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Letters From Our Readers – Q & A Session 1-17-07

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More Access to Journal Articles?

Q: Thank you for collecting and presenting such valuable scientific research as well as inspirational and equally valid anecdotal information. It has really helped me feel validated and to be able to speak with physicians and others with credibility. But, it seems the scientific abstracts are shorter now than they used to be, and that you have edited them down for the general public. I am not a researcher, but could understand most of what the scientific papers were saying, and liked having more information to scan. They always had a summary at the top for people who didn't want to read the entire paper. There are far more of these papers than there used to be, which is fabulous, but I'd like to read more on some of them. – TH

A: The full articles on research studies usually come from scientific journals, are copyrighted, and are not available for reproduction. These articles are available to journal subscribers or can be purchased on an individual basis (although they can sometimes be rather pricey). Whenever we print a research report or an abstract, we always reference the journal where the full article appears, so if you are interested in purchasing a copy of the report, you can contact that particular journal.


Info on HHV-6 & CFS Links?

Q: …Would there be a possibility of a somewhat expanded synopsis of many of the presentations and papers on subjects pertaining to CFIDS? I'm particularly referring to the article by Komaroff, Ablashi, et al about the roles played by HHV-6A and B in CFIDS and other disorders of the nervous system…Is there some way in which one might access the entire presentations? – Marnie

A: The article you mention summarizes the proceedings of the 5th International Conference on HHV-6 & 7, held in Barcelona last May with support from the HHV-Foundation. To read the full text of this summary, go to the HHV-6 Foundation site at http://www.immunesupport.com/library/showarticle.cfm?id=7615&T=CFIDS_FM Additionally, this issue of the newsletter includes abstracts of key presentations made at the conference which pertain to the relationship between HHV and CFS – with links to the publisher for readers who wish to purchase the full text of any article.


Anything on Relapsing-Remitting MS?

Q: I was diagnosed with Fbromyalgia about six years ago, and have been struggling with the physical and cognitive symptoms for at least eight years. I have just received a tentative diagnosis of relapsing-remitting MS. I am curious to know if others have had the same experience or if there is an incidence of the occurrence of both disorders in any research studies to date. Thanks again for your continued good work in keeping us informed. – Andrea

A: According to a recent study published in the Journal of Clinical Virology, there exists a subpopulation of CFS patients who have chronic, active infections with HHV-6. This subset of CFS patients is remarkably similar to patients with relapsing-remitting MS with respect to their active HHV-6 infections. See the abstract of this article – “Active Human Herpesvirus six (HHV-6) infections in patients with Chronic Fatigue Syndrome (CFS) and relapsing-remitting multiple sclerosis (RRMS)” – at http://www.immunesupport.com/library/showarticle.cfm?id=7642


Looking For A Doctor

Q: Do you have a list of doctors who treat CFS/FM in the Dallas/Plano/Collin County, Texas area? – Sherry

A: There are several places on our site you can check: 1) From our home page, in the left-hand column, click on “Doctor Referral.” Then click on “Co-Cure CFS & FM Good Doctor List.” 2) Start a new topic on the message board, “Looking for Texas doctor.” 3) From our home page, in the left-hand column, click on “Support Group” and look for groups in your area. Local support groups can often be an excellent resource for finding a good doctor.


Needs Text Version of Newsletter

Q: I love your newsletter and look forward to receiving it weekly. But I access the internet on MSNTV and the newsletter is extremely difficult to read as it is much too wide. I have to arrow to the left and right constantly in order to see it and before I can get through more than an article or two I have eye strain and quit. Is there any way I can get an all text newsletter that isn't so difficult to read? – Ann

A: Yes, there is an all text version available. To begin receiving this version simply e-mail us at customerloyalty@prohealth.com and ask for it.


How to Order?

Q: How to proceed for ordering Melatonin? What form to complete? Thank you. – Sergiu

A: All ProHealth products can be ordered online at ImmuneSupport.com/shop, by phone, or from the printed catalog. If you have any further questions, or to order by phone, our knowledgeable customer service staff is ready for your call: (800) 366-6056, Monday through Friday, 6 a.m. to 5 p.m. PST. Or connect with them via e-mail at any time at customerloyalty@prohealth.com

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