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Letters From Our Readers – Comments and Suggestions 7-18-07

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Learning About Symptoms Helps

Thank you for putting your newsletter out. I was diagnosed with Chronic Fatigue Syndrome (I also have Fibromyalgia & lupus), but I never knew anyone who had the symptoms. So besides fatigue, I really didn't know what else was related to it. I read the symptoms on your site and I have every single one of them! Now I understand it better and can say, “Ok, I'm feeling this way because of this.” It really helps to know what you're dealing with. – Brietta

 

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Mark Pullinger's CFS Story Profoundly Moving

Mark, you profoundly moved me with your description of CFS [“Flat on Your Back and Moving On”]. You write beautifully and succinctly. Thank you for finding the words that are so hard to find. You have described so much of my life for the last 18 months. I'm lucky though as I'm walking, albeit very slowly and in between relapses. Now I have a certain level of function, with a very slow pace of life. I hope that you continue to improve and your management business flourishes. Maybe you should consider writing, too. – C

 

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Mark's Story, And Learning To Be Content

I so appreciated Mark Pullinger’s article. Only those of us with CFS can truly relate and you described CFS so well. As if the physical suffering were not enough, we suffer criticism and lack of understanding from those uneducated in CFS/FMS. Then there’s the emotional disappointment of our friends drifting away and the inevitable isolation we endure. I think it takes us years to come to the place that we accept our condition. Although we never give up hope of a miracle healing, we have to learn as Paul said in the Bible, "I have learned that whatever state I am in, therein to be content." We never cease gathering knowledge of how to treat ourselves physically, mentally, and emotionally. – P

 

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Keeping Up With Research & Thankful To Dr. Pall

I think Dr. Pall’s theory may be one of the best, new breakthroughs to help us. [“Nitric Oxide Cycle Theory: Will It Explain CFS, FM, and Other ‘Unexplained’ Illnesses?”] I am very thankful to Martin Pall, PhD, for his work. I have kept up with every protocol and new research for past eight years. Thanks to ImmuneSupport.com for making this an easier thing to do. My rheumatologist told me in 1991 that I should "go out and find things that are working and pursue them.” He said that he could not do that and had very little to offer me. He said he knew of help out there, but he could not access it from traditional medicine practice. This is same good doctor who 10 years later wrote on his prescription pad for me the following that I could try with proven results: “Sam-E, St. John's Wort, ProzacR, water exercise.” Thank God for good doctors like this one. For the record, I decided not to try the Prozac. – T

 

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Dr. Pall’s New Book Worth Reading

I read Dr. Pall’s new book, Explaining "Unexplained Illnesses": Disease Paradigm for Chronic Fatigue Syndrome, Multiple Chemical Sensitivity, Fibromyalgia, Post-Traumatic Stress Disorder, Gulf War Syndrome and Others, and am surprised there hasn't been more talk about it. Since I don't have a background in biochemistry or anything related, I can't really comment on the science behind his theory. So often I've wished I went to med school or had some training that would help me better understand what's going on with my body!

His theory is appealing in a lot of ways. It's relatively uncomplicated and has a lot of explanatory power. It provides an explanation for the diversity of symptoms underlying chronic illnesses, why symptoms wax and wane, and why so many chronic illnesses co-exist. He has integrated an enormous amount of information in support of his theory.

I think his theory is exciting. It provides many testable hypotheses and I hope researchers start trying to verify it. The book is a challenging read, but Dr. Pall clearly wrote it to be accessible to lay people, which is good since many are in the position of educating their doctors. He also provides treatment suggestions. These seem preliminary to me, but since so many of us are desperate for anything that might help, I appreciate that he did so. – Anon

 

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Health Benefits of Gardening

Two things that work for me: First, I try to just accept myself in whatever state of muddlement I happen to be in. Sometimes it’s even funny. Second, I spend a few hours outside in the sun pottering in my garden doing mostly light weeding. I get close to the soil, feel the green grass and smell the soil. This is one activity, perhaps the only physical one, which restores my energy rather than removes it – within limits of course. I’ve said this for years and people say, “Oh, yes, its something you enjoy.” But the other day, while reading a reputable journal of microbiology, I saw where they have found a bacterium vaccae, which inhabits the soil. It stimulates the immune system and increases serotonin in the brain! – Slowdreamer

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Note: This information has not been evaluated by the FDA. It is not meant to prevent, diagnose, treat, or cure any illness, condition, or disease. It is very important that you make no change in your health plan or regimen without researching and discussing it in collaboration with your professional healthcare team.

1 Star2 Stars3 Stars4 Stars5 Stars (617 votes, average: 2.85 out of 5)
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