list of resources, including national and international charities, and support groups throughout the UK.


Partnership for Research in CFS and ME

25% ME GROUP (Representing the Severely Ill)
21 Church Street
Troon
Ayrshire KA10 6HT
Phone Main Office: 01292 318611

Tymes Trust (Representing Young People)
P.O. Box 4347
Stock
Ingatestone CM4 9TE
Phone: 0845 003 9002

Young Action Online (in partnership with Tymes Trust)


IRELAND


Irish ME Trust
Carmichael House
North Brunswick Street
Dublin 7
Telephone: Lo-call 1890 200 912
Int. tel: 00 353 1 401 3629
Int. fax: 00 353 1 401 3736

Irish ME/CFS Association
P.O. Box 3075
Dublin 2
Tel: 01-2350965
Email:

Northern Ireland ME Association


SCOTLAND


The ME Association/Scotland


WALES


Welsh Association of ME/CFS Support (WAMES)
Tel: 01970 636515
Email:


HOLLAND


ME/CVS Verniging (ME/CFS Association) ME / CFS Association
4 th Hambaken 89
5231 TX Den Bosch
Phone: 073-6425864, 06-19710184, 0578-618697
Email:

ME/CFS Foundation
Nordic Grove 16
1211 BG
Hilversum
The Netherlands
Tel: 035-6211290 (business days from 10:00-12.30)
Fax 035-6211219
Email:

Start Pagina (Comprehensive Dutch resources)


ITALY


AMCFS
via Luigi Marangoni, 35
27100 Pavia
Email:

CFS Italia
Email:


JAPAN


Japanese Society of Fatigue Science

CFS Network Japan


NEW ZEALAND


Associated New Zealand ME Society (ANZMES)
ANZMES Inc.
P.O. Box 36-307
Northcote, Auckland
New Zealand
Phone: (09) 269 6374
Email:


NORWAY


Norges Myalgisk Encefalopati Forening
Kontoradresse
Kr. Augustsgt. 19
0164 Oslo Telefon: 22 20 34 24
Kontortid: tir - ons - tor
Telefontid kl. 11.30 - 15.30
Email:

MEandYou Foundation


SOUTH AFRICA


The ME Association of Southern Africa
P.O. Box 1802
Umhlanga Rocks 4320
South Africa
Email:


SPAIN


Fundación para la Fibromialgia y el Síndrome de Fatiga Crónica
Passeig Manuel Girona
3 33- BARCELONA (Spain)
Tel: +34-93- 280 46 26/605 85 25 91
Email:

Associació Catalana d'Afectats per la Síndrome de Fatiga Crónica / Encefalomielitis Miàlgica
Plaça Comas
13-14 baixos 08028
Barcelona
Telèfon: 933.214.654.
Atenció els dilluns i dimecres de 17:00 a 19:00 i dijous de 11:00 a 13:00

AFINSYFACRO
Centro Social "Ramón Rubial"
C/Azorí n 32-34
Móstoles
28935 (Madrid)
Tel: +34 91 613 4790
E-Mail:

Asociacion Madrileña de Encefalomielitis Mialgica / Sindrome de Fatiga Cronica y Disfuncion Immune
Tel: 650 37 31 33
Email:

For Fibromyalgia and Chemical Sensitivities:

AFIBROM
C / Clara del Rey, 4, 1 ° A - Esc CW28002
Madrid
Spain
Tel: +34 913567145


SWEDEN


RME- Riksfö reningen fö r ME-patiente (RME - the National Association for ME patients)
Box 11037
04 21
Göteborg
Telefone: 031-15 58 99
E-post:

Association of ME


SWITZERLAND


Club ME / CFS Switzerland
CH-8000 Zurich
Switzerland
Phone: +41 78 616 96 80
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