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VIDEO: But You Don’t Look Sick

Living With Chronic Pain (Ehlers Danlos Syndrome)
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Like fibromyalgia, Ehlers Danlos Syndrome (EDS) is an invisible disease, with chronic pain one of its predominant symptoms. EDS, a genetic connective tissue disorder caused by structural deficiencies in collagen, affects more women than men.  Again, like fibromyalgia, there is no cure.

In this video, Rei Haycraft shares what it’s like living with EDS.  You will recognize many of her comments:

  • Some people don’t even believe you.
  • The pain is all in your head.
  • You’re just looking for attention.
  • I don’t look sick, so it’s easy for people to make assumptions.

You may think we’re weak,
but we’re stronger than you’ll ever know.

 

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