fbpx
Free U.S. Shipping on $75 Orders*

Action Alert: Call or e-mail your Member of Congress!

1 Star2 Stars3 Stars4 Stars5 Stars (2) votes, average: 5.00 out of 5
Loading...

Reprinted with the kind permission of Solve ME/CFS Initiative.

BREAKING NEWS: ME/CFS Champion, Congresswoman Zoe Lofgren, is leading the charge again. After meeting with our team earlier this month, the Congresswoman has agreed to lead a letter to the House Appropriations Committee asking for increased consideration and committee report language for ME/CFS.

Read Congresswoman Lofgren’s letter here.

Contact your member of congress today and make sure they join this letter by Wednesday April 4th.

Follow these three easy steps below:

Step 1: Call your representative

To find your U.S. House of Representatives member, visit http://www.house.gov/representatives/find/

Please note that this action is for REPRESENTATIVES ONLY, NOT SENATORS.

Please call the Washington DC office, not the district office, and ask to speak to the legislative assistant for health. If the legislative assistant is not available, you can ask to leave a message or immediately ask for the e-mail address of the legislative assistant to send him or her your request in writing.

Feel free to tell the legislative assistant your story, but remember to be very brief. Use the sample script below as a guide.

My name is _________. I’m a constituent in {city}. I am calling with an urgent request for Representative {NAME} to join a letter to the House Appropriations Committee for myalgic encephalomyelitis, commonly known as chronic fatigue syndrome or ME/CFS. Please help us preserve medical research funding for this devastating disease which afflicts between 1 to 2.5 million Americans like me [or my family member]. ME/CFS has no known cause, cure, diagnostic test, or FDA-approved treatment, and it often leaves patients bedridden for decades. Please urge Representative {NAME} to support patients and sign Congresswoman Lofgren’s letter.  Please contact Angela Ebiner, Senior Legislative Assistant for Rep. Zoe Lofgren (CA-19), at Angela.Ebiner@mail.house.gov or (202) 225-3072 to join this bi-partisan effort. May I e-mail your offices additional information?

If you receive the e-mail address, proceed to step 2. If not, continue with….

Step 2: E-mail your representative

After you speak to the staff person by phone, it is always helpful to follow-up with an e-mail. Feel free to personalize the e-mail below.

Dear [Staffer’s Name],

My name is {YOUR NAME}. I spoke with you {your colleague} previously regarding an urgent request regarding the disabling neuroimmune disease myalgic encephalomyelitis, commonly known as chronic fatigue syndrome or ME/CFS.

Congresswoman Zoe Lofgren is leading a bi-partisan letter to the House Appropriations Committee regarding this disease. The letter requests that the committee report include a few short statements outlining the needs of patients. I am asking, as a constituent, that Congresswoman/Congressman {YOUR MEMBER of Congress} join this bi-partisan effort to support patients with ME/CFS.

Please contact Angela Ebiner, Senior Legislative Assistant for Rep. Zoe Lofgren (CA-19), at Angela.Ebiner@mail.house.gov or (202) 225-3072 to join this bi-partisan effort.

Sincerely,
{YOUR NAME}
{Your address and zipcode}
 

Step 3: Let us know how it went

Fill out this easy form online here: https://solvemecfs.wufoo.com/forms/q1ym7zub1shyy0f/

Thank you for doing your part to advocate on behalf of all the patients who suffer with this disease.

ProHealth CBD Store

 

1 Star2 Stars3 Stars4 Stars5 Stars (2) votes, average: 5.00 out of 5
Loading...



Leave a Reply