From Our Readers – Comments & Suggestions 08-24-11

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Lyme Documentary “Under Our Skin” Free on Hulu

On August 18, the Lyme Documentary “Under Our Skin” was one of the top 20 ‘Most Popular’ films on Hulu. Watch it on Hulu for free! Rate it, review it, and share with everyone you know ( or Google on “under our skin free hulu” to find it.  – V


Project in Scotland to Encourage ME/CFS Work Opportunities

The Long-Term Conditions Alliance Scotland ( offers many services including employment coaching services. From July 2010 to June 2011 they conducted a study to define a job model intended to define workable employment structures that would lead to job opportunities for some people with ME/CFS.

To read the report on this project click HERE. To quote from the report, “The SKS model of employment is based on an ‘associate’ structure, where people are self employed but provided with work which is carried out in their home environment, largely at times and to a schedule that suits them. The work is allocated on a ‘per day’ basis and is remunerated accordingly. This business model was thought to be a good fit with the requirements confirmed by the research as being necessary to support people with M.E. engage in the workplace.” – J


Oct 16 New Jersey CFSA Event to Feature Drs. Unger, Lapp, Natelson

The New Jersey CFS Association is hosting its annual fall conference for CFS patients and Physicians on Sunday October 16 2011 in Eatontown NJ. Conference begins at 11:30 AM at the Eatontown Sheraton. Pre-registration fee for NJCFSA members is $35, non members $40. Registration at the door costs $45.

This year’s keynote speakers are Elizabeth Unger, MD, PhD (Chief of Chronic Viral Diseases, CDC); Charles Lapp, MD (Director, Hunter Hopkins Center) and Benjamin Natelson, MD (Director, Pain & Fatigue Study Center, Beth Israel Hospital, NYC). For more information and to download copies of the conference brochure and registration form, visit the NJCFSA website at

Ted Nilson (NJCFSA)


Sharing My New Bumper Sticker

“I hope laughter really is the best medicine ’cause it’s all I can afford.” – H


Simmaron Foundation for Neuroimmune Research Has Facebook Page

The Simmaron Research Foundation that Dr. Dan Peterson (the “P” of WPI)  launched recently has created a Facebook page:
(!/SimmaronResearch?sk=wall) – L


Sign the Petition for a May 12 Google Doodle Next Year

This will be the 20th anniversary of International Awareness Day for ME/CFS, FM, MCS, GWS. Sign at  – S


Considerations Regarding Social Media If You’re on Disability

Be really careful what you put on Facebook about yourself …. because it can be old info [or photos] from before you were disabled and taken the wrong way.

I read an article where someone posted a photo of them doing an activity BEFORE they ever became disabled and I believe it was a disability insurance company that terminated their insurance because they monitored facebook and other social places. The person had to fight to get the termination lifted. That’s how it can be unfair, but that disability insurance company did it and didn’t check it out first. – T


Check Your Hospital for Info About Caregiver Support Groups

Once a month, [my] newspaper runs a section on healthy living and lists so many support groups. I found that several hospitals are sponsoring Caregiver Support Groups meeting there, and I thought that was such a wise idea. Caregivers need support and resources, and hospitals have access to so much information AND to so many people in the community who can help Caregivers. So perhaps this is a new way to get information and help to Caregivers. – T


The Story of My Candida Diet and Weight Loss

My battle with yeast overgrowth: This is the story of the ups and downs of my battle with yeast infection (Candida). I started my battle on July 19th 2011 – I weighed 225.00 lbs.

After 20 days on the yeast infection diet I lost 22 lbs – slightly over one lb per day. – R

Note: Go to ProHealth’s Candida Message Board to follow this continuing diary, see what the diet entails, and learn about a simple home test for yeast overgrowth.


Lyme Ticks Infesting Birds in Western US

Borrelia, found in larvae on birds (no real surprise) in Napa, CA: “This is the first reported detection of B. burgdorferi in larvae feeling on a bird in Western North America.” ( – V


Eight Supplements for Fighting Fibromyalgia (or Any) Fatigue

Karen Lee Richards, HealthCentral’s Chronic Pain Connection patient expert on ME/CFS & fibromyalgia, has written an article on “8 Energy-Boosting Supplements for Fighting Fibromyalgia Fatigue” In deciding on this list, Karen combined what she’s learned over the years as a supplement research writer with insights on what has helped her own fatigue.



Pregnant or Nursing Mothers Warned Off Heartburn Meds

Did your mom take meds for heartburn? [See “Warning: Popular Heartburn Medications linked to Cardiac birth defects.”] – G


Note: This information has not been evaluated by the FDA. It is generic and anecdotal and is not meant to prevent, diagnose, treat or cure any condition, illness or disease. It is very important that you make no change in your healthcare plan or health support regimen without researching and discussing it in collaboration with your professional healthcare team.

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