Abstract: Problem behavior, caregiver reactions, and impact among caregivers of persons with Alzheimer’s disease.

Problem behavior, caregiver reactions, and impact among caregivers of persons with Alzheimer's disease Background. Problem behaviors that occur during Alzheimer's disease (AD) can have major impact on caregivers. How caregivers react to these behaviours may determine the total impact experienced from caregiving.

Purpose: This study examined the relationships between problematic behaviors and caregiving impact in 30 primary caregivers of persons with AD. The first question explored the relationship between frequency of problem behavior and impact; the second explored the relationship between caregiver reactions to problem behaviors and impact from caregiving.

Methods: The frequency of problem behavior and the caregiver reaction was measured using The Revised Memory and Behavior Problem Checklist (Teri et al. 1992). The impact from caregiving was operationalized using the Cost of Care Index developed by Kosberg and Cairl (1986).

Results: Significant associations were found for 11 of the 20 subscales that measured the association between the frequency of problem behavior in the client and the impact from caregiving experienced by the caregiver. In comparison, the association between caregiver's reaction to problem behaviors and impact from caregiving was even more significant in value with 15 subscales of 20 being significant. Female caregivers experienced a greater reaction to disruptive and depressive behaviors when compared with male caregivers even though both genders reported similar frequencies of problem behaviors. In regard to findings about the impact from caregiving, four of the six indicators were higher for women than for men.

Conclusions: Caregiver reaction to problem behaviors was more highly associated with impact from caregiving than the actual frequency of the behaviors. These findings have great implications for intervention programs. Caregivers, especially females, need to receive individualized, specific education/training on how to understand and manage disruptive and depressive behavior in persons with AD.

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