Fifty-six patients with fibromyalgia, previously studied in 1984,
were followed up after five years, using a mail questionnaire
and a global health assessment instrument, the Sickness Impact
Profile. The aim was to investigate the patients’ perception
of their symptoms and to describe the consequences for
everyday life. Half of the patients reported that pain,
fatigue and sleep problems had increased, less than 20%
reported improvements, and 30-40%, no change. In spite of
this, 25% reported that their overall condition had improved.
Motor tasks were somewhat less difficult to manage. The
symptoms had severe consequences for the patients’ ability to
manage everyday life activities.
The study confirms that fibromyalgia, once established, is a
non-remitting syndrome. Also, the social consequences were
constant over time.