I’m a retired dairy farm wife, mother of five and grandmother of nine. Since my diagnosis in 1998 I read everything I can find about Fibromyalgia. From what I’ve read I think I might have had a mild form of FMS for decades, maybe even in childhood. Some writers claim childhood “growing pains” are a start of arthritis. I had many growing pains, was always clutzy and slow moving. As a young mother I frequently had leg and back pains by the end of the day.
When the kids were small, my exhaustion was thought to be a normal result of having babies fairly close together. Extra vitamins and a couple of B12 shots were prescribed. A few years later when leg and back pains became a serious problem, my doctor shrugged and told me it was just arthritis and said to take aspirin.
Next came a diagnosis of allergies and years of weekly shots. When aspirin no longer controlled the arthritis, the doctor ordered weekly shots which weren’t compatible with the allergy medication and resulted in excrutiating crampy pain through my back, hips, and legs for 12 hours following each one. So I stopped both shots, against the doctor’s advice. “You’ll be back! ” he declared.
Over the next decade, nervousness, extreme sleepiness and always feeling as if I were packed in ice was thought to be hypothyroidism and low doses of thyroid supplement was prescribed. This helped a lot until a new doctor replaced the former one and ordered other tests. These showed me to be just over the line of normal so no more supplement was available.
Later hypoglycemia was suspected because of light headedness at times; these tests also proved to be normal. When I first sought help for the crazy-leg discomfort, the doctor spoke of neuritis or maybe fibrositis and prescribed B complex vitamins.
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I’ve heard FMS referred to as “the lonely disease.” I agree. Over the years I’ve had symptoms, tests and medications for allergies, heart problems, flu viruses, hormone deficiencies, anemia, and others. One doctor giggled, “My goodness
you’re a mess.” I can still see his smirk. After negative stress test results, a heart specialist shrugged and said, ” Just make more laps around the block!” Evidently both of these doctors thought it was all in my head and I began to wonder too…but if it’s all in my head, why does every muscle in my body hurt so much?
Specialists believe FMS flares are brought on by stress. I’ve had very stressful times in my life. ..too numerous and severe to describe. My most recent flare came after knee replacement surgery July 5, 2000. The first days I was kept comfortable with narcotic pain killers. But the prescribed medicines ofUltram and Sinemet that had been controlling the almost unbearable crazy-leg misery going up through my back and into the pit of my stomach wasn’t compatible with narcotics, and so I had to stop the FMS meds.
The next weeks I gradually substituted Tylenol for the narcotics, underwent strenuous therapy, and waited until I could resume my FMS meds. Now after six weeks I’m completely off the narcotics and getting the FMS back under control.
I find Malic acid and Magnesium give me more pep than I’ve had in a long time. Glucosamine and Chondroitin help the general arthritic pain better than any prescription drugs I’ve tried. I also take MSM…I remember when I was a child my Dad took pure sulfur powder for his joint pains. Sam-E helps my fiber-fog and depression. By day three after taking Sam-E I felt like a black cloud had lifted.
Recently I bought “FM RELIEF which combines the above products except for the Sam-E, and the Neuro-Bl2 will replace the Sam-E. I haven’t used it long enough to know the results but I’m hopeful!
I’m trying to learn all that I can. about Fibromyalgia, and I’m so thankful that a FMS support group was near when I needed one.
Thank you for putting me on your mailing list; there’s so much information in your newsletters, flyers and catalogs.