FEATURES – April 2, 2003:
* Fibromyalgia and Sleep Deprivation: Pills and Pillows
* Lessons from Macrophagic Myofasciitis: Towards a Definition of a Vaccine Adjuvant-Related Syndrome [Chronic Fatigue Syndrome news]
* Recognizing and Coping With Pediatric Chronic Fatigue Syndrome & Fibromyalgia
SUPPORT and COPING
* Support and Inspiration in the Coping Corner
* Got Questions? Here are Answers…Find them in our Chat Room
* ImmuneSupport.com Webmaster Tools & Link Exchange Programs
* AFFTER Presents a Patient Conference: Fibromyalgia – More Questions Answered 2003
* Refer a Friend
* Not a Subscriber?
* About Us
Fibromyalgia and Sleep Deprivation: Pills and Pillows
Nicholas Rummell, an FM patient, writes, “For adults with fibromyalgia (FM), pills may or may not help resolve the sleep difficulties that challenge many. For starters, not everyone with FM is helped by sleeping pills, prescription or over-the-counter. And in some cases, a sleep medication may help a person fall asleep but then not help them achieve deep, restorative sleep.”
Lessons from Macrophagic Myofasciitis: Towards a Definition of a Vaccine Adjuvant-Related Syndrome [Chronic Fatigue Syndrome news]
Macrophagic myofasciitis is a condition first reported in 1998, and the cause remained obscure until 2001. Over 200 definite cases have been identified in France, and isolated cases have been recorded in other countries. The condition manifests by diffuse myalgias and chronic fatigue, forming a syndrome that meets both Center for Disease Control and Oxford criteria for the so-called Chronic Fatigue Syndrome in about half of patients.
Recognizing and Coping With Pediatric Chronic Fatigue Syndrome & Fibromyalgia
Coping Corner columnist Eunice Beck, RN, writes, “Although CFIDS and Fibromyalgia can occur at any age, even in childhood, it is poorly diagnosed in the young. Pediatric CFIDS/FM can be even more confusing for doctors and parents because children’s reported symptoms are frequently inconsistent. And the children often come to think of their symptoms as ‘normal’ or that they are just having ‘growing pains.'”
RESEARCH SPOTLIGHT: Guaifenesin
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Paul St. Amand, M.D., Assistant Clinical Professor of Endocrinology at Harbor-UCLA believes guaifenesin therapy can significantly help fibromyalgia (FM) patients combat their symptoms and lead normal, healthy lives.
Dr. St. Amand’s theory of the medicinal effects of guaifenesin is based on the premise that excess calcium and inorganic phosphate compounds accumulate within cells to produce a state of hyperpermeability. This condition allows excess fluids, ions and other unwanted substances to flow into cell mitochondria, disrupting normal cell function, including production of ATP, the body’s energy source. Dr. St. Amand believes these factors cause the body to experience an energy deprived state, in which widespread bodily functions are disrupted. To read more about the benefits of guaifenesin, click on the link below:
Support and Inspiration in the Coping Corner!
Dealing with the day-to-day struggles of living with a chronic illness can be trying. Coping Corner is the spot where you can find the online support you need to get through your day. Featuring personal stories, advice columnist Eunice Beck, RN, book reviews, and more.
Got Questions? Here Are Answers…
Need a specialist in your location? Not sure what sleep meds are the best? Don’t know how to deal with the spouse, kids, and dog? Who better to help you than your fellow readers at ImmuneSupport.com? When you post a question to the message board, you can be assured of speedy and helpful replies. Other people have been through the same struggles and are happy to share their wisdom. It’s easy, too!
If you’re feeling chattier, go to the chat room and ‘talk’ to others in real time. You can let people know when you’ll be there by posting a note to the message boards.
Just click on the link below to find friends and support in the message boards and chat room:
ImmuneSupport.com Webmaster Tools & Link Exchange Programs
Pro Health is happy to offer CFS & FM Webmaster Tools & Link Exchange Programs at ImmuneSupport.com! We have designed these features to enable CFS & FM sites all over the world to get connected so we can work together to share important information and resources with our readers.
We invite webmasters to post headlines for the latest CFS & FM treatments and breaking news on your websites (linking to the complete content), in addition to linking to CFS & FM events, chat forums and message boards. We also invite CFS and FM related websites to link with us. To learn more about these programs, click on the link below:
AFFTER Presents a Patient Conference: Fibromyalgia – More Questions Answered 2003
AFFTER (Advocates for Fibromyalgia Funding, Treatment, Education and Research) present an educational patient conference welcoming medical professionals. Muhammad Yunus, M.D., is the keynote speaker.
When: Saturday, April 26, 2003
Where: Interstate Center, 2301 Market Street, Bloomington, Illinois
Who: Featured speakers are Muhammad Yunus, M.D., Michael McNett, M.D., Sue Nelson, CAS, Jeffrey Rabin, Esq., Nell French, PsyD, Marilyn Myles, MSW, LSCW. Speaker presentations will be followed by Q and A sessions.
For more information including registration and vendor arrangements, please go to:
REFER A FRIEND!
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Published by Pro Health, Inc., ImmuneSupport.com is the Web’s largest resource for Chronic Fatigue Syndrome and fibromyalgia. Since 1988, Pro Health has raised and donated over 2.3 million dollars to CFS and FM research and advocacy groups seeking a cure. Every purchase made at ImmuneSupport.com funds research – as does every purchase made from Pro Health’s Health Resource catalog. Click on this link to visit ImmuneSupport.com’s home page: