Frustrated But Not Depressed
I recently met a young woman (younger than me, at least) who asked me, “Don’t you get depressed with this Fibromyalgia?” My response to her was this: “I have suffered with Fibro for almost 30 years. Sure, I get frustrated with the limitations all the time, but depressed? No. Because I know that this certainly is a “life-altering” condition but it is not “life-threatening” and for that I am grateful. How we feel can change, not just day to day but from hour to hour. But we will be here tomorrow and the next day and the next day to embrace whatever comes our way.” – Peggy
My Triple-threat Treatment Combo
I was diagnosed six years ago and tried treatment found on the first website I searched: Fibromyalgia Treatment Center. I started taking [large doses of] guaifenesin. I went into remission almost immediately. I stayed on this dosage until the nurse at FTC responded to my e-mail by stating my body couldn’t handle that dosage. Once I lowered the dosage, the symptoms returned. I found a chiropractor who used the Palmer method plus direct, deep massage on the FM spots, followed by traction for 10 minutes – all the difference in the world. After visiting four different specialists, I convinced a physician’s assistant to let me try MirapexR as [found in an article on] ProHealth. I have found this and guaifenesin plus chiropractic is absolutely required to live with the disease. I teach high school students, put in 10-12 hours a day, and I’m 56. – MC
Note: We’re pleased you have found a treatment combo that works for you.Your story is a good example of what so many FM patients have found – that it often takes a combination of both medical and alternative/complementary treatments to successfully manage Fibromyalgia.
LyricaR Success Story
I was recently put on Lyrica, the FDA’s newly approved drug for Fibromyalgia. The first two weeks I was dizzy and spacey. After that, I’ve got more energy and a clearer mind than before Lyrica. My sister has been on Lyrica for a few months and is able do things like to tear down walls for her new kitchen and work all day long. – Lora
My Kinship With Karen
Thank you so much for you article about Karen Richards. (“Karen Lee Richards – Making a difference in the lives of those living with Fibromyalgia and Chronic Fatigue Syndrome”) I feel a kinship towards her in a lot of ways. I was finally diagnosed with FM by my doctor in the early/mid 90s, after years of suffering and putting off doctor visits because I would go from “it’s probably all in my head” to “it’s probably terminal, and I don’t want to know.” …I felt like many have said they did, elated because I finally had a name for all of the problems I had been experiencing; and confused because at the time there was precious little info available on the disorder… I am so grateful for ImmuneSupport’s abstracts and articles. Now there are shelves of books at bookstores on the subject and the Internet is loaded. I read and research as much as I possibly can.
I have pretty much been in a constant flare for over two years… I can’t work anymore. I pushed that envelope about five years longer than I probably should have, but I had a job I loved despite the stress. I’m single and that was my only means of support. I have struggled mentally, physically, emotionally, and financially – especially financially… Things, belongings, etc. don’t mean as much to me anymore. I’ve found it’s easier to just hang onto my memories – they are much lighter and easier to move around and carry.
I have found, like Karen, that it helps to: 1) pace myself; 2) know/acknowledge/respect my limitations; 3) learn to either say no or just be stubborn and don’t show up. I no longer “drag” myself to get-togethers, meetings, etc., when I’m tired; 4) eat when I’m hungry, drink when I’m thirsty, and sleep when I’m tired; 5) be creative. I love to make jewelry, artist trade cards, and mixed media pieces. I’ve found this not only relaxes me, but takes my mind off the pain when I’m creating… I, too, now realize that this illness is a blessing. God needed me to slow down and reorder my life… Please know ImmuneSupport has helped and is continuing to help and be a blessing to me… I even have you listed on my blogsite. – Joni
Let’s ask Oprah Winfrey to do a show in CFIDS and Fibromyalgia. And include the personal debt we are all suffering under while trying to hold our bodies together. – Pam
Note: While we would never discourage anyone from writing to Oprah, it’s worth noting that for at least 10 years individuals and groups have organized letter-writing campaigns asking her to do a show on one or both illnesses. Thus far none has met with success. However, it never hurts to keep trying. Who knows? Your letter may be the one that makes the difference.
Note that this information has not been evaluated by the FDA. It is generic and is not meant to prvent, diagnose, treat or cure any condition, illness, or disease. It is very important that you make no change in your health care plan or health support regimen without researching and discussing it in collaboration with your professional health care team.