Dr. Leonard (Lenny) Jason, PhD, is a clinical/community psychologist and a prolific CFS researcher. He has written or edited more than 15 books on CFS and other ‘controversial illnesses’ including Fibromyalgia and Multiple Chemical Sensitivity, and directs the Center for Community Research at DePaul University in Chicago, which has several different ME-CFS studies going on at any one time.
Dr. Jason’s focus is on addressing patients’ problems not just medically but in terms of social functioning, education, employment/disability, and public policy – so he can tackle just about any question you might have about CFS and FM. (If you’re not a registered chat user and would like to sign up early, visit our Community Chat Room at http://www.immunesupport.com/chat/chat.cfm. And if you prefer to participate as an unregistered guest, sign on about 10 minutes before the chat at http://www.immunesupport.com/chat/chatevent.cfm)
Dr. Jason – Defining the ‘True Face’ of Controversial Illnesses
In particular, Dr. Jason says his goal is to help define “the true face” of Chronic Fatigue Syndrome and the illnesses often associated with it. He and his research team have pioneered studies to give physicians and government policy-makers better information on:
n The true prevalence, costs, and demographics of ME-CFS.
n The proportion of CFS patients who are not under a doctor’s care – partly reflecting the medical community’s tendency to discount its existence.
n Debilitation, recovery/improvement and relapse rates (what Dr. Jason calls the “natural history” of CFS).
n Sub-types of CFS – as well as commonalities and co-occurrence with Fibromyalgia, MCS, and other diseases – to help clear up confusing discrepancies in study findings and diagnostic approaches.
n The diagnosis and treatment of CFS, FM, and MCS. (Dr. Jason has written or edited 15 books, including such guides for physicians as the Handbook of Chronic Fatigue Syndrome; Understanding Chronic Fatigue Syndrome: An Empirical Guide to Assessment and Treatment; and A Clinician’s Guide to Controversial Illnesses: Chronic Fatigue Syndrome, Fibromyalgia, and Multiple Chemical Sensitivities.
n The public policy, resources, and infrastructure needed to offer innovative social, medical, and community interventions for patients requiring the assistance of others. One of Dr. Jason’s core beliefs is that the patient community needs to create its own “refuge settings” for healing.
n The types of educational programs needed to help young people with CFS and other unpredictably-debilitating illnesses further their education. (DePaul is a pioneer in the field, with its Chronic Illness Initiative – see “DePaul Chronic Illness Initiative Offers ‘Paced’ Degree Opportunities” – and annual free Symposium on Making College an Option for Chronically Ill Students.
n The negative effect on patient treatment of the name ‘Chronic Fatigue Syndrome’ and ways to generate a consensus on a more respectable and scientific-sounding name for this complex illness that will meet the needs of as many different groups involved in the ME-CFS movement as possible. Dr. Jason is a member of the distinguished
CFS Name Change Advisory Board, and Vice President of the prestigious International Association for Chronic Fatigue Syndrome – recently renamed the IACFS/ME.
For all these reasons Dr. Leonard A. Jason is uniquely positioned to support collaboration for change among the scientific, medical, patient, and policy making communities.
For More Information See:
n A profile of Lenny Jason – “The Heart and Soul of the ME-CFS Movement.”
n Dr. Jason’s view of “Problems with the New CDC CFS Prevalence Estimates.”
n A partial listing of Dr. Jason’s recent study reports, which include:
- (In Press). Toward an empirical case definition of CFS, Jason LA, Corradi K, Torres-Harding S. Journal of Social Service Research.
- (In Press). Variables that differentiate Chronic Fatigue Syndrome from Depression, Hawk C, Jason LA, Peña J. Journal of Human Behavior in the Social Environment.
- Functioning in individuals with Chronic Fatigue Syndrome: Increased impairment with co-occurring Multiple Chemical Sensitivity and Fibromyalgia, Brown MM, Jason LA (2007). Dynamic Medicine. May 31;6:6
- Reliability of a Chronic Fatigue Syndrome Questionnaire, Hawk C, Jason LA, Torres-Harding S. (2007). Journal of Chronic Fatigue Syndrome. 13(4) 41-66.
- The prevalence of Chronic Fatigue Syndrome in Nigeria, Njoku MGC, Jason LA, Torres-Harding SR. (2007). Journal of Health Psychology. 12(3) 461-474.
- A pediatric case definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome, Jason LA, Bell DS, Rowe K, Van Hoof ELS, Jordan K, Lapp C, Gurwitt A, Miike T, Torres-Harding S, De Meirleir K, & IACFS (2006). Journal of Chronic Fatigue Syndrome, 13, 1-44. [Full Text Available in PDF].
- Differential diagnosis of Chronic Fatigue Syndrome and Major Depressive Disorder, Hawk C, Jason LA, Torres-HardingS. (2006). International Journal of Behavioral Medicine, 13, 244-251.
- Causes of death among patients with Chronic Fatigue Syndrome, Jason LA, Corradi K, Gress S, Williams S, Torres-Harding S. (2006). Health Care for Women International, 27, 615-626.
- Exploratory subgrouping in CFS: Infectious, inflammatory, and other, Corradi KM, Jason LA, Torres-Harding SR (2006). In A. Columbus (Ed.), Advances in Psychology Research. Volume 41 (pp. 115-127). Hauppauge, NY: Nova Science Publishers.
- Benefits and challenges of generating community participation, Jason LA. (2006). Professional Psychology: Research and Practice, 37(2),132-139.
Family medical history of persons with Chronic Fatigue Syndrome, Torres-Harding SR, Jason LA, Turkoglu OD. (2005). Journal of Chronic Fatigue Syndrome, 12, 25-35.
- A population-based study of Chronic Fatigue Syndrome (CFS) experienced in differing patient groups: An effort to replicate Vercoulen et al.’s model of CFS, Song S, Jason LA. (2005). Journal of Mental Health, 14, 277-289.
- What is fatigue? History and epidemiology, Torres-Harding S, Jason LA. (2005). In J. DeLuca (Ed.). Fatigue as a window to the brain. The MIT Press: Cambridge, Mass.
- And more, at http://condor.depaul.edu/~ljason/cfs/publications.html