“Family Wants More Research for Chronic Fatigue Syndrome” – Reno MyNews4.com led with this headline on Aug 26, publicizing the need for more ME/CFS research funding.
In this article and the accompanying video, staff writer Alyx Sacks shares her interview with 20-year ME/CFS patient Robert Miller and his crusading advocate wife Courtney Miller. For background, Alyx notes:
• It was Courtney who in a 2011 Town Hall Meeting told President Obama “we spend less than $6 million for NIH research on this illness,” [less than on psoriasis, for example] and asked, “for my husband and my kids, who want their father to be able to go to their baseball games, if there’s a way to make improvements in that.” The President promised he would look into it.
• And it was to Courtney the President directed a letter that indicated to her “he has thrown in on our side.” (“President Obama asks NIH & DHHS to elevate priority of chronic fatigue syndrome.”)
“Just the fact the President did that was the best thing he could do for my family,” Courtney says.
To read the Reno MyNews4.com interview and watch the video, CLICK HERE.
You can also forward them widely… post a comment thanking News 4, and thank Alyx Sacks (asacks@MyNews4.com)
See also ME/CFS Alert co-host Llewellyn King’s Whitehouse Chronicle column, “Obama Takes an Interest in Chronic Fatigue Syndrome.”