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Dr. Lipkin’s message to the ME/CFS community regarding the XMRV/MLV study

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Virologist Ian Lipkin, MD, heads Columbia University’s Center for Infection and Immunity. And currently he is directing a project involving 11 investigators who will conduct state-of-the-art analysis to search for evidence of viruses in blood samples from a well-characterized, geographically distributed US cohort of ME/CFS patients – what he calls “the XMRV/MLV CFS/ME study.”

In light of recent confusion & questions centering around the retracted XMRV/MLV articles and reasons for pursuing the project, Dr. Lipkin has posted a message to “Colleagues and Friends in the CFS/ME Community.” (Thanks to MECFSforums.com for this news.) To read his concise, reassuring message, go to http://cii.columbia.edu/blog.htm?cid=CalAzy

In particular, Dr. Lipkin states:

• He feels it is important to involve the original XMRV/MLV investigators in the project and is grateful they found a way to include Dr. Judy Mikovits.

• They are well on the way to obtaining samples from the target 150 patients & 150 controls,

• And they expect to report their findings “in early 2012.”

Importantly, he adds: “…Be assured that more than 85% of the funding associated with this initiative is invested in patient recruitment and characterization and sample collection, archiving, and distribution. Thus, irrespective of study outcome there will be unprecedented opportunity to explore hypotheses other than that disease is due to XMRV or MLV infection.”

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2 thoughts on “Dr. Lipkin’s message to the ME/CFS community regarding the XMRV/MLV study”

  1. liquadambar says:

    Where is Dr. Lipkin going to find these patients to test?
    Will they be the same ones that blood was collected from before?
    Since there is no real test for ME/CFS – just complaints and symptoms how are these patients going to be picked.
    My husband has not been dignosed with ME/CFS.
    He has what Dr. Shoffner from Emory clinic says is “Acquired” Mitrondrial mytopahty.
    But really — the symptoms has always matched what the other ME/CFS patients complain about.
    Even is MRI even has pinpicked white spots on his brain.

    Is that how they are going to decide who to test?

  2. IanH says:

    Acquired Mitochondrial Myopathy is a recent invention by those who think that ME is caused by dysfunction of the muscle mitochondria. I can assure you that the disease is much wider than that. While some mitochondrial dysfunction is evident, it is not only in the skeletal musculature. Neural mitochondria are also affected. Pursuing ME as a Mitochondrial dysfunction is a very narrow view.

    There is still no accepted cheap biomarkers but if they really wanted to they could select ME patients on the basis of biomarkers. See the work of Don Staines et al in Australia.

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