Largest-Ever ME/CFS Patient Survey Highlights What Helps Most & What’s Most Needed in the UK

The ME Association* has published the results of a comprehensive survey of 4,217 people with ME/CFS through its website and magazine – likely the largest such survey ever undertaken. See “What Works for ME?” published in May 2010.

The report provides easy-to-read tables with statistics on many aspects of ME/CFS and its management – from symptom frequency & severity to the use and perceived effects of many therapies and drugs.

One of the survey’s benefits for individual patients is that a person considering a variety of drugs and other therapies for a certain symptom can see the relative odds of ‘help or harm’ for each, based on the collected experiences of the large survey group. For example, responses to questions about pain drugs indicated that:

• Opiates such as tramadol most frequently offer a good or moderate result (for 63% of respondents), followed by NSAIDS such as ibuprofen at 53%;

• While the least likely to help are Lyrica/Neurontin at 38% and pain clinic treatment at 33%.
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* The ME Association (www.meassociation.org.uk) is a UK-based non-profit dedicated to supporting research, education and training, and to providing information, support and practical advice for people affected by ME/CFS/Post Viral Fatigue Syndrome.

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