For those with ‘invisible’ diseases, “The politics of rejection are as big a problem or more than the illness itself,” says Rik Carlson, founder of the Vermont CFIDS Association (http://www.vtcfids.org).
To give a voice to people in Vermont – and millions of people around the globe – who are ill with chronic fatigue syndrome, CFIDS, fibromyalgia, or Myalgic Encephalomyelitis, Rik has been producing a documentary film titled
Invisible. And its debut is imminent.
“We are working furiously to complete this film, and we’re close,” says Rik. “This is an important film… Because CFIDS is dismissed, relegated to hysterical women, passed off as depression, and not taught in medical schools, in most, if not all cases, the patient worsens dramatically. Invisible will be a tool to share with a spouse or employer or in-law or physician that gives credibility…. You will hear from not only those who suffer the symptoms, but those who are left trying to understand what their loved ones are experiencing… In the first person, from all walks of life, it shows CFIDS to be undeniably real.”
So visit the Vermont CFIDS Association website in the coming weeks to learn the release date and other details as they emerge. And to read an interview with Rik Carlson, in which he talks about “his experiences with ME/CFS, his monumental fights with the insurance industry, and the support/advocacy group he founded,” see “Meet Rik Carlson – Author, Advocate and Founder of the Vermont CFIDS Association,” by Cort Johnson.