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Reprinted with the kind permission of Open Medicine Foundation.
After those two meetings, Linda had the pleasure of having lunch with two young patients and others before visiting Craig Morris and his wonderful parents in Port St. Mary. Craig is severely ill and homebound. Despite that, he found the strength to connect with the ME support group and together invited Linda to visit the Isle of Man and talk to their government. Linda and Craig spent some enjoyable time together talking about the success of the government meetings and in appreciation that the Minister agreed to put money towards improving ME/CFS services for patients. Linda was especially touched by Craig’s huge smile despite his disability and suffering.
Celia (Marshall, chair of the Isle of Man ME support group) and Linda were then interviewed on Manx Radio at the Isle of Man radio station. Once the short 4-minute clip of the interview is ready, OMF will make sure it is shared with all of our supporters. Linda then had an interesting private scientific meeting before going to Celia’s house. Celia was so kind as to organize a lovely dinner for the ME support group members at her home, where Linda was staying, and about 10 people were able to join. Linda went to bed late, enjoying again a full day of successful and inspiring meetings. The morning after she left on her trip to Dublin.