10% Off $75 Orders! Use Code SAVE10P Shop Now
One use per customer. Not available with Autoship. Expires 5/28/18.

From Our Readers – Comments & Suggestions 02-09-11

1 Star2 Stars3 Stars4 Stars5 Stars (9 votes, average: 3.90 out of 5)

Thought for Years Cold Feet Were Caused by Peripheral Neuropathy

There is a good sharepost on David Mendosa’s Diabetes blog [“Hypothyroidism and Diabetes”]. He reads all the research on diabetes, but even he mistakenly assumed his cold feet were from diabetic neuropathy. He tells how he found out this and other problems like running a low temperature were caused by low thyroid. – C.


Study Indicates Vitamin D Promotes Body's Natural Defense Against Urinary Tract Infection

A study reported in PLoS One by Swedish microbiologists and urologists at Karolinska University Hospital found that supplementation with vitamin D3 stimulates antibacterial actions in the bladder, based on biopsies of women's bladder tissue before and after a three-month period of supplementation, vs. controls. [See: "Vitamin D Induction of the Human Antimicrobial Peptide Cathelicidin in the Urinary Bladder,"  Hertting O, et al.] – B


Calling for Advocate Protest of NIH's Panel on ME/CFS Research Funding Allocations

Mindy Kitei’s Feb 3 CFS Central blog reads: "MISSION POSSIBLE: Ousting Dr. Myra McClure from the NIH Committee to Approve ME/CFS Grants."

[By way of background, Myra McClure, PhD, is a British researcher at Imperial College London who has stated publicly, “Nothing on God’s Earth could persuade me to do more research on CFS.” Yet she will influence allocation of US research money for ME/CFS?]

Writes Kitei:
“Here is an excellent protest letter written by ME/CFS patient Patricia Carter on the occasion of the appointment of Dr. Myra McClure to the Center for Scientific Review Special Emphasis Panel, which approves National Institutes of Health grants for ME/CFS.  Carter has granted permission for patients to copy and paste the letter or any part of it and send to anyone who can make a difference.”

To find the letter, a list of email addresses, and the many reader comments, click HERE 
– ProHealth


Chocolate Polyphenols Support Healthy Cholesterol by Activating Genes

Yes, a daily (preferably dark) chocolate habit can be good. Japanese researchers have identified how the antioxidant polyphenols in cocoa (or cacao) work to inhibit LDL (bad) cholesterol and raise levels of HDL (good) cholesterol. According to a press release from the American Chemical Society, they do it by activating helpful expression of genes in cells of the liver and the intestines. [See "Cacao Polyphenols Influence the Regulation of Apolipoprotein in HepG2 and Caco2 cells."] – O


Autoimmune Illnesses, Medications, and Migraines

Re: “Medication Triggers in Autoimmune Migraineurs”

Migraine.com is a helpful website for news about migraine. This blog interested me because I have Lupus and frequent headaches, and have to take some honkin’ meds. There's also a link to a blog on other "Migraine Triggers for the Autoimmune patient."  – Y


Benefits of Selected Supplements for FM Discussed

Re: "5 Supplements for Fibromyalgia Pain"

As you may know, Karen Lee Richards is HealthCentral's lead patient expert on chronic pain specializing in ME/CFS and FM – and a leading supplement researcher/writer. She personally tries the supplements she writes about, and has done in-depth research on the science behind each of these supplements. (The supplements: magnesium & malic acid; vitamin D; SAM-e (S-adenosyl methionine); 5-HTP (5-hydroxytryptophan); ginger; quercetin & bromelain.) While you're at her blogsite, you might also want to read her article on "7 Conditions Often Mistaken for Fibromyalgia."  – ProHealth


How Can I Find Doctors Who Will See Medicaid Patients?

Q: My girlfriend has had ME/CFS for 7 years, but cannot find a doctor to treat her (Tacoma, WA)…. She lost her job, and her medical coverage, and is now on Medicaid. Do you have any contacts for the state of Washington that will see patients with ME on Medicaid? – L

A: The best thing you can do is post your question on the ME/CFS Message Board. There is a message string on that board “Please list your good doctor here” that includes 24 pages of queries and recommendations. (It may be well worth taking some time to look through that information. You can search without being registered with a username, but to post your question you would need to register.) Also, when we searched the Message Board on “Washington good doctor” we pulled up an old post that lists FM doctors, some of whom may also treat ME/CFS, and provides contact info for a regional support group who may have good advice.


Facebook Site for Kids and Teens with ME/CFS

The ME/CFS Australia (SA) site (http://sacfs.asn.au) is an outstanding source of international news for those with ME/CFS, FM and MCS. Last week, they announced that: “ME/CFS Australia (Victoria) has created YOUth and ME(CFS), a Facebook page for young people with ME/CFS to share their experiences.” – D


Help for Those Who are Mourning

A book by Dr. Alan Wolfelt, PhD, may be of interest (The Journey Through Grief: Reflections on Healing). Dr. Wolfelt is an author, educator and grief counselor. He's the director of the Center for Loss and Life Transitions, and on staff at University of Colorado Medical School – Dept. of Family Medicine. Here's a website with some of his material (check the list of articles on the right): http://www.centerforloss.com/articles.php?file=mourners.php.

We all grieve in our own way….but this info may be helpful. – S


Pain Foundation Doctors Answer Questions About Pain

The American Pain Foundation Website has a Q&A about pain, for patients & caregivers.  Questions like “How do rub-on pain products work?” “Why are antidepressants used for pain?” “What’s the best way to describe my pain to the doctor?” This site also offers:

Discussion Boards on pain topics, including a board where you can ask the APF’s Nurse Consultants specific medical questions. 

• A Database of Pain-Related Clinical Trials
 in the US and Canada that you can search by disease/pain type and state.

• And a database with summaries of findings from pain therapy trials, organized by subject.

– American Pain Foundation


Jarrow-Dophilus May Be Magic Bullet for My Dandruff, Candida

Candida seems to be a complex "animal" so I am not sure that the same thing works for everyone. But after changing my diet and trying many supplement regimens, it appears that a Jarrow Dophilus first thing in the morning and another one last thing at night has drastically improved my dandruff, which seems to be the tip of the candida iceberg for me. I had been taking chewable acidophilus before meals and following up with chewable enzymes. Add to that, I was talking Ultra Zyme once a day and NOTHING seems to adequately populate my GI tract the way that Jarrow-Dophilus does. I will continue this for a while, and if my dandruff does not disappear altogether I will add a third Jarrow-Dophilus during the day. With just two a day my improvement has been drastic, so I believe this is the answer for me.

I should add that I was eating almost NO sugar and I had gotten used to plain-tasting oatmeal, etc. I did eventually add back in some power juices like goji and pomegranate because I did not want the rest of my health to suffer along the way. Even if two or three Jarrow-Dophilus a day eradicates my dandruff altogether – which I believe it just might – I do not plan to add back sugar or simple carbs. I am now used to plainer-tasting foods and I try not to go below 2-3 grams of fiber per serving, although 4 or even 5 is preferable.

I suppose I should be thankful that things came to a "head" (meaning the dandruff – ha!) because it did cause me to overhaul my diet, which was long overdue. I will continue with the positive changes I have made and if my progress continues, that will be the end of the supplement-go-round I was on in trying to address my dandruff. (I had tried burdock, enteric-coated oregano oil, garlic, etc, and some of the combination products that are formulated for candida.)

I hope Jarrow NEVER stops making this! It is potent and stable and it seems to have finally done the trick for me. – B


Alcohol and Fibro a Poor Match?

Do we with fibromyalgia get worse when we drink? Ooh yes! A lot of us are alcohol intolerant! And I'm not talkin' a lot of it either. One drink can make me feel like I've been a host at a frat party! My Dr. said it's cause our livers don't metabolize the alcohol well anymore. I was a social drinker in my 20's, had no problems. But the sicker I got the worse the intolerance got. Ooh how I'd love a great big margarita! – K

Note: For a funny take on this subject, see "My One and Only Hangover – Why PWCs Can't Drink" by Penny McCracken.

Note: This information has not been reviewed by the FDA. It is generic and anecdotal and is not meant to prevent, diagnose, treat or cure any illness, condition, or disease. It is very important that you make no change in your healthcare plan or health support regimen without researching and discussing it in collaboration with your professional healthcare team.

1 Star2 Stars3 Stars4 Stars5 Stars (9 votes, average: 3.90 out of 5)

Leave a Reply