I would like to chat to someone who has like me had the opp and compare the pros` and cons` of this procedure

Hi Roo just thought i would say hi.. how r u feeling after ur op hope ur ok thinking of u hope to chat soon corrine x

Hi Roo....I'm new to board but would be interested in how you dealt with the opp and the after affects. It would help myself prepare for future steps.

hi ho what would you like to know?

hello stranger . how` s hubby doing not seen you online for a while keep smiling ROGER AKA ROO

How far had your symptoms progressed before DBS was an option? Was is suggested to you by your doc or was it something you had to request? Thank you for sharing.

i first refused the opp(dbs) a year befor i had it... but another 12 months went by and not to put it too bluntly i was so bad i had nothing to loose so my specialist got me on a trial i had to agree to go into hospital every year and be tested for evaluation. i was the fist to have this opp at the QUEENS MEDICAL CENTRE ,NOTTINGHAM .at08.30 they gave me a sedative and put this bit of mecano on my head it was rather tight,then they took me to a scanner to check me hat was on strieght.there was two teams one lot from liverpool who i was told were red hot at this proceedure i was a bit aprehensive as the day befor they had desided to local me insted of knock me out cold. they then got me comfy and bolted me to the table part2 will follow soon

what do you say to the man who is about to cut your head open. what i do remember is that i thought to myself oh damn(or words to that effect ) whatever happens happens i had been as i said in part one bolted to this table and they shaved my head i was very fortunate that there was a nurse on hand just to hold my hand through the opp i tell you that bit of human contact was amazing,the injectioms to my head were painfull there were 4 or 6 at the start. they covered my face with a plastic sheet or something for some time i kept my eyes shut. all i could hear was a man with a deep voice like paul robeson chating about what prosedure to do next. some time passed and i was amazed my conasultant was stood in front of me then they switched it on talk about heaven my concreat arms went normal it was a weird feeling. my consultant and i started this marathon of q1uestions he would everytime they made a change or put the electrodes in another position he would test my cogwheeling and i had to repeat my name and addressAND SAY IF MY VISION WAS BLURED. then i was told they had finnished the left side i looked at the clock ill never forget it it was two thirty in the afternoon. i thought to be honest i thought for a moment that i was not going to get through this i was so tired totaly knackerd do not remember much more only when they told me it was time to put me under to implant mt battery box i was rather pleased. i came round in the recovery room at nine pm at night. it was not swiched on till the following morning i was over a year long period turned up by one microvolt ever couple of weeks it was a long but worthwile road to travel. my standard of life is much improved medication is down drastickly and the best thing of all is the nightime i can now turn over in bed and go to bed with such ease it was worth all the hassel of the opp and aftercare thanks to the team at theQ.M.C

Hi,

I have been reading posts pretty regularly for the past two years. My husband was diagnosed then but most likely had the wonderful disease many years before. PD is a process that no one can really describe or prepare you for isn't it? So many posts say "No one with PD is the same", and "It is different for everyone." How true. Just a path you take one step at a time.

BUT (I always have a big BUT ha ha) Can someone tell be about the difficulty rolling over in bed? My hubby has a terrible time with shoulder pain. This has been going on for months. This, combined with overall stiffness, makes him grunt and groan when he rolls over. Most often he does not move all night long. Is this the reason others with PD find it difficult to roll over? Shoulder pain anyone? He even needs assistance in washing his hair and taking off/putting on ashirt.

He still refuses to take medication. His tries at them have made him feel worse he says. He stopped seeing the neurologist and is only going to our GP. He did finally agree to go for a physical therapy eval for his shoulder. He is having constipation problems and also decided to have the colonoscopy thing done. I keep telling him it is classic PD symptoms. It is a good idea to have it checked anyway so he is having this all done next week.

But back to rolling over in bed?? Shoulder pain?? Any comments? Parkinson's causing this maybe?

for as long as i can remember prior to undergoint D,B,S i had to sleep on my back i tell you i could not of roled onto my side fo a million pounds . but two nights after my opperation i could get into bed and turn over and over and over. when i finaly came home the first night i was like a little boy with a new toy my partner had never seen me do such a basic thing over and over i went it was heaven . so the answer to your question is its deffo the pd, take care ROO

I have heard a few horror stories about dbs in my case i have seen a 65% increase
in my overall well being. I am still aware i have parkinsons but am able to do things i could not before the operation. I just finished building a store shed 8 x 12 by myself. found out i do have problems with certain power tools which cause a magnetic field. and find i have lack of ambition


KEN Debkenl@gmail.com

Had dbs surgery 10/05. lot of good. not much bad.

My Dad is almost 84. He has never responded to any of the meds for Parkinsons. So that said he had nothing to loose since he had gotten so bad the disease was ruling his life.

He lives in Tucson Az. His Surgeon is Thomas Norton. This man is wonderful. I can't say enough about him. This man was at my Dads side from pre op to recovery. He actually pushed the bed to OR.

Anyway, when Dad came from surgery the first thing I saw was that his eyes were open and he wasn't shaking.

We are so happy but this should not be an option if medication works for you.