Editor’s Comment: The CFIDS Association of America has posted a survey to help gather information about symptoms and treatments for ME/CFS for the upcoming FDA meeting. Input from the CFS/ME community is an essential component of this discussion. This survey is easy to fill out, and will only take a few minutes of your time.
~Source: CFIDS Association of America
The survey is designed for people living with ME/CFS and those closest to them, and poses open-ended questions to allow respondents to describe the symptoms, daily impacts that matter most, as well as share personal perspectives on treatment. Questions are worded in the same way the FDA has asked them; we’ve supplemented with some some additional questions on the same topics. You can answer with phrases or lists; you do not have to write complete sentences.
All survey responses are anonymous and confidential. We intend to present an analysis of the collective responses at the FDA meeting and at the May 22-23 meeting of the federal CFS Advisory Committee to better inform the federal health agencies about these issues.
You can find the survey HERE.