CFS Advisory Committee Will Report to HHS November 21 & 22 in Washington, DC – Public Invited

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The federal CFS Advisory Committee’s next report to the Department of Health & Human Services – for consideration by the Secretary of Health – is scheduled for two all-day sessions, Monday and Tuesday, November 21 and 22, 9:00 a.m. to 5:00 p.m. Members of the public with photo ID are invited to attend, “limited to space available.” Location: Room 800 of the Hubert Humphrey Building at 200 Independence Ave. SW. Phone 202/690-7694 for any special accommodations.

The agenda? Though HHS indicates it will post the finalized agenda of the session online (at, at this writing no agenda was evident, and observers are interested to learn how HHS will respond to certain of the three-year-old CFSAC’s recommendations going forward.

The CFSAC – a group of 11 appointed experts mandated in 2003 – convenes twice a year with Department of Health & Human Services officials to update and advise them on issues of:
n CFS research results and needs,
n Public and physician education, and
n Patient care needs and access.

A selected handful of patients and advocates who petitioned for the opportunity by November 13 will also be allowed to give 5-minute presentations and/or present printed handouts. (Our November 1 CFS Newsletter included one patient’s testimony at the last CFSAC session on the desperate need for CFS-educated physicians, at )

For background information on the CFS Advisory Committee’s charter and its members – some of whom are research scientists, others healthcare industry leaders and patient advocates – go to And for the minutes of past meetings go to

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