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Letters From Our Readers – Comments & Suggestions 11-14-07

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A Flu Shot Exception

I would add one more exception to your flu shot advice (“The Flu Shot Dilemma – And Things to Know”). Anyone who is allergic to eggs should not take flu shots. I am, and the last time my arm swelled up very much and I was told to never take one again. I do encourage everyone at work to take it, and that makes me feel better protected. – C


Flu Shots in South Africa

I am almost 69, and live in Southern Africa where our seasons are opposite to those in Europe. During the last five years I have noted the various influenza strains that prevail during the British winters and which usually arrive here six months later. We therefore have advanced warning! Taking advantage of this, I have had an annual influenza vaccination each March (equivalent to the English September, as it is beginning of our Autumn) and have been flu free in the midst of the various epidemics that have affected family and friends.

Also, although this flu shot is not supposed to stop the common cold, it seems to do just that. With nine grandchildren, all of whom live close by and visit almost daily and whom I often look after when they have a severe cold, I remain unaffected or get the sniffs for maybe just 24 hours. After a very bad dose of the flu leading to bronchial pneumonia six years ago, I decided to try the flu vaccine for the following winter and it certainly seems to have kept me infection free for the last five years.


Phoenix Rising – Excellent Website

Once again ProHealth is ahead of the pack in providing new and excellent resources for those of us with CFS. Thank you for featuring the Phoenix Rising site by Cort Johnson [in the profile “Cort Johnson: Making ME/CFS Research Readable and Accessible” by Karen Lee Richards.] It seems to be an excellent, multi-faceted source of vital information on CFS and ways to combat it…Thank you so much for all you do to keep us hoping and informed. – Denise


Excited About Name Change

I get very excited seeing the [name] change that is coming and that the definition will also be corrected to reflect the true nature of this horrible disorder. I will be more excited when I learn that the CDC is using the term myalgic encephalomyelitis, which is a disorder that was defined decades ago, and long before there was the erroneous name CFS.

Then the CFIDS Association should follow suit by changing its name to the American M.E. Association. Then there will be dancing in the streets. Those who have to use walkers or wheelchairs can still whip around the streets. I have a bright red walker that I can move pretty fast with when needed. I’ll supply the confetti or birdseed or whatever is appropriate to toss in the air in celebration. At long last, the CDC and NIH can get to work and determine what is going on in our bodies….When real research is applied to what we are dealing with, then and only then, can we have real hope. – Nancy


Name Change Is Just the Beginning

The article “Name Change News and Plans for the Road Ahead” is very proactive and informative. I was under the impression that there was a name change to CFIDS (Chronic Fatigue Immune Dysfunction Syndrome) that had been passed through legislative means.

It is imperative that not only a name change occur but that understanding of the illnesses (CFIDS & FM) and what they encompass are expounded upon as well. Having “syndrome” attached to the diagnosis often creates biased views as to its viability from a medical perspective.

Changing the name is a portion of what is needed. Treatment like that afforded to other diseases that are disabling, that have a powerful impact on one’s life, should be given as well…Providing a baseline to work from is only the beginning. – S


Note: This information has not been evaluated by the FDA. It is not meant to prevent, diagnose, mitigate, or cure any illness, condition, or disease. It is very important that you make no change in your healthcare plan or health support regimen without researching and discussing it in collaboration with your professional healthcare team.<

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