Change.org is “an online hub for social change that runs online communities for major causes.” Currently its Health Care causes community features a petition that ME/CFS/FM and prostate cancer patients & advocates may sign, for direction to elected officials in the House & Senate and the FDA, NIH, CDC, etc., calling on them to:
“Direct the DHHS to allow the NIH and FDA to publish their papers. Preventing these papers from being published diminishes the trust of CFS Patient groups in the CDC and its willingness to deal honestly with this disease.”
To review the petition, go to “XMRV: Allow Science to Progress” at
http://healthcare.change.org/petitions/view/xmrv_allow_science_to_progress. If you decide to sign, you may check a box to ensure that your name will be withheld on the Internet. (And while you’re there, read the eloquent reader comments as well.)
Note: For background on the urgency of the situation, see ONE WEEK LATER: Outrage Over Suppression of FDA-NIH’s Positive Paper Despite July 1 Publication of Negative CDC Paper.” See also the Wall Street Journal article published June 30 – “Chronic Fatigue [Syndrome] Link to Virus Disputed” by Amy Dockser Marcus.