Letters From Our Readers – CFS Q & A Session 1-31-07

1 Star2 Stars3 Stars4 Stars5 Stars (205 votes, average: 3.00 out of 5)

CFS and Transfer Factor

Q: Which transfer factor is best to treat Chronic Fatigue Syndrome? – Tom

A: You can find out about the basic type of transfer factor “designed for daily use to support any person’s immune system,” as well as a variety of antigen-specific transfer factors, at <http://www.transferfactor.ws/> For those considering a transfer factor, as with any change in your health support plan, physician testing and discussion with your professional healthcare team should be the first step. You can also search on the words transfer factor at ImmuneSupport.com to find a very basic description of what it is and what it does (“The Amazing Transfer Factor – A Transferable Immune ‘Database’”), plus abstracts of studies on transfer factor and CFS.


EPD Injections – Still Available?

Q: Just wanted to enquire and comment on a treatment that used to be given to ME/CFS patients called EPD injections. I have spoken to patients who received this treatment a few years ago and felt they benefited. Would you happen to know whether these injections are still used to treat ME/CFS? – Toni

A: EPD (enzyme potentiated desensitization), and its American offshoot, Low Dose Immunotherapy (LDA) are explained at Wikipedia [http://en.wikipedia.org/wiki/Enzyme_potentiated_desensitization] and other sites including food-allergy.org [http://www.food-allergy.org/epd.html], which offers some resources including a handbook. Since I believe you’re in the UK, this site’s state-by-state list of doctors who administer LDA in the U.S. won’t help you. But perhaps something similar exists for physicians in the UK, via organizations such as the International & American Associations of Clinical Nutritionists – E-mail: ddc@clinicalnutrition.com

And why not ask your question in the ImmuneSupport.com community message board? It may get you some personal views and info on the therapy specifically from CFS patients – and maybe even some who know about doctors in your area.


Could the Herpes Virus be the Culprit?

Q: I…started having chronic fatigue problems in the 1970s… After retirement, I was diagnosed with Lyme disease and Fibromyalgia and received multiple rounds of antibiotics with some temporary improvements… I recently had a bout of facial shingles… While developing and manifesting the shingles, I had a recurrence of so many of the symptoms of Fibromyalgia, including multiple aches and pains, chills, mild fever, depression, etc…. Is it possible that this herpes virus has been the culprit all along? – Sara

A: Several studies have implicated the human herpesvirus 6 and/or 7 (HHV-6 and HHV-7) in at least some cases of CFS. To read more about these studies, search on the words herpes virus at ImmuneSupport.com.


Cranial Electrotherapy Stimulation

Q: How would I go about trying cranial electrotherapy stimulation? Who does it or what doctor group can write a prescription for it? – Roger

A: In the U.S., any physician or licensed medical professional (i.e., dentist, chiropractor, certified acupuncturist, naturopath) can prescribe the cranial electrotherapy stimulation (CES) device. In some cases, practitioners may require you to go to their office for treatments. Other times, they may prescribe a unit for you to use at home. The CES device costs around $500. Some insurance companies may cover part of the cost.

To learn more about CES, read “Cranial Electrotherapy Stimulation: A Non-Drug Neuromedical Treatment” http://www.immunesupport.com/library/showarticle.cfm/ID/7621.


The ‘Lightning Process’

Q: I am hearing more and more reports of people traveling to London to undergo 'the lightning process.' I am a long-term chronic ME/CFS sufferer and I am very skeptical about spending more energy, time, and money on yet another search for the Holy Grail. In saying this, I have personal friends who are on the waiting list to attend the course and go through the process, so I am contemplating the treatment. The cost is in the region of £600. Of course, that is with the exclusion of travel and accommodation. The course lasts three days…There have been to date no stats or medical evidence that the treatment actually works, only testimonies from sufferers…I would like to know if there are any clinicians who have evidence to support the lightening process is effective. – Jan

A: You are wise to be skeptical. This “treatment” raises several red flags:

n Phil Parker, the gentleman who developed the lightning process, claims to have discovered the root cause of ME/CFS [Red Flag #1], saying it is brought on by a continuous overproduction of adrenaline. It would be wonderful if it were only that simple. While some higher than normal levels of adrenaline may be a component of ME/CFS, it is only one small part of a very serious and complex neuroendocrineimmune disorder.

n As you noted, there are no studies or medical evidence to prove that this treatment works – only personal testimonials [Red Flag #2]. These stories can be extremely persuasive, especially when you are desperately looking for something to help. Just remember, you don’t even know if these testimonies are really true.

n Parker claims that this treatment is effective for a wide variety of problems [Red Flag #3], most of which are more toward the mental and emotional end of the spectrum.

The lightning process works on the premise that some internal organs, like the hypothalamus, can be brought under conscious control. He says he trains you to recognize the negative cycles you’re in that have “blighted your health and stunted your life.” Then he uses the philosophies of Neuro Linguistic Programming (NLP), osteopathy, self-hypnosis and life coaching to teach you how to break the negative cycles.

Studies have shown that positive thinkers feel better and tend to heal more quickly than negative thinkers, so in that sense, there could be some benefits from this treatment program. However, there is no clinical evidence that it will eliminate ME/CFS. Only you can decide if the possible benefits are worth the high financial cost.


Note: This information has not been evaluated by the FDA. It is not meant to diagnose, prevent, treat, or cure and condition, illness, or disease. It is very important that you never make a change in your health support plan or regimen without first researching and discussing it collaboratively with your professional healthcare team.

1 Star2 Stars3 Stars4 Stars5 Stars (205 votes, average: 3.00 out of 5)

Leave a Reply