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From Our Readers – Comments & Suggestions 11-23-11

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The Dr. Judy Mikovits Story, Sadly, Continues…

Most everyone knows by now that Dr. Mikovits (of XMRV fame) was arrested for being a “fugitive from justice” in her home in Ventura County, California, on Friday, November 18. Held without bail, she appeared before the Ventura County Superior Court on Tuesday, November 22 to answer allegations “that she wrongfully removed notebooks and other proprietary information” from the site of the Reno, Nevada-based Whittemore Peterson Institute, her former employer. See for example the Reno Gazette Journal article, “Reno Chronic Disease Researcher Behind Bars.”

Dr. Mikovits’ husband, David, asked early Tuesday that angry advocates “hold off on their criticism of the WPI for the sake of Dr. Mikovits and the negotiations in progress,” and said he would issue a direct message following the court appearance.

Meanwhile, Cort Johnson posted a report on Phoenix Rising, describing the alleged removal of the materials by WPI lab researcher Max Pfost (see “Researcher Confesses: Implicates Dr. Mikovits in Theft of Materials from WPI”).

A pdf of Max Pfost’s Affidavit alleging that Dr. Mikovits’ directed him to remove the materials is at http://www.wpinstitute.org/docs/Exh1-ReplyISOMotionforPreliminaryInjunction.pdf

Science magazine’s online ScienceInsider posted the following late Tuesday night: “Inmate Mikovits Meets Judge.”

Dr. Mikovits was released on bail and is scheduled to appear before a judge of the Ventura County Superior Court on Dec. 19 at 1:30 PM Pacific Time (Court Room #13, 800 S. Victoria Ave).

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ME/CFS & FM Small Nonprofits Win $75,000 in the Chase Giving Vote

At noon Eastern Time on Tuesday, November 22, Chase Community Giving closed the voting. Three small US charities representing ME/CFS and fibromyalgia garnered enough votes to finish in the top 100 (winning $25,000 each) – two by a small margin. They are the IACFS/ME (#45); the CFS Knowledge Center (#94); and the Massachusetts CFIDS/ME & FM Association (#98). The 100th position received 1,445 votes, so the Enterovirus Foundation,  the Wisconsin ME/CFS group, the New Jersey group, and the Rocky Mountain group missed winning $25,000 by 194, 232, 237, and 244 votes, respectively.

To view the entire list of winners, click HERE.

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Unfavorable Orthopedic Surgical Outcomes Linked to Opioid Meds

Re: “Joint replacement results worse by all measures for opioid users”

This makes sense, since other research indicates opioid meds seem to increase pain sensitivity. – J

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Best Way to Experiment When the First Antidepressant Doesn’t Work?

Only 30% to 50% of people with depression benefit from the first antidepressant they’re prescribed. Doctors puzzle over which might be the best second step – augmenting drug #1 with another, or just switching to a new one. This study of 1,300 patients whose first drug wasn’t successful reported that the risk of side effects is a toss-up. [See “Risk of adverse events in treatment-resistent depression….” General Hospital Psychiatry, Nov 12, 2011]

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FDA Awards $4.5 Million to Expedite Pain Therapy Development

The FDA has awarded $4.5 million to the University of Rochester Medical Center, to support their investigation of how trials of chronic pain therapies can be designed to better identify new treatments and get them approved and delivered faster to patients. For one thing they need to understand why so many patients taking the fake doses in pain therapy trials improve so much. They will investigate information on past pain trials that is not typically made available, and scrutinize pain measurement systems. The study will be directed by URMC Prof. Robert Dworkin, PhD.

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New Lyme Culture Test Already Saving Lives!

A new test that can detect active Lyme infection was just made widely available to the US medical community (and hopefully will be available everywhere soon). It saved the life of a 22-year-old Texas Police detective who was untreated, on the edge of death, because two other tests came back negative for Lyme. [See “Wife’s persistence aids in husband’s Lyme disease Diagnosis” in the Lubbock (Texas) Avalanche-Journal.] – C

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Mt Sinai ME/CFS Center Kickoff Raises Hope

The CFS Patient Advocate (Chris Cairns) has posted a report on the ME/CFS Research Center conference he attended at Mount Sinai Hospital in New York on Sunday, November 20. To read his uplifting summary of the conference highlights, click HERE (and scroll down).

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Canary Report Editor Continues Diary of Gupta MCS Program

The Canary Report site is entirely dedicated this fall to editor Susie Collins’ posts on what she’s learning as she works through Ashok Gupta’s Amygdala Retraining Program for Multiple Chemical Sensitivities. In her post on the 5th session, she says, “The takeaway for me in this session is recognizing that a big part of Gupta’s treatment is about getting to the core causes of stress, stressors, and stress reponses that contribute to the illness…. As it turns out a busy mind may be a stress response related to the illness…. Never had it occurred to me that my busy mind was tied up with perpetuating and sustaining the chemical sensitivities.” To follow her story and learn about how the program may help multiple chemical sensitivity, go to www.thecanaryreport.org. – J

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Do You Have Symptoms of ‘Silent Migraine’?

(Found on the wonderful Hunter Hopkins Center facebook page.) Apparently many people can have ‘migraine’ attacks that actually leave out the headache, but will have symptoms that can seem like anything from a stroke to loss of coordination – arm & leg weakness, dizziness and nausea, odd sensations or tingling/numbness in different body parts, vision, mood or speech confusion, and a lot more. Here’s a link to the information on “Silent Migraine” at Migraine.com: http://migraine.com/migraine-types/silent-migraine/. – H

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Required Nutrition Education for California MDs? None

A California Senate bill designed to require that MDs in California get some education in nutrition before 2017 was opposed by medical associations in the state, with the result that the required amount of training was pared down from the suggested 7 hours to… none. There’s a video with excerpts of the testimony, etc. at NutritionFacts.org – “Medical Associations Oppose Bill to Mandate Nutrition Training.” – S

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When You’ve “Been Strong for Too Long

If you haven’t been following Sleepy B’s Blog, “Sailing through the Fibro Fog” (which began as a blog to share with Hunter Hopkins Center facebook members), have a look at her post on November 15: “It’s Okay to Cry.” She starts with this quote – “Sometimes people cry not because they’re weak. It’s because they’ve been strong for too long.” – P

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US ‘Fort Knox’ for Must-Have Drugs?

US shortages of common but ‘must-have’ drugs – like meds for infections, severe conditions, and chemotherapy – have nearly tripled in the past 5 years. So the government is thinking about creating a “pharmaceutical Fort Knox,” according to an editorial in the Canadian Medical Association Journal“United States considers drug stockpile,” by Cal Woodward.

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Note: This information has not been evaluated by the FDA. It is general and anecdotal and is not intended to prevent, diagnose, treat or cure any illness, condition or disease. It is very important that you make no change in your healthcare plan or health support regimen without researching and discussing it in collaboration with your professional healthcare team.

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