These days, Dr. Elaine DeFreitas answers her phone with considerable trepidation. Deep into a years-long research project, very close to a breakthrough, Dr. DeFreitas knows that the next phone call she gets could be the one that cuts off her project funding. Permanently.
The CFIDS Buyers Club and The CFIDS Association of America are independent organizations, working together for a common cause.
All over the country eminent Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) researchers are hard at work on aimed at better understanding—possibly curing—CFIDS. Drs. DeFreitas and other prominent clinicians are studying novel retroviruses isolated from CFIDS patients; Dr. Nancy Klimas and her multi-disciplinary group have identified a potential genetic predisposing marker for CFIDS; and Dr. Leonard Jason is about to begin a landmark study on the prevalence of CFIDS. These and other critical efforts, however, are facing their greatest funding threat ever.
The situation is grave. Earlier this month, the CFIDS Association, which supports the essential projects noted above, saw its research funds nearly depleted. The Association, for the first time in its history, was facing the very real possibility of having to tell researchers their research would have to end. Because you know only too well how devastating CFIDS is, you can imagine how devastating it would be to curtail such promising research projects as they near completion.
You can help by making a generous contribution to the non-profit CFIDS Association. Never before has there been such a desperate need for support from you and your fellow CFIDS sufferers. 100% of your tax-deductible donation will go toward research funding.
As you know, your CFIDS Buyers Club donates its profits to support CFIDS research. Please join us in heading off this terrible threat to the future of all CFIDS sufferers by sending your do nation today. There is an envelope provided in the middle of this newsletter for your convenience—please use it. Your support will help us make sure vital research is not forced to end—you will make a difference.
(This article originally appeared in HealthWatch, Fall 1993.)