Inviting FM patients nationwide for a free "journey of personal discovery to learn how you can best reduce symptoms and improve well-being in your own situation.”
A new research project will soon be available for participants with fibromyalgia across the U.S. “The Fibromyalgia Wellness Project” is an online self-help program – years in the making – that is part of a research study sponsored by the National Institute for Arthritis, Musculoskeletal and Skin Diseases (NIAMS) and directed by William Collinge, PhD – www.collinge.org.*
Put your name on the project's launch notification list now, so you'll know when the application phase begins – just send a blank e-mail to launch@FMwellness.net
“Since there is no medical cure for fibromyalgia,” Dr. Collinge states, “people need to discover on their own what strategies work best for them to reduce symptoms and promote their well-being. FM is a ‘one size fits one’ condition – no one approach works the same for everyone. It really is a journey of personal discovery to learn how you can best reduce symptoms and improve well-being in your own situation.”
The program uses a brief online daily log that takes about 5-10 minutes to complete.
It enables the user to discover the influences of key health-related behaviors and management strategies on their symptom levels. The program uses proprietary analytical methods to give each user completely individualized feedback about what works best for her or him.
This study is part of Phase II of the FM Wellness Project. Phase I, completed in 2007, found that use of the program was tied to significant improvements in physical functioning, mood, sense of control over health, and productivity.
Phase II will be available for use by 2,200 people with FM through 2010.
• An alpha study is slated to begin enrollment in October 2009. It will accommodate 200 users.
• The beta study will then launch some time in 2010, and will be a nine-month study with space for 2,000 participants.
For information and to sign up starting October 3, go to the Fibromyalgia Wellness Project website (www.fmwellness.org).
* William Collinge is well-known in the Fibromyalgia and ME/CFS communities for his innovative self-empowerment counseling, programs, books and guides to help those coping with chronic illness and pain. Starting with healing techniques he developed to support ME/CFS/FM patients referred by Dr. Daniel Peterson in the 1980s, William has worked steadily for more than 20 years to extend real help to the world’s many underserved Fibromyalgia patients. To learn more about his work, browse his website www.collinge.org, and check out a Q&A he hosted last year in the ProHealth Chat Room.